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Showing content with the highest reputation on 02/19/2023 in Posts

  1. Pressure in the tank is less so it won't flow as much no matter what the regulator setting.
    3 points
  2. For me when I get migraines everyday sometime between 1 and 2 weeks I will get a hit with clusters. I have never had a cluster attack with out having migraines first. When I have clusters they are on top of my migraine so after the hit the migraine is still there between the hits. I know the end is coming when the cluster changes sides and is way more intense for usually one long hit that last any where from 1.5 hours to the longest being 3 hours. This ends both the migraines and the clusters for a while. It totally wipes me out mentally.
    2 points
  3. That would be a "normal night" for me when in cycle. Sleep is a big trigger for me so I don't look at as "rebounds"....more like it's just the next one coming. Try staying on the O2 a little longer after the abort. Some report good results doing that. Worth a try.
    2 points
  4. It seems that a hit an hour or two later is considered a 'rebound' by many when it is actually another hit in my mind. For me, a rebound occurs right away if I don't do some post breathing. We need to also consider that CH changes and our number of daily hits can change over time too. My hits come 15 minutes apart all night if not treated. So, an hour or two P.F. is pretty heavenly. And that is only gained if I sleep in the recliner, not the bed. Prone is BAD! An M60 tank will last about 28 hours at 1LPM which equals 1680 usable liters in the tank. I think that we may have been told a bit under the full 28 hour mark when the COPD set-up came into the house for my father-in-law. So, you need to plug in what your flow rate was and for how long. At 15LPM the whole time, you will get almost 2 hours from that M tank I think. So, the easy way is to write down how long you ran at X flow and how long at Y flow, then subtract that out. I ran 5 minutes at 15LPM and 5 at 2LPM., so I used 75 + 10 = 85 liters used. That leaves 1515 liters left. The less O2 that remains in the tank, the lower the actual pressure coming out goes. I can crank it to 20LPM and be getting only 5LPM as the volume drops. Less internal pressure = less pressure to the regulator and less coming out of it. It does not work out perfectly as the tanks come in pressurized at 2200PSI-2500PSI, but it gives you an idea of how to calculate it out. I think my personal worst was a M tank lasted 24 hours.
    1 point
  5. I will be interested in your results too Kat. I have a relative suffering from the same thing. It is annoying when doing fine work for sure!
    1 point
  6. From my experience i noted that after about 4 times O2 in say 2 hours, 25L/m for 5-10m, it becomes ineffective and have to use a sumatriptan to abort. Staying longer on the O2 after the attack was aborted, did not make a difference for me, as the daily cycle continued. I do not see that as a rebound, more your personal cycle of the beast showing its ugly face
    1 point
  7. I just bought some lions mane supplements on Amazon. They are meant for memory and nerve support. I’ll give ‘em a whirl and report back
    1 point
  8. Makes perfect sense, although I must admit there have been a few times I've tried cranking it hoping for a last bit of high flow to no avail. On the flip side I have kept it lower hoping to conserve if on my last tank, neither method ever helped. I do try not to let myself get into a tankless predicament but have been guilty a time or two... Guess that's where the "live and learn" saying comes from
    1 point
  9. ...only a few cycles with the 1 hr wake ups for me..(O2 always worked better than day time hits!). never could figure what was different to cause this oddity ("normally" 3 daily hits) except sleep being a frequent trigger for most clusterheads (no blissful in cycle naps for 30 yrs for me)....and triggers can be transient. ...have you tried staying on O2 post abort for as long as it took to abort.. ...since CH is likely a wonky hypothalamus...which also controls sleep...a connection to CH is not surprising, and more than a few have found improvement of CH with sleep apnea treatment. worth a doc consult....it never occurred to me at the time...
    1 point
  10. Yes, I have essential tremors. It's mild, affecting my right hand when I try to do things requiring dexterity. They don't happen when I'm at rest. Caffeine is an amplifier for mine. Same for my mom also has CH and tremors. Hers are worse than mine though. They got worse with age. Neither of us take meds for them.
    1 point
  11. Congratulations with relief from all headaches. I’m not an expert, but smoking depletes several nutrients in the body. It’s just as easy to dismiss a correlation of smoking and CH, as it is to acknowledge a casual inference. The underlying causes of most headaches are complex. In my case, hypnosis, NLP, ketogenic diet, a naturopathic doctor, and an integrative care team provided much relief. Sometimes my sparing partner is my release (Krav Maga and Catch Qrestling). One of my contributors was myofascial pain, which causes muscle knots (read properly). Trigger point injections in the muscles around the neck prevents a few types of headaches that I have. A posture corrective brace and neuromuscular stimulation prescription unit, prevents knot development. Having the conditions is inspiring me to return to college-at mid-life-and complete degrees in biomedical science, with minors in neuropsychology and neurobiology. I plan on following up with a masters in nutritional biochemistry. For now, I may be able to assist with hypnosis and NLP, as I am supposed to complete training as an NLP Practitioner in June. And, I should be completing my rapid behavioral profiling and hypnosis training by next year. I’ll check back in time. Resolutions to CH exist, just not in traditional medicine. When things are about to go South, I have dry needling done. I am waiting to try hyperbaric oxygen. While preposterous to most, I swear by ice baths and standing barefoot outside in just my trunks, when ten below outside. I avoid warm or hot showers, and I use tactical breathing techniques throughout my day. I’m slowly integrating meditation into my daily routine. Best of luck to all. Be well.
    1 point
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