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Showing content with the highest reputation on 02/23/2024 in all areas

  1. +1 for hot shower. Before the diagnose and. Before O2 it was the only relief.
    1 point
  2. I fully promote the hot soak and have aborted 100's of attacks that way. Sometimes 6 times a night like an oxygen user. Edit, big hits never abort that easy though...
    1 point
  3. I will get in the shower, sit on the floor and keep turning up the heat everytime I get accustomed to it, sitting it covers my whole head and shoulders and I get it to nearly blister heat and it can help a lot, never abort but cut the sharp corners off. I know I have read on here others who use hot showers or baths to help them as well.
    1 point
  4. Just an update on this 3 months out. Still going good. Had a 15 day break from any clusters in December, Small hit on Dec 30th lasted maybe 10 minutes with 02. Jan24th was my next hit that lasted maybe 5 minutes on the 02. Not saying this is any type of cure at all but something you may want to look into or ask about. It is a huge improvement for me.
    1 point
  5. 4 weeks out from last treatment and still hanging in. Not complete pain free but now averaging about 7 clusters a week instead of a day, for me that is as close to pain free I have been in years. Question now is do I do a bust to see if it puts me over the edge to total pain free or do I hold out and see how long this last. I am afraid to rock the boat with a bust and have it set me back.
    1 point
  6. So I did the treatment this week, Monday-Wednesday, Each day I was given 2 treatments that took about 6 hours each day. This is the concoction I was given: Day 1 of 3 IV Benadryl 25 mg IV Reglan 5 mg/5 mg IV DHE 0.25/0.5 IV Solumedrol 100 mg IV Mag 2 g Day 2 of 3 IV Benadryl 25 mg IV Reglan 10 mg/10 mg IV DHE 0.5/0.75 IV Solumedrol 100 mg IV Mag 2 g Day 3 of 3 IV Benadryl 25 mg IV Reglan 10 mg/10 mg IV DHE 0.75 mg/1 mg IV Solumedrol 100 mg IV Mag 2 g No clusters from the start of treatment, during treatment and relief lasted 36 hours after the last treatment. I was hit with a very small cluster that I aborted with oxygen in 5 minutes and than another about 2 hours after that. Hope they are just little slap back type and I can keep thigs calm over the weekend. not expecting a cure here just a little break from the head banging.
    1 point
  7. Seems like this DHE treatment finally wore off. Back to daily hits started on the 1st of February and are intensifying each day so far. It was fun wile it lasted, time to get back in the game.
    0 points
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