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I'll chime in with a ditto on the need for a neurologist (preferably one who's also a headache specialist) and an MRI!! The thing that stood out to me in your last comment is the length of your 3.5 hour attack last night!! Ima go out on a limb here and assume that you're not using high flow O2 to abort your attacks??? I've experienced those long assed hits before I found out about O2 so I would urge you to push for a script when you get in to see a neuro doc!! Dallas Denny

There is a fairly thorough discussion of oxygen in this post: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/. It includes advice about how to get it and how to use it, and also some potentially useful discussion of a conversation you should have with your oxygen supply company as soon as the prescription is sent to them.

Yes, this is how so many of us have reported it is effective (and often the only way it is effective) - you wanna catch the attack near onset.

Definitely should not be an issue with a cannula. Glare.......................... Any decent Neuro will order an MRI to check for 'other' stuff going on. That makes it important to get in quickly. This may have been a 'one of' situation, but perhaps not. The times that I blacked out on O2, it was when I did not feel the need to breathe. Meaning that I was O2 saturated and my body wanted some CO2 at that point in time. I just nodded off with my head against the tank. Some have blacked out from the pain in my reading, but few and seldom. How I would love that at times!!! But nope.

@Dallas Denny, thanks for the input. I think I’ll request it this time, it’s been a few years since I’ve had these long attacks and whenever I’ve tried O2 before it hasn’t really done anything for the pain. However, I’ve never used as a preventative measure in the build up/onset so could well help stop the attack in its tracks. Yes, the neuro I want to book in with most does specialize in both headaches and seizures but hasn’t returned my calls when I’ve left voicemails (strange that they don’t answer their phone). I’m going to drive there on Monday to schedule in person.

I’m sure it’s terrible in its own way, but I know what you mean! Lol. Woke up with an attack last night from 1:30-5:00am, got a couple of hrs sleep and then another small one from 7:30-8:30. I’ve reached out to several neurologists now so hopefully I’ll get an appointment soon. I’ll post updates as I get them.

Wow, thanks, @CHfather! Looks very thorough so will dive into it when I get home. Definitely want to be prepared before seeing the neuro so thanks for sharing.

Thanks @Shaun brearley, I appreciate you sharing about the vomiting.

Congratulations, Bob Wold! There was never a more deserving recipient of the National Headache Foundation Advocate award.