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I don't think I've seen any mention of sleeping outside helping but everyone's CH can be a bit different. It seems plausible that it might help with your circadian rhythm though.

@BoscoPiko Thank you - I guess Im trying to figure out if it's placebo or not.

Two days ago I micro-dosed psilocybin based on reading on this forum and some other research my partner did. First day it took my level 7 head pain that was ramping up in the morning and took it down to a level 1-2. Slept outside that night in the tent (for circadian rhythm balance / exposure) and had no attack. Did that again yesterday with a smaller dose. Head pain level 0-1 and then slept outside again, and took a night time walk both nights to watch the sunset, and again no night attack. This morning work up 0-1 pain. My hunger came back the first night of mico-dosing. Slight but there. It feels like my body is starting to return to me. I can't even believe it.

Hi BM, That's frustrating but most likely they would not have provided you with the proper mask anyhow. You can order one on this site by going here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit or on line just make sure it's a non re-breather mask. Be careful with the triptans, they are know to extend cycles as well and cause rebound attacks. And just because it's helpful, here is a video to help you with breathing techniques.

Mr. Steve Keschinger will be co-MC at Clusterbusters 18th Annual U.S. Patient Conference. Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUSteve was born and raised in New York and after working for the railroad for 27 years is enjoying his retirement living in South Carolina for the last 8 years. Steve has been married to his very supportive wife, Heather, for 40 years and they are the proud parents of two sons and grandparents of twin girls. He is a diehard NY Yankees fan along with the NY Rangers and NY Giants.Steve has had chronic cluster headaches for many years, after consulting many Doctors and neurologists and being on a harsh treatment plan and pharmaceutical merry go round, he discovered Clusterbusters, where he describes his connection as “meeting the most amazing, caring and understanding people I have ever known in my life. Clusterbusters members are my Family!”Steve has attended 3 Headache on the Hill events and this will be his 10th conference. He is proud and honored to be co-MC for this year's conference.

This is not "news," really. It's a ten-plus year-old report. But I hadn't seen it or had forgotten about it, and it's relevant to discussions that take place here: Objectives.—To document the relationship between the use of subcutaneous (SQ) sumatriptan (sum) and a change in frequency pattern of cluster headache (CH) in six patients. To discuss the clinical and pathophysiological implications of this observation in the context of available literature. Background.—Treatment with SQ sum may cause an increase in attack frequency of CH but data from literature are scant and controversial. Methods.—Six CH sum-naïve patients (three episodic and three chronic according to the International Headache Society (IHS) criteria) are described. Results.—All six patients had very fast relief from pain and accompanying symptoms from the drug but they developed an increase in attack frequency soon after using SQ sum. In all patients, the CH returned to its usual frequency within a few days after SQ sum was withdrawn or replaced with other drugs. Five patients were not taking any prophylactic treatment and SQ sum was the only drug prescribed to treat their headache. Conclusions.—Physicians should recognize the possibility that treatment of CH with SQ sum may be associated with an increased frequency of headache attacks. http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4610.2004.04132.x/abstract

Sumatriptan caused me to have 51 attacks in 7 days. I have stopped taking it and do not plan on taking it again. It seemed to make the pain worse too. IÂ’m still having a couple a week. Somewhat keeping them at bay with verapamil. Physicians will continue to prescribe it because they are making money on it, kickbacks from pharmaceutical companies and dinners at nice restaurants. They do not care about the patience and it is all about the $$. This goes for profit, not for profit and county health care providers. All of them make a lot of money! This is why my neurologist will not prescribe me O2. I have been asking for it seven years! IÂ’m getting a welding tank. I worked in healthcare for 7 years at the corporate level at saw this first hand at a not for profit and at a county hospital.

1 week later update: I received an occipital nerve block which contained lidocaine and dexamethasone (corticosteroid) from the pain management neurologist team at Stanford. The block offered me two full days of relief. Headaches came back on day 3 at my regular pain levels and frequency , they said it could take up to 7 days for the steroids to fully "kick in", but I'm not too hopeful at this point.