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....for me when episodic they all started that way...i suppose it's better than BAM... and you are in a cycle. ...get yur ducks in a row. ...OXYGEN? energy drinks? if used: prevent scripts updated? triptan scripts? busting supplies? headache specialist appt/call in? D3 regimen?

More than a few people have been successful. I don't know how many are chronic. It is a rough go, though, because "headache" conditions generally aren't included as a disability category. I think in most of the successful cases there was an original denial of the claim followed by at least one appeal. The "good" part is that you don't pay the lawyer unless you win (except for fees for making copies, etc.), but that's also potentially a "bad" part, in that the attorney doesn't have a strong incentive to work on a case that's got a low chance of success. I remember a couple of people saying that it was better working with a local lawyer than with a lawyer from one of the big national disability firms. And I remember someone saying that unless you have a gigantic file of doctor visits and medications tried, you probably shouldn't bother. You can put the word disability in the search bar (top right of every page), or some other relevant search term, and see quite a bit for yourself.

Yeah, I’m episodic and mine always start off sort of low key. They usually ramp up in frequency and amplitude until I’m going full tilt, 4-6 hits a night at peak. Although I’m not as clockwork regular as some. I’ve even had a few low level hits and then not gone into cycle. Like a miss or something. But usually when I start feeling pain on my right side, I get my stuff ready to rock. Better safe than sorry. I got caught out of oxygen once when a cycle started going, thinking maybe I’d miss, and I paid the Piper. One time of that was enough, I’m not doing a repeat of that debacle. So I concur with the seasoned veterans above. Time to get your stuff sorted. Better safe than sorry, and all that.

I must agree with the esteemed previous responders. My cycles do ramp up starting with more shadow level "warning shots across the brow" (a term I believe I am guilty of coining, although it doesn't exactly fit in my particular case, since I feel it behind the eye). So yeah I'd be moving right now on getting all those ducks in a row, and even backup ducks in a row. The stuff @BoscoPiko and @jon019 mentioned. Plus you've probably noticed a whole lotta headbangers have successfully prevented cycles with busting, as seen at the blue "New Users - Please Read Here First" banner/link at the top of this page.

Hi Mr. Jaques, A lot of people with CH get what is referred to on here as shadows (mild but bothersome pain/headache) prior to an onset and some like myself shadow on a daily basis. Also is the headache on the same side that you had your last CH? It's hard to say if your remission is ending or if you just have some odd headache. Just incase you are going back in you might want to consider loading up on the D3 and co-factors if you do not take them on a normal basis you can find the loading instructions and list of supplements by poking around this forum. When you were diagnosed, did your PCP put you on any preventative meds or have you just been lucky and had the CH take a hike for four years? I hope you just have a strange headache!

Bohm great job buddy. Sounds interesting. I'm willing to jump down any rabbit hole if it help people myself included . I'm guessing it would be a good idea to get in touch with Bob or dome1 on the board