Leaderboard

OK so I am new to Dr Cluster Cutter. Being a creature of the Apostle Thomas, I read the papers the good Dr posted to bolster his claims of surgical success in treating the cervical vascular tree of cluster sufferers while disparaging his Boston critic. Of the papers listed one is a very small case report series with less than 6 months follow up. Basically this is the type of "show and tell" paper most experts hate to see. There is no reported evaluation, no description of prior treatments and no objective documentation of long term success. A gratuitous failure is reported to seem genuine. Most importantly there is no follow up paper reporting or describing the subsequent cohort of patients who benefited from this intervention. The other papers listed are a repeated rehash of the same concepts. Putting sheepskin on theory presenting ideas and concepts as facts and forgone conclusions. This type of appearance in peer review type publications is "padding the resume" and complete fluff. This smacks of the worst medicine has to offer. Physicians and surgeons who develop new techniques and have a modicum of ethics refine the techniques, continuously report the techniques outcomes with data and teach the techniques. Peers who review these techniques get fired up and want to learn them and independently validate the findings. With all the folks who suffer these headaches (within the spectrum he alleges successful outcomes) throughout the world there is no way other surgeons would not become curious and investigate this as a possible effective treatment. Believe it or not most physicians and surgeons want to make a difference and want people to get better. Most medical communities have internal checks and balances to prevent individuals doing ineffective, unproven, exploitative procedures. Doctors who do are often found only in independently owned free standing clinics and surgical centers where they can escape the scrutiny of medical staff review and ethic committees. Surgery is an irreversible act. Once steel divides skin and vessels are divided its pretty hard to undo. So be careful if you consent to having a novel procedure because it may make things worse or senselessly drain resources from you and your family. This is also a good example of why controlled studies with long term follow up are vital. Here and on one of the cluster oriented FB pages there has been discussions of medications like ketamine and propofol being beneficial for treating clusters. Both these medications are commonly used in anesthesia. Suppose you have a novel surgery for your CH. You get IV meds for anesthesia, a cut on your neck, irreversible vascular changes with a significant wallet biopsy and voila no headache. You tell your surgeon he or she walks and water and fly home. Three months later the demon returns, your bank account is dry and the surgeon reports your case as a win. Is it possible the anesthetic agent actually provided some relief? Does this sound like some of the medical treatments we take...works for a while and then you need another dose? How do you know? No way to know that is one reason studies are important and why CB has directed resources at doing important studies. Please use care, inform yourself with independent information and don't be exploited. '

The 12th Annual Clusterbusters Patient Conference will be in Chicago, IL from September 14th - 17th, 2017. Details and registration coming shortly.

Absolute garbage Shevel. I know that your bulls**t so called cluster patients (who you could not even teach what a cluster is) on whose blatant lies you got some coverage in medical journals are total fakes coached by Daniel. Quacks are a disgrace to the medical profession and even more so when they take advantage of vulnerable and desperate people. You anger me.

Daniel, stay in Cape Town and away from your father. He is a quack and you are a great marketer but you have both been revelead. Those videos are bulls!*** and you know that. None of them had clusters - they don't even know what a cluster is. I saw your father and got ripped off - buy a plate to relax my tongue and cure my clusters, it's the artery that causes clusters, etc. Load of crap I should have bitten of his finger when he stuck it in my mouth. And I know people who know both of you so you can't pull the wool over my eyes. These are intelligent people here and those who are desperate have us to protect them against people like you and your quack father. Stick to being a gym bunny and pretty boy and leave us sufferers alone. Warning to others: MRI - migraine research institute is Daniel Shevel - it's no institute, it's another branding excercise

Just the presence of a supporter does help a lot! To me, small things a support could do are so much appreciated, valuable. Grrl77 you could help by knowing the techniques used by your partner/this site as there are plenty and procedures well documented and quite extensive. Just to be sure no important information gets lost. Busting for example has a very specific procedure where timing is essential. Sometimes it is hard for a cluster head to follow the instructions point after point (slapback headache, ch becoming even more severe but less frequent may force somebody to resist...) To me nothing is more sad than sitting on a chair in the shower using hot/cold water fighting the beast, knowing nobody but really nobody is there, just me alone... Just the presence is important. I know and my ex wife knows she can't help on the pain so I never ever did but weight on here shoulder. But a warm hug, cup of tea, whatever after an attack is so much appreciated and can't be paid with money. But please, as supporter do not make the mistake going into suffering yourself! I know this is difficult but important, very important supporters controlling the impact to themselves as hard as possible.

Mr Shevel, I don't have the energy or time to empty my brain of all that I have to say to you. I find it disgusting that you come here to try and find more ways to supplement your income. You know well you don't offer a treatment worthwhile to even try and you should know full well your results have been poor while costly to the patients you have cut up. Feel free to link your papers (not just a list of supposed papers). Feel free to link your testimonials. Mostly, would love for you to link a medical reason your cutting would work for CH. For full transparency, I plan on reading each with the sole purpose of preparing a stronger defense against your marketing efforts in CH patient sites like this. For you, if you are legit, your work would stand the scrutiny (which we all know it won't). Anyway, thank you for reminding us all you are still out there. We need to make sure we are letting everyone know the truth about your profit making endeavor.

Interesting story -LSD dangerous? How and when? Drinking an excess of milk may become dangerous to... -Recomending reading deep into this site in order to learn how we handle, abort and prevent attacks...

The thing is Mr. Shevel, the published studies that you are talking about include a total of one on cluster headaches and that study has a fail rate of 20%. That's IF you actually got relief for these people by your surgery and it's not, to use your own words-- "In the treatment of CH, the possibility must always be borne in mind that the cluster stopped spontaneously, not because of the intervention, but because of the natural progression of the disease." (or because you gave them the right drugs for anesthesia which knocked them out of cycle, just like many of the meds that we use for clusterbusting) The 80% success rate in this story gets a lot of press from you and your business, but very little attention gets paid to the failures. What are their stories like? Because on this site we have heard from more than one of them and the stories have been pretty horrific. In case Mr. Shevel has not taken the time to read through the rest of this post here are the reports- "August 29, 2015 My niece went back to JoBerg and stayed there for three weeks. During that time she had 3 procedures done but unfortunately it didnt work. When she arrived home in Australia she was worse than ever and it has been devastating. " "My sister went twice as she really believes Mr Shevel could cure her. Both times her wounds got badly infected and the cuts in front of her ears looks horrible as the stitches were not done properly." "I have been through 2 operations, and sadly my headaches is not even 1% better. As a matter of fact, where he has cut hurts tremendously. AND I AM R70 000 South African Rand poorer. He promised me he would make it better. > My husband took out a second mortgage on our home. I have also found out that he has lied to me. My jaw could not open after the first operation, and he said he never had this problem... Just to find out someone else on this forum had the same problem. I went to the headache clinic specifically asking them to help me with medication overuse headaches, and they just wanted to operate. I was already taken morphine on a regular basis, I WAS DESPERATE. I THINK THE HEADACHE CLINIC IS THE LAST PLACE TO VISIT IN SOUTH AFRICA IF YOU ARE SUFFERING FROM CH. IN my opinion they are money hungry sharks, which thrive on the desperate and vulnerable." After every operation, I got infection. They do not sterilize where they cut, that's why infection happens so frequently. I know they do not sterilize, because the tears on my cheeks where clearly visible through my make-up. The day when they did the tests I have given them a list of all the meds and ASKED HIM ON SEVERAL OCCASIONS.... WHAT ABOUT THE DETOX. Seriously, if I asked him 5 times, I am not joking. Every time, he told me that so how, after the operations, there IS ZERO DETOX effects. I had the WORST DETOX in Desember after the first operation. Sad, since, my original reason I went there was for them to PLEASE get me off of all the meds!!!! For goodness sake, as a clinic specializing in headaches, the effect of rebound headaches should be so clear!!! Again, they are money hungry sharks!!!" Even if you get relief from your clusters, if your clinic is so messed up that you die of a sepsis infection because your wounds weren't treated right who cares? Or how about some really great facial scarring with a side of bankruptcy and still have no relief from your clusters? It's true that it is hard as hell to find a doctor that knows what they are talking about and when it comes to cluster headache there really is only one way to prove that you are actually basing your actions on facts, not opinions. That's to pass the exam the United Council for Neurological Sub specialties has for headache medicine. https://www.ucns.org/ McGeeney has passed this, have you? When you say "If anyone is misguided, according to the medical literature, then it is Boston Headache Doc. Most “headache gurus” have very little real knowledge of the origins of cluster pain. They offer opinions with emotive phrases to scare patients and when in fact they are dooming them to a life of misery when help is actually available and scientifically substantiated." I would say you have this quite backwords. McGeeney has proven time and time again to all of us here on this site that he has real answers that can and have helped us. He's proven he knows what he is talking about and he has done all of this essentially for free, never once trying to make a buck off of anyone. I am pretty sure he has not actually left anyone without the option of eating solid food anymore either, which I am pretty sure is something you can not say. The only thing that you have proven is that you are willing to disparage people you know nothing about in order to save face from the mutilations and pain that you have caused in your effort to fill your bank account. Final note--On this board it is generally frowned upon when people try to sell things to other members. Especially when the price tag is around $50,000 and the only thing you are likely to get out of it is the knowledge that sometimes things actually can get worse than just having clusters. By the way, thanks! I'm giving a conference talk at the biggest psychedelics conference this world has ever seen in about a week and I was looking for some more material for my talk. The rogue "Dr's" that are out there trying to make big bucks off of desperate people by the old slice and dice will make for a good attention getter. -Ricardo

Registered and hotel reservations made

Don't Miss the 12th Clusterbusters Conference!! This year's conference will start with registration and the President's Cocktail Reception on Thursday, September 14, 2017 at 5:30 PM. The speakers and presentations will follow beginning at 9am on Friday and continue to Saturday at 6pm. A farewell dinner will follow. Registration link: http://events.constantcontact.com/register/event?llr=asfwt7iab&oeidk=a07edp1qq7m9f077a1c