jon019

Yo CHf, I don't think that's a CB.org issue....been same for me anytime/anywhere I cut and paste for at least a year now. Got so used to it that I stopped thinking about it but it did steer me away from link inserts (as you've seen and helped with). Was an older PC (2013) so I figured some kind of corrupted file or Windows update glitch (nearly EVERY update for me). Then I got a new Thinkpad and same damn thing...making your question intriguing. Moxie...thank you...I started playing around with clipboard...and while I am so far unable to get it to work as you described (and I'm sure that's on me)…. once I toggled "enable clipboard history" in settings/clipboard, all of a sudden I can highlight/cut and paste the FIRST time....YEE-HAW! Really want to be able to access clipboard history so I can summon links I've used in the past w/o having to search all over again. Best Jon

Yo DM, ...gotta love them M tanks...you date an E-tank but ya marry an M..... ...I put away all thoughts of what my life would have been like without OXYGEN for aborts as too scary to imagine. mostly worked great for hits but nothing for "shadows" of a hit...for that, energy drinks and/or naproxen helped...or just a grim determination that "this too shall pass".... ….have seen multiple reports of folks trying O2 as a preventive...usually at night to prevent nocturnals...do not recall hearing of success... but dang it's worth a try... best jon

….a clusterhead's gut is better than many a doctor's head....and CERTAINLY better informed...….

Hi Left....welcome....YES! …..ya got yourself a wonky hypothalamus like the rest of us clusterheads.....and as if the cluster hits ain't enough it messes with body temp control too...and a buncha other stuff. tis a remarkable little powerhouse.... ...have no explanation for why hot or cold or alternation of each has such beneficial effect...but lotsa folks report same. mebbe partly a distraction and/or redirection or increase/decrease in specific areas of blood flow just enough to (somewhat) get the pressure off the trigeminal nerve (like strenuous exercise works for some)….or you're "tricking' the body. myself, the hottest shower on my head I could stand helped...but couldn't handle ANY cold.... which was really too bad because I worked in a cold storage where a -20 degree F cold room was available any time.... ...just remembered someone recently posted re bare feet on a cold floor being helpful..... Best Jon

Yo Daniel, ....no intent to rag on you for what works for you....but I believe in informed decisions and cost:benefit calculations....only you can do that for you... ...one of the soul crushing aspects of CH is that what works today may not work tomorrow...for no discernible reason.....so: …"to ensure peace one must prepare for war"....now...not after Pearl Harbor.... Best Jon PS: to be clear...caffeine is good...and a lot of it at the right time is better...for clusterheads anyway...

Hi Daniel...welcome.. Looked it up.....Grandpa powder = caffeine+aspirin+paracetamol. Caffeine is our friend...the powder gets it there quicker....but careful re longterm use...the aspirin and paracetamol in there can have significant negative side effects... What is the availability of energy drinks in SA? Anything with at least 100 mg caffeine and 1000 mg taurine (caffeine booster among other things) taken quickly and in my case, super cold, will get ya the needed effect (blood vessel constriction) quickly as you crank open the OXYGEN tank. Speaking of OXYGEN....if your CH progresses (likely but let's hope not!) you're gonna want an effective, quick, cheap, safe, medically acknowledged, side effect free, front line BEST abortive. That would be O2! Dunno what your med system is.... but you might wanna start now looking into how to get the right script and the logistics of obtaining. High flow (15 LPM) or a demand valve type, proper non rebreather mask, and proper technique.... has saved the life and/or sanity of many a clusterhead.... In the meantime.... look into the vitamin D3 regimen...also quite effective for a high percentage of clusterheads... Best Jon

Trader Joe's has several types of ginger in candied and dried forms...sourced from Thailand. Alas...the exquisite Australian version they USED to carry no longer available. Never did squat for me re CH.... but dang good spicy eatin'....perhaps related in effect to capsaicin containing foods/treatments helping some folks with some types of headaches/shadows....

Hiya plhbn...sorry the beast found your address....but welcome aboard sleep, stress, food, barometer, activity CHANGES (like vacations) were ALL triggers for me...I stopped trying to figure out which one(s) because it basically came down to ANY changes in routine. Makes for a restricted life...yet another present from the beast. Depressing way to live...which is why forums like this to help figure a path out of the darkness.... triptans in various forms have been reported to cause rebounds and/or lose effectiveness...the goal is to make them a last resort abortive. I had my best luck with Zoming nasal spray (5 mg)...oral tabs were worthless to me....too slow. injectables effective but felt like killing a flea with a hammer and SO DAMN expensive.... OXYGEN OXYGEN OXYGEN...saved my sanity...perhaps my life. best reported success with high flow (>15 LPM) or demand system, the proper non rebreather mask (one such priceless gem available at clusterheadaches.com), and proper technique (there are several.... including breath and hold, hyperventilation)….if no medical available welding O2 is the same stuff in a different labelled tank...quite safe and usually cheaper.... energy drinks at first sign of hit and while racing for the o2 proved quite effective for me....triple strength coffee early in career, then the energy drinks came out. all taste like ass soes yur looking for content first: at least 100 mg caffeine per serving and at least 1000 mg taurine (caffeine booster). Buy by content and price...I get mine at outlet stores for $1 per 16 oz can (good for 2 hits). Red Bull too expensive and lower in the ingredients you need.... I have not heard this from others... but my first thought was perhaps you've developed a tolerance for diphenhydramine or there is some kind of rebound effect going on like with triptans. I'd try weaning off for a while and/or trying melatonin for sleep. many a clusterhead finds it helps with nocturnal hits.... interesting comment re reasoning and memory....I had quite the opposite. used to do a lot of critical writing at work and would almost wish for a cycle when I had an important project...seemed to sharpen and clarify my thinking....out of cycle it got all muddy. similar to depression...in cycle no problem...too busy...out of cycle...DAMN! Best Jon

Welcome Hs...........what Batch said! .....there are clusterheads alive today because of DJ...and when ya get to (ch.com), poke around, won't find much re Moya Moya .....but there's 'bout 20 yrs worth of collected clusterheadache info unavailable anywhere else................. Best Jon

.... good reminder ff....I used Lincare for multiple CA and OK trips..took a major worry off the table...same prices as home...no hassles....nifty travel service form on their website. I'd specify no concentrator tho... doesn't work for most clusterheads... Best Jon

Wow....cool....cr and ch are so inextricably intertwined this makes complete sense....

...Queen, Prince, and Princess too...……….

Hiya JJin...pray tell...what is the colloidal silver for......YIKES?!

...made me an "odd feeling" groggy...quick sleep....strange dreams...zero effect on CH...…..didn't seem to matter where in episodic cycle I was.... ...definitely worth a try as I 've seen numerous positive reports....perhaps try different doses....10 sounds high (3 mg usual dose for sleep support)….. best jon

...absolutely....it's kind of classic..."stay stressed....NEVER sleep"!.... messes with hypothalamic activity, multiple hormones, adrenaline, dopamine, serotonin, et al...………………. …..I used to get blasted on a regular basis 20 mins after work (high stress job)....some kind of rebound effect from the high levels....oppositely, for some, stress is a trigger....

...forgot to add....in my particular experience proper technique for Zomig NS administration was critical (carefully read and follow instructions as best you can)....improperly done and it was useless...

...ok...you got a full plate there 'missing'....and there aint much that we admire more than supporters...CH or autism, doesn't matter...thank you, and I like how you've analyzed the situation! ...my experience with Zomig: typical 5-8 mins...occasionally 1 min. but it's mighty expensive (for me $15-30 per and that's with insurance) so ya really do wanna know it's actually working. I never used more than 2-3 per week, in high cycle only, possibly why I experienced no rebounds (and ea dose gave me 18 hrs "free" time)…. please excuse I know NOTHING about autism...so these are just thoughts : ….possibly the nasal spray is acting as a distraction or acting in another way besides CH abort. I'd consider a plain saline spray as a trial...maybe it's just the physical act? ….mask "phobia" is a definite thing for anybody...they are damned uncomfortable (hot, slimy feeling, claustrophobia inducing, etc)...I've been using over 30 yrs and I still feel like I'm being stifled.... at the same time I'm breathing! if he's willing you can get mouthpiece breathers...or just breath thru the supply tube....but you would have to somehow shut off nose breathing as you MUST have 100 % O2.... ….does he like energy drinks or other highly caffeinated drinks....unless there's an agitation problem it is quite an effective abort mechanism....anything over 100 mg caffeine and 1000 mg taurine (boosts the caffeine effect)….really cold works best for me... ….consider the vitamin D3 regimen....he's likely deficient (most of us are)...and it's good for far more than just CH... best jon

...I've always had luck (speed, efficacy, no rebound, no side effects) with Zomig NS 5 MG as my LAST resort abort when OXYGEN, energy drinks, and, at one point, verapamil failed (preferentially to Imex inject)....but that won't help you because many folks react differently. there's only ONE way to find out...ya gotta try..... …..do read the instructions carefully.....and use sparingly...triptans CAN cause rebounds.... Any experience with OXYGEN? Best Jon

Freud...try backing off the caffeine til ONLY when you need it....lookin' for an ice cube down the back effect.....

A professional, competent, PATIENT-oriented oxygen supply service will NOT make a new patient's life even more miserable (just because they used the "wrong" terminology) by throwing out ridiculous comments like a rebreather mask will "kill you". A rebreather simply gives you a mix of O2 and room air....which won't work for CH....but lots of other valid uses for folks WITH a prescription for same. And which, BTW, will not kill THEM either! Sounds like something a person or company in the wrong business would say.....instead of RESEARCHING what CH PATIENT requirements are...then providing THAT....and explaining away any confusion. Seems like you need to educate them...just like many a clusterhead has had to educate their treating Doc. We have to be our own best advocates...…………... Best Jon PS If all ya got is the mask pictured above...tape over the holes so you are not getting any room air (slightly lift mask to exhale)....or just breath directly from the hose sans mask...

Hope I'm not misunderstanding. Sounds like they are sending you an O2 concentrator: "I don't have a need for E tanks". NOOOOOOOOO!...won't work...you NEED tanks...at LEAST e's...better yet, M60's...or the welding tanks discussed before...………. Best Jon

I am amused and delighted with the O2 stories...if there was a 1000% like button I would use it. My experience very close to what is described....seems the lower down you get in the O2 shop organization chain... the more likely you get what you need (provided you are in the good graces of the guard dog (shop mgr). Usually picked up my own tanks...by happenstance one day got to know the back room tech..."Norm". Knew about CH, knew the requirements, instrumental in getting M60 tanks in house (previously only e-tanks), offered to link tanks to get the 25 LPM I asked for, GAVE me a $250 M tank regulator "use as long as you need". If there is a clusterheadache hall of fame...Norm belongs! Having had experienced many of the horror stories re obtaining O2 you see reported here and elsewhere... you may understand why I almost bust out crying in the middle of a business office. EVERY visit after I bypassed the front desk and steamrolled to Norm in the back room.... Wise advice to get on the good side of delivery driver...they are usually people persons and can and will do stuff for you that corporate or "office" can't or WON'T. I'd throw a tip at 'em.... Also always found remarkable the apparent disinterest in "tank accounting". They made damn sure I paid on the way out.. but NEVER asked for or accounted for the tanks afterwards.... Best Jon

Hi... ….CHf way ahead of me as usual....and I echo his outrage! Sorry, but you're 0 for 2......with their first ignorance being about the MOST IMPORTANT abort available: OXYGEN. All the other sh** should come AFTER that and ONLY if the oxygen doesn't work. Second, amitriptyline is an OLD line med (Was prescribed over 25 yrs ago...for ME...no benefit...bad side effects). Tis normally used as an anti-depressant and it or related meds have had some benefit for migraine...have never heard of anyone with CH benefitting. A) you GOTTA find a headache specialist or a pain and headache clinic. Are there any college teaching hospitals close by? B )find some way to get oxygen...welding or medical.... it doesn't matter (depending on health ins you may want to find even a general MD who is willing to prescribe). C) start the D3 regimen now....even if you didn't have CH it's good for ya Best Jon

Moxie...so sorry for your loss. Whether you celebrate the season or not.... just know you got family out here who care and are thinking of you! Best Jon