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The thing is Mr. Shevel, the published studies that you are talking about include a total of one on cluster headaches and that study has a fail rate of 20%. That's IF you actually got relief for these people by your surgery and it's not, to use your own words-- "In the treatment of CH, the possibility must always be borne in mind that the cluster stopped spontaneously, not because of the intervention, but because of the natural progression of the disease." (or because you gave them the right drugs for anesthesia which knocked them out of cycle, just like many of the meds that we use for clusterbusting) The 80% success rate in this story gets a lot of press from you and your business, but very little attention gets paid to the failures. What are their stories like? Because on this site we have heard from more than one of them and the stories have been pretty horrific. In case Mr. Shevel has not taken the time to read through the rest of this post here are the reports- "August 29, 2015 My niece went back to JoBerg and stayed there for three weeks. During that time she had 3 procedures done but unfortunately it didnt work. When she arrived home in Australia she was worse than ever and it has been devastating. " "My sister went twice as she really believes Mr Shevel could cure her. Both times her wounds got badly infected and the cuts in front of her ears looks horrible as the stitches were not done properly." "I have been through 2 operations, and sadly my headaches is not even 1% better. As a matter of fact, where he has cut hurts tremendously. AND I AM R70 000 South African Rand poorer. He promised me he would make it better. > My husband took out a second mortgage on our home. I have also found out that he has lied to me. My jaw could not open after the first operation, and he said he never had this problem... Just to find out someone else on this forum had the same problem. I went to the headache clinic specifically asking them to help me with medication overuse headaches, and they just wanted to operate. I was already taken morphine on a regular basis, I WAS DESPERATE. I THINK THE HEADACHE CLINIC IS THE LAST PLACE TO VISIT IN SOUTH AFRICA IF YOU ARE SUFFERING FROM CH. IN my opinion they are money hungry sharks, which thrive on the desperate and vulnerable." After every operation, I got infection. They do not sterilize where they cut, that's why infection happens so frequently. I know they do not sterilize, because the tears on my cheeks where clearly visible through my make-up. The day when they did the tests I have given them a list of all the meds and ASKED HIM ON SEVERAL OCCASIONS.... WHAT ABOUT THE DETOX. Seriously, if I asked him 5 times, I am not joking. Every time, he told me that so how, after the operations, there IS ZERO DETOX effects. I had the WORST DETOX in Desember after the first operation. Sad, since, my original reason I went there was for them to PLEASE get me off of all the meds!!!! For goodness sake, as a clinic specializing in headaches, the effect of rebound headaches should be so clear!!! Again, they are money hungry sharks!!!" Even if you get relief from your clusters, if your clinic is so messed up that you die of a sepsis infection because your wounds weren't treated right who cares? Or how about some really great facial scarring with a side of bankruptcy and still have no relief from your clusters? It's true that it is hard as hell to find a doctor that knows what they are talking about and when it comes to cluster headache there really is only one way to prove that you are actually basing your actions on facts, not opinions. That's to pass the exam the United Council for Neurological Sub specialties has for headache medicine. https://www.ucns.org/ McGeeney has passed this, have you? When you say "If anyone is misguided, according to the medical literature, then it is Boston Headache Doc. Most “headache gurus” have very little real knowledge of the origins of cluster pain. They offer opinions with emotive phrases to scare patients and when in fact they are dooming them to a life of misery when help is actually available and scientifically substantiated." I would say you have this quite backwords. McGeeney has proven time and time again to all of us here on this site that he has real answers that can and have helped us. He's proven he knows what he is talking about and he has done all of this essentially for free, never once trying to make a buck off of anyone. I am pretty sure he has not actually left anyone without the option of eating solid food anymore either, which I am pretty sure is something you can not say. The only thing that you have proven is that you are willing to disparage people you know nothing about in order to save face from the mutilations and pain that you have caused in your effort to fill your bank account. Final note--On this board it is generally frowned upon when people try to sell things to other members. Especially when the price tag is around $50,000 and the only thing you are likely to get out of it is the knowledge that sometimes things actually can get worse than just having clusters. By the way, thanks! I'm giving a conference talk at the biggest psychedelics conference this world has ever seen in about a week and I was looking for some more material for my talk. The rogue "Dr's" that are out there trying to make big bucks off of desperate people by the old slice and dice will make for a good attention getter. -Ricardo

Dannyboy is back spewing his self serving drivel. Bullshit. Potter

So, we either have the latest incarnation of Danny Boy here or Quack Shevel in the flesh......either way, FECK YOU and go away!!

Mr. Shevel never ever will stop shitting. His business model is just to much successful... He just needs a few patients every year in order to make a nice income. Logic tells he is able to get them when trying hard enough. The onliest we could do is kick him out off this site/ignoring him, giving feedback on his writings thus warning all others... If Mr. Shevel claims he being able giving cure to us, so it must be fact he knowing the root cause of our suffering, but he doesn't. 20'000 und per patient for operating WHAT? There is no justification charging such a ridiculous amount. Last year I had 3 major surgeries (all emergency) in at top hospital and did not even spend half of that money... This Mr. Shevel is well known also within other CH sites/portals having the same results/success as he is presenting here. Exactly the same bullshit results... Probably we should apply this very special surgery on Mr. Shevel himself just in order to provide protection for possible future attacks And now, better stop spending valuable time on this one... ****************************************************************************************************************************************************************************** ...and bevor I even think about trying his method, I may try the latest technique a newbie mentioned just TODAY: Masturbating during an attack newbie claims helping him abording CH. Having up to 9 attacks per day this youngster must be very potent Should I spend my money on Viagra instead on Sumatriptan nasal? Naturally I'm not able at any means creating more than 3 sessions per day ******************************************************************************************************************************************************************************* Success rate from this site and techniques used is high. I don't have figures but guessing far more than 50% of us achieve being pain free. The rest does get huge relief. The minor part (I guess, I do not have correct numbers) say about 10% may live with status quo but I'm not sure probably even less. Eventually a sticky message with a warning about Mr. Shevel does the job at least for this site. Talking even more about this guy is at the end of the day exactly what Mr. Shevel is locking for in order to get the one cluster head out of a thousand! ******************************************************************************************************************************************************************************* Shouldn't we lock Mr. Shevel in a prison cell, giving him cluster and a multi pack of Viagra? Worthwhile a try isn't it? (yes, I feel sad having to write like this but being nice on this one would be insane)

Dr. E, it took you a year and a half to come up with a response? Is business that bad? All those peer reviewed articles not beating a path to your door? Word of mouth from all those 'Cures' not working for you? Sheeesh

No worries. I got a prescription from my Neurologist for the oxygen at 12 L/min from a nonrebreather demand mask for 15min. I got him to put the demand mask in there and he got the 12 L/min for 15 min from his literature. When I went to my local DME they hooked me up with a M60 tank and a regulator that goes up to 15 L/min and I have been running it at 15 L/min. Once I new it was working I looked into the cost of buying the equipment vs rental and saw that it would not take long to make a return buying it instead. I contacted my DME and they said it would be not problem if I got my own equipment from somewhere else and they just filled my tanks for me as long as I had a valid prescription on file with them. I am buying the tank from them because they had the best price and got the rest online from Foremost Medical Equipment.

'Reading all the blogs that in no way represent the experience I, and so many others, have had at the clinic serves no purpose for me.' Well, that says it all. You have posted on three of the Boards on this site. They all say the same thing. CURE. You want to speak at our conference even. You accuse this site of not honoring its' mission. In addition, you have provided no facts to support your stance. We will keep an eye out for Neurologist's testing and replicating this methed for sure. If it is proven to be effective as a cure, I am certain that we will all celebrate and post the outcome here. For now, perhaps you could provide facts? I am sure that my friend in South Africa, who has also undergone this treatment would be quite interested in reading them. I have had CH for over 40 years. I have had a ten year remission during that time. I have seen treatments come and go too. If this treatment proves to be a 'cure' without creating casualties along the way I might be interested. Facts please.