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Thanks, Denny. i suppose yale has recognized that it has to do something to make up for having me as one of its graduates.

I was at the Clusterbusters conference and heard the presentation about BOL-148. I reviewed my handwritten notes, so I don't have all the details. Essentially, a man named Carey Turnbull, a retired energy broker and psychedelic medicine advocate is funding the continued research of BOL-148. Again, I apologize for not having a lot of details on this, but apparently this man is spending a lot of his own money (millions) to continue the research. I am not on the FB group, so I don't know what was posted there. I had never heard of BOL-148 before this presentation. It sounds very promising though, and it seems this gentleman is determined to get this stuff into research trials. I'm sorry I can't be truly helpful, I was drinking from a firehose at that conference, and didn't absorb everything. But I heard the presentation, and I know a lot of people were very excited about the future of the BOL-148 research, including some people who have been around for a while.

Busting is a topic I don't know enough about, as I am trying to learn that myself. However, I have a few tricks I have learned: OXYGEN is your best friend. There is no actual difference between welding oxygen and medical oxygen (only the cleanliness of the tank). Oxygen is your first and best line of defense. I have found that oxygen will abort an attack almost as fast as an imitrex injection without any of the side effects. You need, at a minimum, a flow rate of15LPM through a non-rebreather mask for 15min. When you go to your doctor, make sure s/he specifies the flow rate and non-rebreather mask (the one with the bag on it). Much more about oxygen can be found here: https://ashleyhattle.com/how-to-get-and-use-oxygen-for-clusterheadaches/ (This is a link to the website of a Clusterbusters board member who literally wrote the book on Cluster headaches) It wouldn't hurt to get the book either, I found it informative and encouraging. Also, there is a lot of information on this board about oxygen. Everyone does it a little differently, but most people have great success with it. A key point is that if it does not work for you at 15 LPM, increase the flow rate and try again. For me, 15LPM will work, but I do better with 25LPM. ENERGY DRINKS are helpful at holding off an attack and are also used in conjunction with oxygen to abort attacks. The combination of taurine and caffeine is apparently what does the trick. I used to slug a cup of coffee to hold off an attack, but the caffeine/taurine combo works better. Look into the D3 Regimen. A cluster headache sufferer put this anti-inflammatory regimen together and cured his headaches. Essentially, it is a bunch of vitamins in conjunction with large doses of vitamin D3. This forum has a lot of information about the D3 regimen, and Batch (the creator of the regimen) is a very regular contributor to this board and is always willing to personally help. Many people have a reduction in frequency and severity of their CH using the D3 regimen. I have those morning hits sometimes too. It sucks to wake up, go through hell, pop an injection, and then have to go about your day. Oxygen has made that bearable. Trex messes with me, makes me drowsy and worthless. Oxygen does none of this. I have also been able to drastically cut back the shadows with oxygen as well. I have recently stopped taking imitrex, and rely solely on O2 and Energy Drinks for aborts. (I still stockpile the injections for a rainy day, however). Also, there is some evidence that imitrex can make your cycles longer. When things were really bad I would take imitrex tablets as a preventative (I could prevent an attack for 12 hours with this method). It sounds like you may be experiencing something similar. Most importantly though, we have all been there. You don't have to put how you feel into words. Those feelings of despair are (in a way) a symptom of this condition. You are also suffering from PTSD (we all are). That helpless feeling you get when you got yet another attack is part of it and there are a lot of people on this board who know exactly what you are going through, and are willing to help. This simple fact did not keep a cycle at bay, or help abort any attack. But it gave me some hope that things would get better in the future. Congratulations on the baby, you have a whole new world to look forward to.

Brendan, I'm sorry to read your story. It sounds a lot like my employer some years ago. The best thing you can do is work as hard as you can when not getting visits from the beast. Show them that you're more than worth it to keep on staff. If you can get detox from any scripted garbage and bust following the tested methods, I'm positive you'll quickly get your life back on track. The busting method entails taking a threshold dose of any of these hallucinogens (LSA, LSD, Magic Mushrooms). You need to detox from most dr scripted meds that are proven blockers (Imitrex is the most common). After a 5 day detox, take a threshold dose (a dose strong enough to feel the effects, but not so strong that you'll visit god. God doses are normally only needed for those of us with really hard cases of CH). After your dose you will most likely get what's called Slap Backs. These are CH attacks that hit at odd times and might be a little harder than your normal hits. Not to worry, that's just the medicine pissing off your beast. Wait 5 days and take another threshold dose. After the second dose most of us have lighter and less frequent hits. Wait 5 days and take a 3rd threshold dose. Most of us are pain free after the 3rd dose. Recap - 3 doses 5 days apart with a 5 day detox period before the first dose. PFW (pain free wishes) J

...i'm not following.....a script faxed or carried to the o2 shop and yur walkin out minutes later with green headed buddies...they be used to "urgent" need in the first place ...don't let ANYBODY tell you they need a respiratory referral/evaluation.....waste of time different disease....you may have to dig up med code for ch which will refer to the manual and all the allied "approved" treatments...of which O2 is one and even primary (yur docs office should be ALL OVER this)…………… ...and oh, I forgot, yur a welder so ya got O2 up the butt or around the corner....a tank, a crescent wrench, a plastic bag and yur ONLINE......NOW

Hi Brendan...welcome....sorry you need to be here.... I think you did an excellent, even chilling job describing what you are going through....I'm sure it resonates with all of us in the family. Cannot even imagine describing symptoms to anyone during a bad hit. Tho it does remind me of a fervent wish many clusterheads have...and that is to experience a hit IN FRONT of a treating physician...so they can SEE what this crap is like. It would be a true nightmare for THAT to go over their head...…………………………………………………... Chris already said most of what I was going to say...only better! OXYGEN OXYGEN OXYGEN!!!! LIFE CHANGER ...several other thoughts.... Imitrex is frequently reported as causing rebounds and/or affecting cycles negatively. If you get the statdoses, some versions can be split up into lesser dosages. The onboard 6 mg is a real freaking HAMMER dose.... whereas 2-3 mg is sufficient for many....with fewer side effects. Better yet, it also comes in 6 mg vials (I think still available) where you can draw up (tiny diabetes set) and use exactly the amount that you need...with many more doses than the usual 2-pack stat. Ask your doc to prescribe the vials...or ask the pharmacist to substitute (as one told me: "same drug same price" ). I did not like the "ooky" feel Imitrex gave me so I switched to Zomig nasal spray (5 mg)….for ME 99% effective, minimal side effects, 18 hr PF "holiday". Same price and no dose splitting...but ya might wanna give it a shot (pun intended)…………. Read this letter titled "Letter to Coworkers" (by Simon). Many find it extremely helpful...only you will know. Bit of a dated format...was the only version I could find right now (is a post from CB sister site: clusterheadaches.com) http://www.clusterheadaches.com/wwwboard/messages/63158.html Best Jon

Hey Chf! From what I learned from Eileen (conference chairwoman) today details will be released soon but the trials are going to be hosted by Yale so I'm feeling very positive!!! In my opinion, Bol148 is the best shot clusterheads have at getting an FDA approved treatment any time soon!!! DD

Thank you. I'm looking forward to hearing more. I looked up Mr. Turnbull on google in every way I could think of to learn about his BOL-related activities, but didn't find anything. So I'll have to wait for more news about him from the conference.

Love to know what "back on track" means. I'm sure the official ClusterBusters FB site wouldn't mislead us, but there's no real info there, either. We heard this over and over from Dr. Halpern at previous conferences. I remember getting real excited and being told by more senior people that they'd heard it before. Entheogen couldn't raise the millions required for clinical trials. I gave them money and convinced friends to give them money. So I'm feeling burned by it all, but willing to become hopeful again.