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Thanks Denny for sending me a note. Hi Fern. My doctor is Alyssa Lettich at Intermountain Health Care. 801-507-9800 at the hospital in Murray. I think she is good. Her first order of business will be to get you an O2 prescription. It amazes me the struggle many people have with that no-brainer. Appointments are usually a couple of months out. But, she tells the receptionist to get CH patients in immediately. Not all receptionists receive the memo, so ask them to check with the doctor and call you back if they keep telling you 2 months. I like that you're planning ahead. I need to follow that example! My last cycle lasted 2 years and ended in March. I thought I had turned chronic. Now half my head dreads the spring when It'll likely begin again, and the other half is in denial. That half thinks I've never had CH and never will. If you need anything, bottle of O2 on a Sunday or whatever, find me on Facebook (Ed McDonald). I don't come on this site regularly. It sure has changed since I last logged on. I think I'll do some exploring here today :) Ed

....agreed with everything Pebbles said...doubles or triples supply therefore lowering cost, side effects and rebounds. the tiny insulin needles are less scary (tho not to everybody) and painful compared to the stat dose....and if prefilled, just as convenient (i used to carry such in a stat dose sleeve). until i found zomig ns to be superior in all aspects (save price) this was my last resort abort... ....insurance companies should actually be pushing these for all the above reasons.... but seem ignorant of the product in multiple ways...which is bizarre since the money aspect alone seems to be their driving force ( i long ago abandoned any illusion that concern for patient care/well being was involved in any of their decisions). where i used to get them (costco), the pharm was as perplexed as me... "same drug, same total dose, same price...what's the problem?" ....availability and knowledge of supply has always been puzzling to me....on every CH forum i've ever been on can be found stories of clusterheads being told by docs, pharms, ins companies: these "don't exist, can't be found, not made anymore, or what's that?".... so once again i do an internet search and can find it every time. maybe not conveniently, but were it me, i'd dog hunt it down....

Just read an announcement on the clusterbusters Facebook page for this conference to be held in Milan,Italy in May of 2022!! DD

This study is being conducted by Dr Emmanuelle Schindler who has been a speaker at several clusterbusters conferences and who also is conducting the psilocybin for cluster headaches trials! https://newatlas.com/health-wellbeing/psilocybin-migraine-psychedelic-clinical-trial-promising-results/

You will find it more cost effective and less painful to just get multidose vials and draw up yourself. You can get 2-3 doses per vial using a TB or insulin syringe. There is considerable cost savings with the vials if available and for some reason that prescription sometimes skirts quantity limitations insurances impose. You can bet there will be no savings in a reduced dose auto injector.