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Showing content with the highest reputation on 06/18/2025 in all areas

  1. Thanks @CHfatherand @Bejeeber. I'm on Day 18 since my first headache post-op and it's definitely a normal cluster episode....ugh! Appreciate your insights, you both are always a wealth of knowledge and support. I was unaware that epinephrine was a trigger but good to know for future.
    2 points
  2. Hi all, I know you probably all know this already, however, aside from these attacks getting me during the onset of REM, I am just curious about the spike in stress levels especially at 12 am. Seems weird. These were the last 2 nights stats. Also whilst melatonin is mentioned to control you from going into REM, there's mixed signals about it from what I have read. It can also send you into the "devils playground". Just fascinating looking at this. My awake times are when I am having the attack. Will continue to monitor.
    1 point
  3. Batch has made this recommendation: I buy the bulk powdered vitamin C in 2 lb jar as shown below and stir two level teaspoon measures (8 grams) in 12 oz of water. I drink a gulp of this solution every two hours throughout the day until it is gone by bedtime. This is the least expensive form of vitamin C at 3 to 4 cents/gram. The liposomal vitamin C costs 8 to 9 cents/gram.
    1 point
  4. I think it's kept up and running mostly for archived information now. Sad to look back over the posts and see names lost to the years.....
    1 point
  5. That's some weird, suspect timing following the implant, but even though epinephrine at the dentist is a notorious trigger for some, the fact that the repercussions would typically be expected more instantly makes it sound like coincidence can't be entirely ruled out(?). Also, as you may be well aware, even following decades of consistent behavior, we can still expect CH to pull a change up on us, and start a cycle in a never-before-experienced fashion, such as a slow ramp up with advil etc. abort-able attacks at first. Hate to think it, but I would be bracing for some possible continued ramping up.
    1 point
  6. Given all the circumstances, it seems very unlikely that this is the issue, but I think it's almost universally true that the anesthetic that dentists typically use, Xylocaine + epinephrine, triggers CH attacks. (It's the epinephrine that does it.) But, among other things, the attacks usually come on more quickly than what you're describing, and of course you've had many previous dental procedures so it seems very likely you would have had the X+e during one of them. I think your next procedure with this oral surgeon won't be for quite a while, but I suppose you could request a different anesthetic just in case.
    1 point
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