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I had COVID at the end of May, and about 1-2 weeks after shaking it, my current cluster cycle started. And I'm still trying to break out of this cycle. They normally only last about a month with me. Over 2.5 months now, and still going strong. No issues after any of my three vaccines.

I would be interested to know what this PCP believes is effective for CH????

Wow, that is one terrifically misinformed PCP - what a nightmare.

23 years later and I am still self diagnosed. These jokers have no way to tell except to listen to the patients words.

what the hell....that's the first time i hear such nonsense. either you take it upon you to educate him, jon019 provided links, or you get yourself a more knowledgeable and up to speed doc. take care!

Thank you for the reply and yea I have read enough posts on here to somewhat conclude that COVID somehow (either by depleting the system or just beating the body up) seems to open the door to CH.

I had COVID in June long after the initial vax (J&J) and booster (which I got in the first round last Fall). Since getting COVID I’ve had a bunch of weird immune response issues, one of which is CH. My take on it based on my experience is that it was COVID that really screwed things up because I had no issues with the vax whatsoever. Either way, here I am fighting this monster again. Thanks for the well wishes. May we all be pain free forever!