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Showing content with the highest reputation on 12/30/2024 in all areas

  1. Well, there isn't that, but the core principles are pretty straightforward: > Use the vitamin D3 regimen to prevent cycles or at least lessen the severity of attacks during cycles: https://clusterbusters.org/forums/topic/1308-d3-regimen/ > Yes, there are other preventives that work for some people at the right (usually high) doses, but D3 ought to be enough, and it has no (or far fewer) side effects > To end a cycle and potentially prevent one, busting is a choice that many make (click on "New Users - Please Read Here First" at the top of any page here) > To stop an attack, oxygen is the go-to for most people. (This is discussed, along with a lot of other things, here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/). Many people are finding DMT to be an effective abortive (DMT experiences and advice - Theory & Implementation - ClusterBusters). Triptans in various forms (injected or inhaled) will also stop attacks, but with side effects (see the "basic non-busting information" file above for more on this). > A course of prednisone, if properly prescribed, will typically hold off attacks during a cycle for some amount of time, and can sometimes (rarely, in the experiences that have been described here) end a cycle > There are lots of other strategies that can be used to supplement the above, or make some things more effective (caffeine, for example), and to treat the shadows that some people get. You can read about all that in the linked document from above (https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
    2 points
  2. Oxygen should not be hard to get because you're episodic. A doctor should prescribe it, and (if you're in the US) Medicare would most likely cover the cost. And it is the job of oxygen suppliers to do the part you mention -- bringing it up to your apartment. But even if you go with welding oxygen, unless you have to walk up a lot of steps to get to your apartment, it ain't that hard to lug some decent-sized O2 cylinders once in a while. There are rollers you can put them on, for example, or some decent sized ones fit in a rolling suitcase. If you are using the injectable triptans, be sure to split your doses: https://clusterbusters.org/forums/topic/2446-getting-partial-doses-from-sumatriptan-injectors-imitrex-imigran-etc/
    1 point
  3. Not sure what a "Normal" life is anymore. My new normal is to deal with things one day at a time and adjust. I know I am going to get beat down with a massive cluster at any time of any day so I am always ready to fight back with whatever I can. I keep oxygen in the car at all times, I have it in my office at work keep a triptan injection near by as much as I can and a 5hr energy drink in my pocket. I can no longer drink alcohol so my new norm in a social aspect is water and coffee. I am not shy or hiding my clusters so when someone who does not know what I deal with and comments about not drinking or avoiding some sort of smell I tell them how it is. I can no longer burn a candle, my wife can no longer ware perfumes and depending on how my clusters are on any given day I need to avoid other scented things like cooking dinner. This is my normal life, not great but it is what I have so I embrace it and know things could always be worse. The new normal and I still love it.
    1 point
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