Bejeeber

Sorry to hear of this @Snowflake. Of course @Shaun brearley has called attention to a best immediate course of action.

Cluster fingers crossed.

Cycles extending longer than anticipated seems common, and that would include versions where the attacks are milder and fewer/farther between in the extended weeks. There has also been a minor flurry of reports as of late of CH'ers ending a cycle, only to have it then start right back up again for them. Weird that that one has struck a cluster of clusterheads all in a row, but as I more carefully read your report, it sounds like this fortunately will not be the case for you.

Especially going by @BoscoPiko's reaction, not willing to put my money where my mouth is and even give that a single viewing.

I guess I've just personally been clueless and totally missing out - gonna head straight to the garage and rummage behind boxes and stuff in hopes of making up for lost time.

Whoa, newly armed with this info, clearly we all need to get snacking on spiders, stat. Any encounter with a house spider should now be considered a welcome opportunity to consume a nutritious CH relieving morsel!

My current belief on whether nerve block injections would have much likelihood of being a blocker on busting, is no, probably not a blocker. Full disclosure: I'm not exactly well researched on this topic. It did come up previously in this thread that you may find pertinent enough to peruse:

I sure am no diagnostic expert, but the fact that your CH-like attacks do respond to oxygen, you feel them behind the one eye, and they are fast ramping makes them sound to me like yep, some CH really could be mixed in there with the migraines.

Hi @FunTimes, just checking, was that intended as will block, or will not block?

I recall at least one other report from pretty way back in the day of the successful use of continuous low flow oxygen while sleeping (I'm pretty sure it was with a cannula, to avoid suffocation type risks). With your cpap, you have a different, and also interesting thing going on there. I'm tempted to tag @Racer1_NC on this for any observations, since he is what I would consider a genuine O2 guru.

Hi Chrissy, a cycle with unexpected changes in what had previously been consistent, reliable behavior of the attacks, such as the time of day they strike, duration, how many attacks per day, etc., is a phenomenon I've seen reported aplenty, and I've experienced this myself. Just when a pattern has been seemingly cemented into place, stuff will suddenly out of nowhere get all switched up. Long remissions after many years with CH is common enough too. Many get caught off guard when the CH does return following an extended remission, having believed their CH had completely burnt out.

While “planning on” attending doesn’t always thoroughly guarantee it will actually happen, Jeebs (staying true to form and referring to himself in the third person) plans on attending! Psssst....I have to whisper this, but last I heard, Dallas Denny is rumored to be making plans to attend also...!

I think venting when things go badly (in your case, really really badly ) is a good thing to be able to do here. It may be a bit much to hope for, but sometimes, some of us have been known to get a one-off rogue attack, with no new cycle starting up. I'm hoping against hope that this is what could have occurred with you today.

Interesting! The pathology for some of us has been that vigorous exercise (like sprinting) can actually abort an impending attack. I'm a physiology ignoramus, but one thought that pops into my ignoramus mind is since such exercise draws more blood to the heart, lungs, etc. could it be drawing it away from the behind-the-eye sort of spots (inducing vasoconstriction there)? Also, it is very common to get hit hardest during sleep, which I tend to think of as being kind of the opposite of exercise. I will note that others have reported exertion will trigger an attack for them though.

We should all aspire to have such neon green specs of lycra sprinkled throughout our final resting....um....urn? Right?

Interesting about the "prescription non-steroidal anti-inflammatory drug that contains diclofenac potassium, used to treat migraine attacks in adults" Cambia. As is typical, there can be plenty of potential further discussion points contained within a report like yours - I'll just start by zeroing in on the triptans: By your description of them taking up to an hour, it sounds like you could have been prescribed the relatively slow acting pill form? Sumatriptan injections are of course known to be the most effective and much quicker delivery form, plus many get quick enough relief from triptan nasal sprays, but especially if deal killer GI issues aren't encountered with this particular Cambia NSAID, and if its effectiveness continues, it sounds like a much better abortive option for you - congrats on finding such a breakthrough! Here's hoping there's also an impending breakthrough with your O2 access, since success such as you are finding with a new abortive that is not widely recognized as effective for CH can sometimes be short lived.

It's astonishing to me how instantly tears can come to the eyes when reading this (especially the passing away at 49 years of age, but glorious life part). Thank you for posting this, replete with the ski mask, tank cracking etc. color . You are quite the example of an above and beyond cluster hero.

This part looks good: Step 6: The body is returned to the family for burial or cremation and related ceremonies. ....because cremation is my one last chance for having a smoking hot body.

I recall some reports from people who have been in bad car accidents or otherwise suffered head injuries, and this triggered their first clusters. It doesn't seem real common, and whether the trauma actually caused the CH, or was a trigger of a dormant underlying predisposition, I would be unqualified to speculate.

I suppose blood pressure must have also been thoroughly checked? Me: Nothing even vaguely resembling a medical professional, but when I was having very near passing out episodes multiple times daily, I put 2+2 together and realized the CoQ10 component of the D3 regimen is a known blood pressure reducer, so I went off of it and haven't had another pass-out episode since (close to a year). I'm not aware of passing out episodes being an actual cluster related sign or symptom.

Man time flings by in a jiffy whether you're having fun or not!