Bejeeber

A sixpack of E for the V.A.! EGGCELLENT. If it works for you as expected, you'll probably wanna consider an M tank or 3 for the next delivery. 8-)

Yeah, what CHfather said - personally I don't bother arguing liter flow with whoever is writing the prescription because I know it's not only useless having a battle of facts with an unarmed idiot medical professional, but it could make them want to refuse to write it. I just take their moronic 7 LPM or whatever prescription, use it to get some oxygen, then proceed crank it to 45 LPM and abort some attacks!

Billy_the_kid, a veteran member over at the ch.com sister board, is an episodic who has just returned after a couple years. His topic over there is titled "Suffering cant last much longer.........Houston Tx". Sounds like he is in a seriously bad spot right now. He's also motivated regarding O2 and busting, and is requesting any assistance. I'm thinking that since some of us here are also members over there, we might be able to lend some advice to him - here's the link to his topic : http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1295845493 Thank you to the cb.com emergency responders. 8-)

I wonder if you could switch from trex to O2 as an abortive so you could detox enough days before the next dose, but still be able to abort any hits in the meantime? For some CH'ers at least, downing an energy drink right before hopping on the O2 at the onset of an attack is known to help the O2 become all the more effective, and if it was as effective for you as trex, then it sounds like it could be a solution. You could always have a 1/3Â to 1/2 dose trex injection ready to go as a backup just in case.....

We're jonesin' for the Ting! Let's hope that pesky computer gets repaired pronto!!

Hang around a bit and you'll find that there are a (small) percentage of CH'ers who can drink booze with no problem (I'm not one of them! I won't even sniff the stuff when in cycle). Nobody on this thread is a troll, we're all bruthas and sistas in this fight to slay the beast, so I say let's hang together and kick some beast booty (OK that's easy for me to say - I'm outa cycle right now, when the s***t is hitting the fan though, I've unfortunately been known to be a bit more erm....excitable).

f_bomb, that is an excellent user name under these circumstances! 8-) First off, have you tried stretching your imitrex doses as outlined in the imitrex tip? http://www.clusterheadaches.com/imitrex.html That's a real game changer for many CH'ers. Then there's the REAL game changer, which is using high flow, non rebreather oxygen as your frontline abortive. http://www.clusterheadaches.com/O2/index.html Then the REAL REAL real game changer - mushrooms and the like, I know you're already seriously looking into. 8-) Up to 6 hours? That is f-bombing BRUTAL. > :( I think my longest high intensity hits have been maybe 4 hours, and that was...well that was PLENTY.Â

Swiftlaw, regarding your imitrex use and not being able to get clean enough to have the shrooms work - I thoroughly understand why you feel the need to go to the imitrex. I've certainly been there and done that a zillion times myself. I feel that just to make sure though, I must ask if you've tried the newer, very improved method of oxygen use for aborting attacks? I'm talking about high liter flows, around 25 to 45 LPM, and a non rebreather mask. Here's more info if you haven't checked this out already: http://www.clusterheadaches.com/O2/index.html This power user style O2 sure can make a good substitute for imitrex, especially when you need to detox in order to bust. Regarding your "will i be able to make it through another cycle?" question - I realize that question was for Les, but IMO the the answer is a big YES, especially if you really dig in here and at ch.com for for info and advice on the latest and most effective ways to beat this beast back. You did it before - you can do it again!

Glad to see you're getting the O2 - hey if that's a demand valve sort of contraption that your paramedic friend is getting you, that could really be an excellent thing! (I'm just saying this because I know Joe/Giussepi got one from a paramedic. If it's just a regular old mask though and you have to get your own high flow regulator, oh well you'll be in the same minor league with most of the rest of us, including me. )

yes we're going to a party party yes we're going to a party party  [smiley=birthdays.gif] [smiley=2vrolijk_08.gif]

Oh. There's a flag there. Doh. I clicked on the flag, looked around a little, and found it interesting that about BOL they say "(in stock, on request)".

Wow. So doctors are able to prescribe it in Germany? Imagine this somehow becoming available to CH'ers worldwide and here in the US in the near future- what a breakthrough it could be if it lives up to it's promise. I wouldn't blame you one iota for hopping a plane to Germany if you felt confident you could get some Dan.

That sounds like paradise found! Another report to put a big smile on lotsa people's faces - definitely including the Bejeeb's. ;D

Marina, while a lot of CH'ers 'do the dance' and can't imagine anyone lying down, some do respond in a different way and will do their writhing lying down. :-? It's not that uncommon. I know you're concerned about the effects of sumatriptan. While he's still on it, I suppose we should check into what sort of injection dosage he's taking, because what can be a major game changer there is the fact that dosages, and their side effects, can be significantly reduced (as in cut by 1/3 or 1/2) and still be just as effective. Here's the link to the imitrex tip that outlines how to do this, if this isn't something you've seen, or your son hasn't been doing already: http://www.clusterheadaches.com/imitrex.html (also this tip assumes 6 mg injections, but I seem to recall some folks reporting they've been prescribed something like 4 mg injections in the UK??)

I'd like to take this auspicious occasion to nominate Angel for a CH medal of honor for heroism for rescuing her hubby. [smiley=engel017.gif] Oh yeah and happy birthday. [smiley=birthdays.gif] [smiley=birthdays.gif]

C'mon Ting, can't ya get a loaner computer in the meantime or something? :-? This place is going to kind of suck without our mascot. :'(;D

You're welcome Marina, and gee willikers Clustermom13, I hadn't seen your post about the 'send to a friend' button before I piped in. I really shoulda known about that already - thanks for pointing it out.

Hi Marina - maybe a good way to email to him would be to send the link for this particular topic: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1293084254/99#99 ....so he can hopefully just click'n go? And while we're at it, here's the link for high flow 100% oxygen info - it details the effective method of O2 use that doctors don't prescribe: http://www.clusterheadaches.com/O2/index.html

I believe ya. Well I believe he's at least tried everything the doctors have to offer. Here's the thing about that though: The most effective treatments aren't prescribed by doctors. Really. Mushrooms and the like are easily the most effective preventative I've seen. I've experienced CH for 30+ years now, and have been on all the drugs too. Doctors prescribe low flow re-breather oxygen. That is pathetic. they are unequivocal idiots for doing this and believe me your son has a lot of good company amongst CH'ers who have lost faith in doctors. Here are 2 very important, critical actually, questions: 1) Has your son tried high liter flow (25 LPM or above) oxygen with a special regulator and a non rebreather mask, both of which medical supply places don't carry? 2) Has he tried psilocybin or RC seeds? If the answer is 'no' to either of these then not only has he not tried everything, he hasn't tried the most effective preventative nor the best overall abortive, both of which happen to be non toxic. [Disclaimer: there are very rare cases of CH that don't respond to hi flow,100% O2. I can think of 2 - Michael and MJ] I'm skipping over licorice root for now, because this is a brand new idea that as far as I know, just one person firmly believes he has broken a cycle with (no offense Les), while the therapies I mentioned above have been used successfully by countless CH'ers over the course of several years now. Or have I missed newer reports of others convinced they've broken a cycle with licorice root? I'm certainly anxious to hear all developments.....

What a Long Strange Trip It's Been - from "Truckin'" by the Grateful Dead? I'm afraid I'm only familiar with a couple Dead tunes, but that'd be one of 'em. 8-)

When I first saw the "Hubby's Update" title of your post I felt a little jolt of dread, knowing how bad he'd had it for way too long - but then I quickly noticed the smiley face right there in the title too and WOOHOO oh man what a relief to find out he's been PF for 2 months now (??!!). YES! ;D

This was the cause of 4.7 metric honkloads of LOL in Gnashville. ;D

Yep when it rains it pours and when it pains it roars (into the toilet!). Sounds like you're suspecting the pain pills for the back coulda run interference with the busting, and that sounds like a reasonable theory to me too. Glad it has stopped paining/roaring there - phew! - and here's to continued clear skies in the forecast!

Happy B Day to da ROCK! 8-)

AMEN - that fact definitely does not blow in the toilet - and the congregation is deep in prayer that there shall be no more infernal toilet blowing.