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  1. (Part 2) Here's an overview that might help you. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ Since you're in a pinch right now, be sure to look at the part with the bold heading "Treatments" without O2 . . . Too much Imitrex is bad for you, and it can cause your attacks to get worse or your cycle to get longer. One way to use less is to split your injections. 2mg is enough for most people, but the injector holds 6mg. Here's some guidance (scroll down 'til you see the videos): https://clusterbusters.org/forums/topic/2446-extending-imitrex/
    3 points
  2. Annett, triptans are both a blessing and a curse, they work great but cause rebound headaches. I would suggest trying to figure out something else to controll the headaches and only use triptans for emergencies. I know this is easier said than done, I have been suffering with these for the last 40 plus years.
    3 points
  3. Long story short. I have been more or less PF for 10 years using psychedelics and Batch regimen (Vitamin D anti-inflammatory regimen). I was severe chronic before this so for me this was a working combination. In 2020 I became a father. I work as an Expert by Experience in my country, this means I speak publicly about how I got better including treatments I use. Due to psychedelics being illegal in my country there was a child welfare notification made. I agreed to go by the laws and rules and not to use psychedelics in the same house with my son. So I had to rely on Batch regimen alone. I was scared. Eventually Horton (cluster) woke up from the long forced remission and I adjusted Batch regimen dosing accordingly. At some point my neurologist had to consult an endocrinologist due to my S-D-25 (Vitamin D 25(OH)D) being so high. Endocrinologist freaked and told me and the neurologist that I have to stop using Vitamin D immediately. I was diagnosed with hypervitaminosis D and additional blood tests were ordered to see if there is toxicity or organ damage. I stopped and was more scared due to shadowing already present after stopping Vitamin M/L. Then all hell broke loose. You know what that is. I had to use oxygen again and triptans in emergencies - they started to increase frequency right away. Daily Horton robbed me from my ability to function and live life, I had to cancel whole week of work. After 10 years I started being self destructive again. I called the neurology department. Arguing with the staff and the nurses. I had to tell them I can't do this. Really can't. I feel sorry for my neurologist, an excellent doctor and great human being. I am on Batch regimen again - currently PF after loading doses. My S-D-25 (Vitamin D 25(OH)D) is very high but other blood tests came back normal. But I am doing things I am advised not to do. Next step is choosing psychedelics - again and moving away from my son to my own apartment because the law says so. As treatment I was microdosing but it's not possible to explain it to any one of the officials - how this treatment may or may not affect my fathering capabilities. I certainly could shed some light on it, being an alcoholic now sober for 8th year. But is is what it is. I'm scared but I will survive. I always have, we always have and we will. You guys are heroes living and surviving with this. You got this ! PF WISHES
    2 points
  4. I am getting the very frustrating "Internal Server Error," so I'm hoping that breaking my message into two parts will help. You could set up an oxygen system using welding oxygen pretty quickly. Maybe check with your doctor's office and see whether she is willing to give you a prescription for medical oxygen (which should have been done in the first place). If not, get started on a welding O2-based system while you look for a better doctor. Start the D3 regimen. It helps some people quickly. Not all people or even most people, but you never know, and you want to start it for the future in any event.
    2 points
  5. Here's a kind of overview of CH treatments: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ There's some additional information in the reply posts in that thread.
    2 points
  6. What FunPiko said. Or was it BoscoTimes? Anyway, those two individuals dispensed the big, solid, and for so many if us life altering clues which could make all the difference in your search for something that will work. I'll just drill down into a bit more of the detail realm: What form of Sumatriptan are you using? If it's 6 mg injections, that's an overdose, but the good news is that since you only need 2 mg you can triple your supply with the imitrex tip - extending imitrex. Here's hoping the new neurologist may be a headache specialist, since that is the type typically in the know.
    2 points
  7. You should also look into the D3 regimen it really has helped me (has not stopped them but tampered down the intensity big time). There are more options than the triptans which in the past have drawn my cycle out longer than normal. You may also want to have a peak at the blue ribbon at the top of the forum ("new users read here") as that is an option that works well for many I am told.
    2 points
  8. What other medications are you taking? How else do you manage your clusters? You want to look into getting oxygen now it will change and save your life. You can abort a cluster in as little as 5 minutes with the correct setup
    2 points
  9. OXYGEN. Read all about it here and get it as soon as you can.
    1 point
  10. Hi Gail, so sorry to hear of the evil switcheroo that has been pulled on you with the unexpected O2 fails. I realize you've participated here in the past and you know about the two most popular non pharmaceutical approaches: D3 regimen and busting, so I'm at a bit of a loss for any good new ideas. I suppose you've tried caffeine or energy shots with the O2 to give the abort that much better of a chance. Then you mentioned the seasonal change, and you're probably aware that an antihistamine such as benadryl or quercetin is known to be recommended as an adjunct to the D3. There has been a mini trend that finds some respected CH'ers using DMT for aborts with 100% success rate, but it seems to be hard to source, and not exactly all that simple to extract either (plus it is one of those illegal psychedelics, although an extremely short lived, short trip one). I don't have a recollection of whether those PH affecting grapes and oranges have ever been discussed as having any effect on CH prone-ness. Personally I'd be skeptical that they'd be the culprits, but maybe we'll see if anyone is interested in discussing that.
    1 point
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