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Showing content with the highest reputation on 10/07/2020 in all areas

  1. Update: I got a normal flu shot and it didn't interfere with my CH!
    2 points
  2. Hey ya'll! I'm posting this with BobW's approval......a clusterhead in the Facebook support group has had some designs drawn up and will be printing these shirts herself.....all proceeds over her cost (approximately $11/shirt..slightly less on larger sizes which cost her more) will be donated directly to clusterbusters......orders will only be taken thru Oct 9th and then she'll begin printing and shipping......I ordered 1 size medium and my total cost with shipping was just under $25. DD  https://darvilclothing.com/
    1 point
  3. My wife shattered her back and I mean blew apart t5, fractured all the spinous processes down her back, so she does know chronic pain. Which is helpful. We have come to a bit of an equilibrium, i'll ask for say essential oils on my temple area or she will ask if I want them, it does next to nothing except maybe the scent is slightly calming, but she feels like she helped and I let her. We both know the truth but it gives her some control or input into "helping" she also did a crapload of research and funny thinking now, Lamaze breathing can help during an attack, something she found. She will also get my o2 ready, grab me a pill or ask, I just have to nod or shake my head, gives her a sense of helping, feeling not so helpless. That is one thing she has conveyed to me, how horrible it is to feel helpless to do anything, some of her fear and frustration stems from that. You have to accept she will never truly understand, she will have to simply believe you. Edit I have found meditation, guided, helps in between to stave off those "omg what is the next going to be" Headspace, on any device is a great app.
    1 point
  4. My error it looked like the question was about the article/website info not about your Vagus stretch. I'd say the answer remains the same. Vagal stimulation has been tried and used in migraine and clusters but overall I would say the results are disappointing. A few folks think it helps, even fewer are convinced. Ultimately all nerves can be connected and to be sure the Vagus is a critical pathway but I suspect if manipulation and treatment of that area was truly helpful we would have more positive data by now.
    1 point
  5. mike', I know this wasn't your question, but what are you doing to treat your CH? Maybe if your attacks were more under control it would help your frame of mind at least a little.
    1 point
  6. Ok thanks.. I was thinking like, what if my cycle is over and I eat some.. No evidence for that just being paranoid i guess
    1 point
  7. Not helpful. The principles of craniosacral therapy are sound and have a role. Such adjustments may mitigate parts of the cycle a bit but like other forms of physical medicine the treatment is fleeting and not sustained. Balancing your diaphragms is good for wellness and overall health but our beast is a bitch. (in a gender neutral sort of way)
    1 point
  8. The t shirt lady posted this update today.... "Wanted to give everyone a quick update - so far we have sold 36 shirts! That is $396 to cluster headache research!!! Our store will remain open until 10/9/2020 if you would like to purchase and help out this great cause. Remember a minimum of $11 per shirt sold gets donated to cluster headache research through clusterbusters" DD
    1 point
  9. @Rose W I just messaged the t shirt lady with your questions....she said they are relaxed fit and very true to size Dallas Denny
    1 point
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