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Showing content with the highest reputation on 12/17/2022 in all areas

  1. Think their will be a lot of tears on Tuesday @Bejeeberbest Xmas present anyone can give my family and I,
    4 points
  2. YES YES YES . She's coming home on Tuesday permanently , and walking with just a stick
    4 points
  3. Since we're talking D3 here, you might want to consider the anti-inflammatory "full monty" that Batch has recommended in critical situations: QUOTING HERE FROM A POST BY BATCH: "The Antihistamine Full Monty is a collection of supplements with antihistamine properties that include 3 grams/day each of Turmeric (Curcumin), Resveratrol, Quercetin and Omega-3 fatty acids. It also includes 200 mcg/day Selenium, 8 grams/day vitamin C and 10 mg/day Melatonin taken at bed time. I buy the bulk powdered vitamin C in 1 Kg bags and stir 2 level teaspoon measures in 8 ounces of water and take sips all day until it's gone by bedtime. This is the least expensive form of vitamin C and dosing throughout the day is best as our kidneys filter vitamin C rapidly. I realize this is a boatload of pills to take, but the Full Monty is proving to be very effective in achieving a CH pain free response. Most CHers respond to the Antihistamine Full Monty during the first week. When you've experienced a sustained CH pain free response for at least a week, you can lower the dose of the first four supplements to 2 grams/day. I'd stay at that dose for at least two weeks then taper the dose down to 1 gram a day. You can skip the selenium and melatonin at that point, but I'd still take at least 4 grams/day vitamin C as it's so important for good health." Back to me: Red eyes are definitely a possible Covid symptom. You can just google [covid red eye] and see plenty of reports about that. And severe headaches are also a common Covid symptom. So it could be that that is what this is all about (fingers crossed). I'd be careful about increasing your verapamil, for three reasons (these are not hugely strong reasons, so you might decide to do it anyway, but maybe they are worth considering). (1) it's generally not considered a good idea to increase verap dosage without a doctor's involvement; (2) while that level might not, or even probably wouldn't, affect busting, the lower the better just for better assurance of full busting results; (3) as with point (1), it's my general understanding that it might not be wise to go up a notch on verap dosage and then go down when the crisis has passed. Could you do a SPUT (small piece under the tongue) if you get hit, or even as a possible preventive? It's my understanding that one SPUT, just a pinch of MM, can stop or reduce an attack but won't interfere with an upcoming bust. That could also be a chance you don't want to take, so I'm just throwing it out.
    3 points
  4. GOBSMACKED in ALL CAPS, bold font, and underlined!! Both of those 'home permanently' and 'walking with just a stick' are such mind blowers at this point - I may have to pause here before I tear up, knowing this has to by far be the greatest holiday development ever!!
    3 points
  5. I think you should cease drinking shots of Red Eye whiskey immediately, because alcohol is a trigger. Sorry, you were talking about a literal red eye. All I can say is I get the 'watery eye' without the pain on semi-regular occasions, and I interpret it as low level CH that hasn't gone full cluster bunny (I also get a version that is accompanied by low level pain sometimes when shadowy).
    2 points
  6. Hey Kat, I've had COVID and the Flu bug. COVID was more mild for me than this recent flu which did cause me to start spiking out. I had thought that I was increasing my D3 but made the mistake of pulling from the wrong bottle. Once I "actually" increased my D they stopped. I would definitely suggest an increase like @Bejeeber mentioned and since you are sick I would up my zinc and C. Hope you get better soon!!
    2 points
  7. It sounds like maybe you don't have actual covid symptoms (yet anyway)? I'm just kind of flapping gums to here to keep this topic top-of-list, as there are folks here who are definitely better qualified to respond, but meantime I can imagine the covid kicking up CH symptoms, much like allergies, etc. are reputed to, and I believe I've seen talk of upping the D3 in response in such circumstances.
    2 points
  8. Could be just that your CH is aggravated by being sick especially if its the eye on your CH side but other than that I'm not sure. I suppose it could be a symptom of COVID. I read something that said 1% - 3% of people with COVID can develop conjunctivitis?
    1 point
  9. @Shaun brearleyYes I used Red Bull on holiday as I had no oxygen, I was desperate to try anything! My O2 set up is set to 15 with non rebreathable mask and that’s a god save!
    1 point
  10. @Dawn FrenchHave you tried an energy shot b4 hitting the 02 as it really helps , and what's your o2 set up . Non rebreathable mask 15 lpm flow rate minimum
    1 point
  11. Good so only using triptan when really needed , as it will bring on rebound attacks and prolong your cycle . Don't get me wrong they saved my life a few times but also made my cycles last a lot longer
    1 point
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