So I heard back from Prof. Arnold Wilkins at the University of Essex and this is what he had to say about his research into the glasses.
Thank you for your letter, which I was very pleased to receive.
I now have two out of two patients whose cluster headaches have remitted with precision tints. The tints were both provided by the Intuitive Colorimeter, but they were not the same. The second patient’s tints did not absorb short wavelength light. This leads me to suppose that the critical feature is that the tint increases visual comfort, and that the Colorimeter is a good way of selecting the tint.
I would be extremely interested in setting up a trial, perhaps in collaboration with your organisation and a medical advisor.
The Intuitive Colorimeter is widely available among optometrists in the UK but there are few individuals with the machine in the USA. I am currently getting together a list of US practitioners who have the machine and might be interested in being involved in a study.
A few points about funding such a study. The firm that make the Colorimeter and tints have offered 10 free pairs of the lenses in the first instance. So far, practitioners have offered their time for the assessment without charge, but it would be nice to avoid taking advantage of their goodwill.
As I am sure your will be aware, 2/2 patients without cluster is a good ratio. I have hope that we just might have stumbled upon a really useful non-invasive treatment.
I will write again when I have a list of US practitioners. In the meantime, if any of your members live near Ottawa and wish to try precision tints then I would recommend that they get in touch with Karen Monet of Opticalm (https://www.opticalm.ca/)
Best wishes
Arnold
Arnold Wilkins
Emeritus Professor
University of Essex
UK