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Showing content with the highest reputation on 12/28/2023 in all areas

  1. To connect with others who understand your experience with cluster headache, check out our virtual support groups and one-on-one support. https://clusterbusters.org/support-groups/ Please consider supporting this and other programs with a one time or recurring donation. https://conta.cc/43RhF1N
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  2. Merry Christmas to all of you sufferers and all of our supporters! You all are appreciated beyond words. This site, the folks on here and those behind the scenes that support us are nothing less than a God send. The words, the compassion, the support, the empathy and the gift of companionship will always be a gift that thanks will never be addaquate enough for. Merry Christmas to you all!
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  3. LP3, only those of us in this hell can understand your rage and feelings of hopelessness. But DO NOT give in to those feelings. You did well to vent to your brothers and sisters on here. We all get it. I dosed this morning at 4 am and then stood in the kitchen about an hour ago and wept as a KIP 8/9 hit me again. I was devastated. I could hear laughter and happiness in the next room as family celebrated-just as it should be. . The beast had once again reared its ugly head on one of the holiest times of the year for our family. I hate being made the center of attention when the beast interrupts everyone’s life - not just mine. No one complains because they understand-as much as they can anyway AND because they love me After the entire family prayed for me I was humiliated by once again being the center of attention. I was grateful for the love but once again I had been crushed by the beast. However, I somehow found the strength to get back into the fight So I open the forums and your post is the first one I see. Surprisingly I wasn’t discouraged by it but my first thought was LP3 needs us. Of course, so many had responded that very day to you with kindness and understanding that only a fellow cluster head can have. it dawned on me that is what keeps us all going in those dark moments: the fact that we’re not alone, that someone somewhere needs to hear that someone else understands, and that there is no way in hell we will let each other down. thank you for your post and I hope you had a wonderful holiday weekend-despite the beast.
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  4. All kind words. Thanks to everyone for Letting me rage. Luvs to all fuck the beast. Sorry if I made anyone upset this group has saved my life more than once.
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  5. The simple fact of the matter is that this is a non repairable disease that us ch will have til the day we die. No one really knows what causes it (if you reply back hypothalamus i will scream) and that all prescribed drugs are psuedo science placebos. Oxygen is not a cure. Lsd Mushrooms etc are a distraction and that we have been chosen by god to be sent into the horror chambers of hell. So...fuck god. Doctors, big pharma, psychedelics etc. You have been chosen. It is your and my destiny to live life like this. Once you take this attitude u can respect that this whole life of yours is a joke. Got a rope? There is a reason these headaches are called suicide headaches. Please do not post d3 regiment or other bullshit in response. I have tried them all. And. Nothing. Works. Chronic. Mad. And done with it all.
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