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Showing content with the highest reputation on 02/05/2023 in all areas

  1. Cluster Mask from clusterheadaches.com. HERE I'm sure DJ will ship anywhere but the cost will be increased to cover it. This is the best mask out there that I know of.
    3 points
  2. That sucks about the mattress. I'm hoping that with your 'Abby Doo comes first' that she recovers quicker than anticipated too!! Hmmm, another 6-7 weeks. Order one of those beds in a box delivered. The kind you can 'use for a year and return if you don't love it'!!
    2 points
  3. I'm sorry . . . I don't have anything more to suggest. If the liometacen/indomethacin is actually working, then it's possible (I imagine) that you might have a condition that has symptoms like cluster headache but is not the same, called a hemicrania. There are several types of that condition, most commonly hemicrania continua and paroxysmal hemicrania, and they can be either episodic or chronic. https://my.clevelandclinic.org/health/diseases/21538-hemicrania-continua#:~:text=Hemicrania continua and paroxysmal hemicrania both affect one side of,hemicrania causes repeated%2C sudden headaches. People with hemicranias generally do not get results from triptans, as it seems you don't, and they also generally do not get results from oxygen, which seems like it might also be true for you. They do get results from indomethacin, but it is administered in the form of a pill every day (multiple times a day) as a way to prevent attacks, and not, as you are using it, as an injection to stop an attack. Maybe you have also tried this. Usually the daily pills are taken with something to protect the stomach lining and digestive system. (I see you were here some years ago asking about busting. If that also didn't work for you, it would be a further indicator that you might have a hemicrania, since generally busting has little effect on hemicranias.) We can hope that when your O2 system is sorted out, you will start getting results from that and things will be much better. But, if you haven't done it already, I would look into the possibility of a hemicrania treated with indomethacin. Like I say, I'm very sorry for what you are experiencing, and very sorry that I haven't been able to be more helpful to you.
    2 points
  4. ....the only thing i can add here is how CRITICAL it is to start oxygen at the FIRST sign of a hit. for me there was a very small window.... and if i missed it NO amount of O2 was gonna work. if you've ever had a cat that would suddenly and seemingly for no reason go tearing out of a room...that was me. it amused my colleagues.... ...there are various breathing techniques and different ones work for different folks. most successful reported to be hyperventilation...can/should be started on way to tank. slow,deep breathing in/out worked best for me, added benefit of being calming, breathe and hold another. try them all, try a combo...all the motivation i needed to find the "right" one was provided by CH itself........
    2 points
  5. You want a non-rebreather mask (sometimes called a non-rebreathing mask), not a rebreather mask or a partial rebreather mask. I don't know what the visible differences are. I am pretty sure that a rebreather has two sets of completely open holes in the mask (circles of small holes), while a non-rebreather will have a gasket, usually white, behind at least one of those circles of holes.
    1 point
  6. With a non-rebreather mask, you are only inhaling pure O2. That's what's in the bag, pure O2. If it was a rebreather mask, you'd be getting some CO2. They both have bags, but the design of the rebreather allows some of your exhaled air, with CO2, into the bag, whereas the design of the non-rebreather mask keeps your exhaled air out of the bag so no CO2 gets mixed in.
    1 point
  7. did you prescribe this liometacen to yourself, or did your doctor prescribe it? it is basically a drug we know of here, called indomethacin. it is very unlikely to help with your CH, and it is probably causing pain in your gut, too. could tell you a long story about how we know this, but take my word for it. i have no idea what the story is in egypt, but of course there are many countries where you can get drugs without a prescription that can only be obtained with a prescription in some other countries. i am not prescribing anything here, only telling you what we know about what works and what doesn't. the medicine that will stop CH attacks is injectable sumatriptan (called Imitrex in the US and Imigran in some other countries), or sometimes a nasal spray of zolmitriptan (Zomig). you have to be careful with these, but they will stop attacks. "painkillers" won't stop attacks, no matter how strong they are. Imitrex and Zomig are standard prescriptions for CH. if a doctor is prescribing for you, he or she should know that. the pill form of sumatriptan, or zolmitriptan, or any triptan, is not very helpful, because it takes too long to work, but it might help you, particularly if your attacks occur at regular times so you can take a pill in advance. the standard medicine to prevent CH attacks is verapamil. most people here strongly prefer the vitamin d3 regimen, but you don't seem sold on that. verapamil should be prescribed by a doctor and used at first under a doctor's supervision to be sure it doesn't damage your heart. many people get some relief from taking a steroid, such as prednisone. it is taken in a "taper," with a high dose at first and then lower doses over a period of roughly a couple of weeks. again, a doctor should know about this, and it doesn't usually end a CH cycle, but gives a few days of relief.
    1 point
  8. Boy, a 3' dog can take up 6' feet without even stretching!! And they do claim the whole bed too by going sideways! Hubby's dog used to holler to go out in the snow to pee at night. He would get up, open the door, walk across the porch to open that door and find the dog gone! Back in his bed, in the middle and growling when he tried to get back in it himself!! At was a game to the dog. It was worse if he actually went out, because he did the same thing, but with snowy feet and tummy. Nice cold wet bed then! Buy an air mattress maybe? Those rocks are miserable!! How long will this need to continue?
    1 point
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