Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 02/16/2022 in all areas

  1. You are right, Shaun', and your advice is right. And at the same time . . . this doctor seems to know that charles' has CH, and, as Pebbles' keeps reminding us, virtually all doctors have an online or hardcopy resource that tells them what the evidence-based prescription should be. Oxygen will be listed right there, in uncomplicated terms, as the #1 or 1a abortive, along with sumatriptan/zolmitriptan (and amitriptyline probably won't be mentioned at all), so Pebbles' is also right that not prescribing oxygen is pretty darn close to inexcusable.
    2 points
  2. I'd go see a headache specialist. Not a lot of doctors understand CH let alone understand how to treat it
    2 points
  3. I am in CA and had to jump through hoops to even see more than a general provider. When I finally was able to see a neurologist it was one of the first things that he suggested to abort and the verapamil as a prevent. I think like Shaun suggested you may want to find a headache specialist as they may be more willing to give you the O2.
    1 point
  4. I'm in UK took me over 20 years to get o2 . You really need to see a headache specialist. Doctors no good !!!!!!!
    1 point
  5. Hey all! Thank you for all the responses that have come through regarding my use of Amitriptyline! As of this writing (2/16/22 at 1520hrs) I am still cluster free. *four fingers crossed* Prior to taking the AMI, I was averaging 2-3 a day and that was on the upswing of my cycle. I'm still using the 25mg each night before bed and I've yet to have another morning like I had after the first time taking the 150mg. After researching some, I agree that 150mg seems exceedingly high for a first time user!! But hey.... memory lose to go CH free?... I think most would take that ... Overall, I will continue to monitor occurrences and keep you all abreast of any changes! On another note: So many of you have stated that oxygen should be given out, hands down!... But I keep coming across other posts saying that oxygen is difficult to get in the USA for some reason. Those with CH throughout Europe seems to have no problem at all getting oxy. Why is USA docs not prescribing oxy? Charles
    1 point
  6. Hang in there. Getting correct dx is good start. I think there's a lot if anxiety w chas. Takes time to figure all this out, as well as what works individually. So - just hang in there. Sue
    1 point
  7. Not too bad at all. My worst is about 7 hits a day but there are people that have 14 or more.
    1 point
×
×
  • Create New...