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Hey Spiny, When I logged back in, I was overwhelmed with the response!! The amount of support and information that has been provided is tremendous and I'm grateful to have found this community! I'm looking forward to sharing information and, hopefully, becoming a contributing member to this topic. Charles

I share the same view / prejudice as Spiny.

For CH, I think that this is the best place to be for support and help and new news!!! I might be a little prejudiced though! Hang out. Learn and contribute. We all benefit!

Hey xBoss I never kept a journal, but after reading this post, I believe I will start! It would be nice to have something to refer to when asked my doctors and the such.

Well sue know you come to mention it . Only joking .mine curve down the sides

....it wasn't a choice, but you make a good point about predictability....and overall i "preferred" that part of ECH to CCH. always interesting to hear other clusterheads opinion on THAT discussion. have gone back and forth myself about which is "betta"...horrific but predictable Episodic or lesser but erratic Chronic.... ...really it's just the same beast in different guise. ya gotta adapt and adjust the strategies learned and the tools collected...

There has been some study of CH symptoms developing after head trauma. One study said "CH patients seem to incur more frequent traumatic head injuries during their lifetimes when compared to migraine controls and the general population." (I can only see the abstract of this one, and it's not clear whether the authors think that these more frequent injuries directly cause the CH.)(https://link.springer.com/article/10.1007/s11916-012-0248-0) This one -- https://jnnp.bmj.com/content/91/6/572 -- is more thorough, and it seems like CH directly following a traumatic head injury can vary somewhat from "classical" CH. I have no idea how you might fit in this picture, and I think you want to treat what you have as "regular" CH would be treated, but I figure it's worth knowing that this study exists.

https://fb.watch/aBcSccvmLp/

Hi, All Adroid users that want to log their attacks, medicine use, therapy sessions, vitamins or MM/LSD use and more, can download now the APP I made to log my own attacks. It is free to download in the PlayStore now. Look for: Register your Journey If you need a new button to log something that isn't listed yet, please request a button here I hope it will help you logging all you would like to remember about your attacks, medicine use and all the other things you don't want to forget. If you download the app, please rate it as well, that would help me a lot for knowing if I need to go on or stop with the development

Greetings

Yea not good bej . Probably thinner than skinny oops spiny

This is something to hope for Jon. The other side of your post that seems scary is the erratic part. I like knowing when I'm going to hell for a stent (don't know exactly why) maybe it's because I'm a bit OCD in that way or maybe it's because I can mentally prepare? I've heard so much about aging out and I'm unsure if I can trust that (not that you are inferring as much. I don't want to give myself false hope as I am somewhat new to CH and received a diagnosis fairly quick with comparison to most (I was a tyrant thinking I would surely die from the hits). I am 42 and started having CH at 38 so as much as I would love to believe that maybe in my 50es I might go into remission I don't want to set myself up if that makes any sense? Anyhow I have been blessed by finding this site and all the amazing people on her so I take that as a win!

...or BOTH. 23 yrs of clockwork regularity here, cycles and hit times...then cycles and hits became (thankfully) less and generally erratic for years more. my personal belief, backed by nary a whit of scientific support so wild-ass speculation, that the "aging out" of CH that every one of us has been "promised" (and some achieve) may be due to aging changes in our circadian rhythms...or, more likely, the CONTROLLER of same...the hypothalamus.

https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This is the first iteration of the D3 Regimen. Batch has made some changes and additions, but this will get you started right away. I have been taking this for many years now and for the most part, after the first year, I only have a few hits per year. I do avoid stuff, like Epinephrine given by doctors and dentists and MSG in food. You have had some great responses and have a lot to chew on now. Oh, in so far as long remissions? Yes. I had one for 10 years. I thought I was cured or outgrew them. Oh, soooo wrong.

Remissions are pretty normal for us episodics. I recently skipped two years and then it came back strong and lasted nearly six months. There is really no baseline, CH can vary widely from person to person or year to year. Cycles will vary as well, you can start out slow then they pick up and you are getting hit seven times a day for an hour plus per hit. Mine usually start slow then ramp up and then go down during the whole cycle. Try to keep tabs on it all with a journal so you can get a better understanding of how it all plays out. GL warrior!