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https://youtu.be/AbOhVahPNl0

Thanks! Hoping with my blood dosorder diagnosis they are gone forever. Apparently polycythemia vera can aggravate CH and the phlebotomy can relieve it according to my oncologist and neurologist. So at this point I am a bit thankful for my head l, it probably saved my life.

Thank you for sharing. That was a well done rational presentation with excellent flow. Please keep us informed of the organizations progress with government. Finland is a great crucible for this because they have a highly educated population, are small enough to effect change and have a progressive medical system. Many thanks

Depending on what size oxygen tanks you get delivered you will need one of 2 size regulators. I will attach links for the M and M60 and E size tanks. M size tanks are larger and great to keep at the house, E tanks are good to keep in your car for work and travel. The mask makes a huge difference in the treatment so dont give up on it with the small one you will get from the oxygen place you have, Order the one below. This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-protector/dp/B00BXRBJG8/ref=sr_1_fkmrnull_3_sspa?keywords=540+CGA+oxygen+regulator+0-25lpm&qid=1554376819&s=gateway&sr=8-3-fkmrnull-spons&psc=1 The mask can be found here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit

@dehabel I wouldn’t say don’t bother with it. But it’s a harsh drug on the stomach long term. Unless you think you might have one of the other TACs and not clusters, it might not work for you

Thanks, then I won’t bother with it. You all have helped me so much! 240 mg of verapamil which is what I was previously on.

Indocin and indomethacin are the same drug.....it's usually prescribed (and works well, usually in just a few days) for a hemicrania continua diagnosis and is also used as a diagnostic drug since it doesn't usually work for clusters....odd that they would prescribe it along with frontline cluster medications! Dallas Denny

@Hart1985 hey welcome im glad you found the site. You’ll find excellent info on here. Although you are familiar with the headaches, I always suggest keeping a headache diary. Especially if you’re gonna be starting the d3 regimen and Benadryl, this can help track them and see what is working for you. Shadows stink. I drink a ton of water. This seems to help a bit. I also have ginger capsules that I take every day. Some find relief with energy drinks like Red Bull, 5 hour energy, etc. they make me sick so I stick to the v8 +energy. Busting is a good option for many. I spent hours reading through everyone’s busting stories. It was very encouraging. Take a look around on the site. Everyone is very helpful kat