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ClusterBusters

Freud

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Everything posted by Freud

  1. So I just got home. Drove dad across NJ all day, threw my M tank in the car and as it happens I was lucky enough to get a migraine last night that’s being a persistent bugger. And the Ch doesn’t scare it away any more they both occur simultaneously. So I haven’t looked up the study yet to give you numbers on avg pain free or reduction of severity time. All I know is if they will do it 3 consecutive days (fairly positive that’s what the study did but I’ll dig it up) you get the best results. The only real side. Effects besides the standard ones for steroids which can rarely include a vascular necrosis of the hip the main risk is balding at the injection site with frequent blocks. The steroid risk is minimized greatly compared to oral or IV doses. I would try it for sure. Everyone responds differently as usual... they did help me though. The first time I went to him to beg for some kind of help, he did the occipital and SPG blocks and it did stop the CH I was having dead in its tracks. Even if they won’t do the consecutive blocks it’s worth a try if it costs you nothing but travel and stuff. I will I’ll do my best to find the study so you’re armed with the info. When is this supposed to happen?
  2. I haven’t read all the posts, I just had a Sec to stop by, but I got occipital blocks and spg blocks done twice a week by a pain doc. He did both sides which seemed odd to me, I went for 8-10weeks. Ended up w a 8K bill and they helped but didn’t stop my CH. I have come to find out by my neuro who had trained the pain doc I saw. So he knew he was doing unnecessary procedures!!! Then I found out he wasn’t doing the greater occipital blocks properly. There was a study my old doc showed me last appointment that was 3 greater occipital nerve blocks in a 72 hr period w steroids as well as lidocaine did provide significant relief in the study pts. I’ll look for it. I’d try it see if they would do the 3 in 72 hr period. Here in the states insurance companies will only pay for one block every 2 weeks!
  3. Freud

    My latest Vitamin D Results

    Wow, I believe batch will say take Benadryl, check for infections. A friend did the same thing and he was walking around w bad bronchitis/ pneumonia. His D came up when the antibiotics were done... let’s see if my prediction is right.
  4. Freud

    Simple Technique to Abort Headaches Right at Onset!

    No clogged nose stage. My CH is not the same as your CH. my nose doesn’t do much for the majority of my CH. I’m getting 8-12 attacks a day. The intensity isn’t always runny nose, clogged nose and eye pain. A lot of mine temporal head pain, neck pain. Then alternating in severity eye pain then head pain, then stabbing pain in the SPG. Then all at once or any combo of them. But clogged nose only happens if it’s a 10 and I can’t help but cry it hurts so bad. All Clusterheads are different!
  5. Freud

    This helped me- hopefully will help others

    That’s amazing the diet helped the RA. Both my sister and father suffer from bad RA. We will have to talk about this in Dallas! Sorry it didn’t help the CH
  6. Ewww, I have a perfect record turning down trips to the honky tonks. Lol. I did read about a new BBQ joint in the observer article I posted. It made me think twice about going there. I think it was in Farmersbranch in an unassuming location. I’ll have to find it again. Do you do pizza and beer DD? Enos in Bishops arts district could be a cool outing.
  7. Freud

    This helped me- hopefully will help others

    Unfortunately many people have posted about diets here. Be it keto diets or histamine free diets, some have said it helped them. However, some times it’s just coincidence. Spontaneous remissions do happen to episodic and chronics. It’s rare, but I am skeptical. Like Dana says it’s no cure but may have been a trigger for you. We all have different triggers. If you want to see how many people found a cure only to find out it wasn’t search in the search field for “cure”. Start with the oldest post and read to current. There are over 25 pages of cures. I hope to god you never get another CH. but please don’t use the word cure here. Thank you for sharing hopefully it helps someone else.
  8. Ha, in a former life I had the name Adrenalinjunkey. Lol. Now I get plenty of adrenaline to power a U Boat.
  9. I’m so glad I started this thread. I’ve never been to a CB conference. Do we all we are aka name tags. Lol
  10. And man did you guys get to that show at red rocks?i e always wanted to see a jam band there.
  11. Hi Tim, nice to meet you. I replied to a post of yours from last year. If you’d like to talk at the conference let me know. Brian
  12. I have had a few too many myself. Not self harm related or Ch related but I e got 9 lives. Why do you ask? I know this is an old thread...
  13. Most of us probably won’t go out for brunch on Sunday, but if you do just know when church lets out all over the metroplex it’s impossible to get a table at most decent places. You don’t really see that in the NE.
  14. @Dallas Denny do you have any DFW favorites, I know fort worthless (I kid I hated driving to ft worth to operate. It was second class next to Dallas) has some good places I just never ate there. Very curious what you have to say about my recommendations.
  15. And how could I forget La Duni Latin Cafe. They have a few locations but the McKinney ave place is best now that the oaklawn place is closed. Amazing brunch lunch and dinner. I have a few favorites there so let me know if you go. Man did I love to eat in Dallas. More so than in NYC and that’s saying a lot.
  16. Ok @Racer1_NC despite one of my good friends having a great busy sushi place, this place Yutaka hands down is the most amazing sushi offerings I have ever had. His fish is so decadent it just melts in your mouth. My friends place burnt down a few months after he redid his whole place and I had no where to eat sushi. So I tried this small and pricy place yutaka. I sat down w a friend and asked chef yutaka if we could eat omakase “chef’s choice”. I am convinced outside of Japan I will never have sushi that good. He will only do omikase on nights where he doesn’t feel overwhelmed so it’s probably not an option and ran at least $150 a person but it was worth every penny! This was in a different life I was working so much I was happy I got home to eat before everything closed most nights. On a more affordable note there is a market that does all prepared food called Eatzi’s. There were 3 in the metroplex, the busiest was the one in Oaklawn in Dallas but there is one in grapevine close to the hotel. It’s the same food as all the other markets just not as busy. Friday night the in house bakers make pizza I think there are only 3 to choose from and they make it until they run out of dough. An amazing option on Friday night! All the food there is fresh, made in house and was a staple in my diet. I’m probably going to do eatzi’s on Friday unless I go to the bishop’s art district and go to Eno’s pizzaria. They have a pie called the pigleywiggley that is amazing. Plus others and good beer on tap if you’re one of the people that can drink. Taco kitchen is another great place. I prefer the one in Dallas over the one closer to the hotel if it’s still open. There are a ton of high end $$$ places in Dallas I have left off except for yutaka. I am attaching a link to a new article by the Dallas observer of the top 100. I haven’t lived there in over 5 years so a lot has changed. I’ll come up w a few more, just have to look them up and make sure they are still open. Looking forward to meeting you. https://www.dallasobserver.com/top-100-dallas-restaurants/yutaka-sushi-bistro-6455527 wow I almost forgot Bolsa just amazing, if you’re a vegetarian (my Gf at the time was) they will cook a special meal to meet your needs off the menu Brian
  17. I became bipolar in my early thirties. Was on a drug called invega. I was on monthly injections when busting first worked. Then my doc switched me to the quarterly injection. He told me it doesn’t interact w 5-HT receptors but rather dopamine. So I said sure 4 times a year is better than every month. Then my CH came back and I haven’t been able to bust since. He was wrong if you read the fine print it says “does interact w serotonin but MOA is unknown”. It was too late, the half life is 3 months, it takes 5.5 half lives for a drug to clear your system. So that means 16.5 months!!!! My last dose was oct 2018. When I dose I get a shitty body load and my eyes dilated but that’s it. No trip even at 10g or 4 tabs of L! Crazy I know. So for the foreseeable future I’m clusterfucked...
  18. Just read the article, I never feel alone, but I do get scared from time to time that this hell will be my life until the day I die. And then I take another dose of psychedelics and try try again. So far no luck. I’m blocked until at lease March. The last 4 months have been hell, and 8months seems for ever to wait. Ever since I had a new “10” that made my old 10 a 5. It’s been miserable. Can’t say that post makes me feel any better, wish it did.
  19. Hey Dana, I feel your pain, CCH has robbed me of my life as well. I had just gotten a series of 5 surgeries done to fix my neck and the first time since I was 14 (I’m 40 now) I wasn’t suffering from severe pain. Then wham the CCH started and never stopped. It will be 2 years come end of August. I just got an email for a locum job in TX for 4K a week. Too bad I need to retake my boards, too bad there is no way I could go back to doing cardiothoracic surgery again. Haven’t been able to work for several years now. My job used to define me to my core, at this point the best I can hope for is to get these CH better controlled and try and get a job doing dermatology or headache medicine or something. One day I’m sure I’ll be able to be a productive member of society. But for now all I can do is wallow in pain, pray my O2 works and wait it out until March when I may be able to successfully bust. In the mean time I am pursuing ketamine nasal spray. We’re both a fing ray of sunshine. Lol. I’m going to read that link now. Keep your head up. Things will get better.
  20. Very cool, Dallas has an amazing food scene. Since you’re going early I have a few recommendations if you’re interested. I’d say “Fuel City” tacos are a must. It’s a gas station that’s open 24h and is always busy. There tacos are freaking amazing. I’m pretty sure I’m going to cab/Uber there if anyone is interested. Oishii sushi is great, one of my good friends owns it and sitting at the sushi bar is like the show cheers. The moth is another great place. Amazing beers on tap and the food is real good. I’ve got a few more but I’ll stop there. Edit: I realize beer is out for many of us but a friend that went last year told me he was in shock by how many people were drinking. He said he started asking people how they were able to drink and everyone told him I use MM, L... And thats when he concluded this busting stuff is for real.
  21. Sounds good. I’ll bring a E and M reg and a bunch of trex. Just don’t want to be suffering when I meet y’all. Looking forward to shaking your hand DD! And many others i hope @CHfather will be there and batch and all the regulars here.
  22. That’s great, I wish my parents wanted to go. Honestly I think living with me has them at there limit. My CH is at its all time worst and it’s taking a toll on them. The only good thing about this debilitating CCH is I had to move back in with them, and have found my father half dead from septic shock 4-6 times in the last year. If it wasn’t for this CCH I would have never been here to save him. In a former life I did high risk neonatal and adult critical care... so as miserable as I’ve been CCH saved my father’s life. Hope my little story helps y’all see the silver lining in some of this.looking forward to meeting you!
  23. Freud

    Here's a beer to avoid

    What’s beer? Lol haven’t had a sip in 2 years. Man I used to live a good high alcohol content craft beer.
  24. Freud

    Newb here

    @jost it sounds like you’re using imitrex pills. In general 95-99% of us don’t get any kind of relief from oral sumatriptan. The injections are %1000 times better. Most insurances will cover 12 injections a month if they cover injectables. You ask your Dr to write for the 6mg auto injections and search you tube for splitting injections. You can get 2-3 doses out of each one. So you could get 24-36 doses per month. Most importantly oxygen is the number one abortive in my book. Frequent Imatrex use is reported to increase severity and amount of attacks. I save my injections for important days like family events or for the kip 10s (search the web for kip pain scale) that won’t break with the oxygen. You need high flow 100% oxygen at a min of 15-25LPM. So you go through it pretty fast depending on how many times a day you get hit and how long it takes for the oxygen to work. My CCH (chronic CLuster headaches) used to abort after 2-3 min of oxygen and I stay in for 10min total. To avoid a partial abort. These days for the kip 8-10s it can take 10-30min for them to break, but that’s still probably faster than the oral Imatrex. Btw the injections work in 5-10min. Look around, the search bar is your friend. If you want to know more about busting and have read the new user stuff make a post in the theory and implementation section. Or any where except the general/ public board i wish you luck, we’re here to help brian
  25. Freud

    half time

    I experience this too, totally sucks. I’ll go on O2 during a kip9-10 and then it subsided after 20-30min of O2 (I’m running through a M tank a day right now). Just when I think it’s broke I sit in O2 5-10min more and it’s gone. Then all of a sudden wham... for my kip7s and 8s that usually doesn’t happen.
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