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Showing content with the highest reputation on 11/09/2021 in all areas

  1. Lol of course that one goes through..
    1 point
  2. There is a brief discussion/illustration of hyperventilation beginning at about 7:20 in this video (which is at this CB site): https://clusterbusters.org/resource/oxygen-therapy-for-cluster-headaches/ Batch (now xxx) describes and discusses a hyperventilation process here (no video) -- https://clusterbusters.org/forums/topic/4919-batchs-hyperventilation-red-neck-bag/ -- but he is doing it differently. He has 30 seconds of hyperventilation with room air -- ten fast, intense inhale/exhale cycles of about 3 seconds each -- followed by a deep inhalation of O2 that is held for 30 seconds and then forcibly exhaled with a strong "crunch," then followed by another 30 seconds of hyperventilating with room air, then another inhalation of O2, etc. You should read what he says about all that. It begins following the instructions and photos related to the "redneck bag." I found it a little more jumbled than Batch's usual descriptions, but the info is all there.
    1 point
  3. 10,000 IU/day is very safe during pregnancy. Doctors in the know about the benefits of vitamin D3 during pregnancy suggest 20,000 IU/day to 30,000 IU/day vitamin D3 during late stages of pregnancies. It can work relatively fast in controlling/preventing CH. The way I see it, vitamin D3 is the best gift you can give your Tummy Thumper. It builds a strong immune system.
    1 point
  4. So sorry to hear you are struggling. Sounds like you are going to need a fusion which are highly successful procedures in most cases. Will likely lose some range of motion but the pain will be gone so it seems like a far trade. Spinal surgery is not for sissies and since you are anything but a sissy you will do well. Make sure you have someone who has been at it a long time, has a good volume of experience with the procedure and is nice to your wife. Stay strong.
    1 point
  5. I have a cluster friend who has constant shadows. For her oxygen can abort them most of the time as well. Have you tried that?
    1 point
  6. First of all, it doesn't seem that you have oxygen. That is essential! First priority. Get started on the D3 regimen also, but oxygen is essential. It will stop your attacks and it will reduce your intake of triptans. Too many triptans create big headache problems of their own (medication overuse). Do the bad symptoms you describe always happen with the spray? Ever with the tablet?? It sounds like you're saying that you typically have enough warning (even "several hours") before an attack that you can go through your progression of tablet/spray/injection. Am I reading that right? And are you also saying that you can sometimes/often lay down as you deal with an attack? And I think you are saying that an injection will stop an attack, but not always since sometimes they go on for three hours or more. There are a lot of seemingly unusual situations here. I wonder how much triptan you are taking in (the nasal spray is usually zolmitriptan, not sumatriptan). One thing you can/should do is get less than 6mg with your injections. One way to do that is here: https://clusterbusters.org/forums/topic/2446-extending-imitrex/. Another way is to get a prescription for vials and syringes so you can measure your own doses. For most people, 2mg is enough; practically no one needs more than 3. Many of us here have had physicians brush off symptoms that they don't understand. What you are describing seems serious enough to me that a second opinion seems important. Do you have access to a headache center? They will have seen practically any kind of triptan reaction, I would think, since triptans are prescribed for many "headache" conditions.
    1 point
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