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Everything posted by Freud

  1. Great choice for edit reason! I always have typos...lol
  2. That’s amazing the diet helped the RA. Both my sister and father suffer from bad RA. We will have to talk about this in Dallas! Sorry it didn’t help the CH
  3. Ewww, I have a perfect record turning down trips to the honky tonks. Lol. I did read about a new BBQ joint in the observer article I posted. It made me think twice about going there. I think it was in Farmersbranch in an unassuming location. I’ll have to find it again. Do you do pizza and beer DD? Enos in Bishops arts district could be a cool outing.
  4. Unfortunately many people have posted about diets here. Be it keto diets or histamine free diets, some have said it helped them. However, some times it’s just coincidence. Spontaneous remissions do happen to episodic and chronics. It’s rare, but I am skeptical. Like Dana says it’s no cure but may have been a trigger for you. We all have different triggers. If you want to see how many people found a cure only to find out it wasn’t search in the search field for “cure”. Start with the oldest post and read to current. There are over 25 pages of cures. I hope to god you never get another CH. but please don’t use the word cure here. Thank you for sharing hopefully it helps someone else.
  5. Ha, in a former life I had the name Adrenalinjunkey. Lol. Now I get enough adrenaline going during an attack to power a U Boat.
  6. I’m so glad I started this thread. I’ve never been to a CB conference. Do we all we are aka name tags. Lol
  7. I’m screwed I only get a runny nose for 10-20% of mine. Never clogged. Any cures for those of us that get puffy swollen red eye on the affected side?
  8. And man did you guys get to that show at red rocks?i e always wanted to see a jam band there.
  9. Hi Tim, nice to meet you. I replied to a post of yours from last year. If you’d like to talk at the conference let me know. Brian
  10. I have had a few too many myself. Not self harm related or Ch related but I e got 9 lives. Why do you ask? I know this is an old thread...
  11. Most of us probably won’t go out for brunch on Sunday, but if you do just know when church lets out all over the metroplex it’s impossible to get a table at most decent places. You don’t really see that in the NE.
  12. @Dallas Denny do you have any DFW favorites, I know fort worthless (I kid I hated driving to ft worth to operate. It was second class next to Dallas) has some good places I just never ate there. Very curious what you have to say about my recommendations.
  13. And how could I forget La Duni Latin Cafe. They have a few locations but the McKinney ave place is best now that the oaklawn place is closed. Amazing brunch lunch and dinner. I have a few favorites there so let me know if you go. Man did I love to eat in Dallas. More so than in NYC and that’s saying a lot.
  14. Ok @Racer1_NC despite one of my good friends having a great busy sushi place, this place Yutaka hands down is the most amazing sushi offerings I have ever had. His fish is so decadent it just melts in your mouth. My friends place burnt down a few months after he redid his whole place and I had no where to eat sushi. So I tried this small and pricy place yutaka. I sat down w a friend and asked chef yutaka if we could eat omakase “chef’s choice”. I am convinced outside of Japan I will never have sushi that good. He will only do omikase on nights where he doesn’t feel overwhelmed so it’s probably not an option and ran at least $150 a person but it was worth every penny! This was in a different life I was working so much I was happy I got home to eat before everything closed most nights. On a more affordable note there is a market that does all prepared food called Eatzi’s. There were 3 in the metroplex, the busiest was the one in Oaklawn in Dallas but there is one in grapevine close to the hotel. It’s the same food as all the other markets just not as busy. Friday night the in house bakers make pizza I think there are only 3 to choose from and they make it until they run out of dough. An amazing option on Friday night! All the food there is fresh, made in house and was a staple in my diet. I’m probably going to do eatzi’s on Friday unless I go to the bishop’s art district and go to Eno’s pizzaria. They have a pie called the pigleywiggley that is amazing. Plus others and good beer on tap if you’re one of the people that can drink. Taco kitchen is another great place. I prefer the one in Dallas over the one closer to the hotel if it’s still open. There are a ton of high end $$$ places in Dallas I have left off except for yutaka. I am attaching a link to a new article by the Dallas observer of the top 100. I haven’t lived there in over 5 years so a lot has changed. I’ll come up w a few more, just have to look them up and make sure they are still open. Looking forward to meeting you. https://www.dallasobserver.com/top-100-dallas-restaurants/yutaka-sushi-bistro-6455527 wow I almost forgot Bolsa just amazing, if you’re a vegetarian (my Gf at the time was) they will cook a special meal to meet your needs off the menu Brian
  15. Very cool, Dallas has an amazing food scene. Since you’re going early I have a few recommendations if you’re interested. I’d say “Fuel City” tacos are a must. It’s a gas station that’s open 24h and is always busy. There tacos are freaking amazing. I’m pretty sure I’m going to cab/Uber there if anyone is interested. Oishii sushi is great, one of my good friends owns it and sitting at the sushi bar is like the show cheers. The moth is another great place. Amazing beers on tap and the food is real good. I’ve got a few more but I’ll stop there. Edit: I realize beer is out for many of us but a friend that went last year told me he was in shock by how many people were drinking. He said he started asking people how they were able to drink and everyone told him I use MM, L... And thats when he concluded this busting stuff is for real.
  16. Sounds good. I’ll bring a E and M reg and a bunch of trex. Just don’t want to be suffering when I meet y’all. Looking forward to shaking your hand DD! And many others i hope @CHfather will be there and batch and all the regulars here.
  17. That’s great, I wish my parents wanted to go. Honestly I think living with me has them at there limit. My CH is at its all time worst and it’s taking a toll on them. The only good thing about this debilitating CCH is I had to move back in with them, and have found my father half dead from septic shock 4-6 times in the last year. If it wasn’t for this CCH I would have never been here to save him. In a former life I did high risk neonatal and adult critical care... so as miserable as I’ve been CCH saved my father’s life. Hope my little story helps y’all see the silver lining in some of this.looking forward to meeting you!
  18. Hey fellow clusterheads and supporters. After several people have strongly encouraged me to go to the CB conference, my parents decided to send me this year. I’m a little apprehensive bc I’m going through a M tank a day right now and my CH is at its all time worst. However, it will get me out of the house and submerged in a community of fellow sufferers. Bostonheadachedoc feels that it is important for me to meet other chronics. Most of the CH people I have become friends with and/or have met in person are episodic. I’m not sure it makes a difference we all suffer the same excruciating pain. But none the less I am now booked and looking forward to meeting many of you. So I figured I’d make this post to see who’s going to make sure I at least get to shake your hands. Pain free wishes! Brian
  19. What’s beer? Lol haven’t had a sip in 2 years. Man I used to live a good high alcohol content craft beer.
  20. Freud

    Newb here

    @jost it sounds like you’re using imitrex pills. In general 95-99% of us don’t get any kind of relief from oral sumatriptan. The injections are %1000 times better. Most insurances will cover 12 injections a month if they cover injectables. You ask your Dr to write for the 6mg auto injections and search you tube for splitting injections. You can get 2-3 doses out of each one. So you could get 24-36 doses per month. Most importantly oxygen is the number one abortive in my book. Frequent Imatrex use is reported to increase severity and amount of attacks. I save my injections for important days like family events or for the kip 10s (search the web for kip pain scale) that won’t break with the oxygen. You need high flow 100% oxygen at a min of 15-25LPM. So you go through it pretty fast depending on how many times a day you get hit and how long it takes for the oxygen to work. My CCH (chronic CLuster headaches) used to abort after 2-3 min of oxygen and I stay in for 10min total. To avoid a partial abort. These days for the kip 8-10s it can take 10-30min for them to break, but that’s still probably faster than the oral Imatrex. Btw the injections work in 5-10min. Look around, the search bar is your friend. If you want to know more about busting and have read the new user stuff make a post in the theory and implementation section. Or any where except the general/ public board i wish you luck, we’re here to help brian
  21. Freud

    half time

    I experience this too, totally sucks. I’ll go on O2 during a kip9-10 and then it subsided after 20-30min of O2 (I’m running through a M tank a day right now). Just when I think it’s broke I sit in O2 5-10min more and it’s gone. Then all of a sudden wham... for my kip7s and 8s that usually doesn’t happen.
  22. What part of the country are you in?
  23. I’ve been told that the vials are no longer available. Here in the NE the distributors don’t have it. I tried several pharmacies from the big ones to Mom and pop
  24. That’s what we’re here for buddy! I’m going on 18months into this wonderful CCH shite. Although my pain and CCH are far worse now than they have ever been some how most of the time it’s easier to deal with and accept. May be because I’m waiting to be detoxed in feb so every day is one day closer to these psychedelics working. I have my moments don’t get me wrong. Like last night, my 3rd attack from 11p-3am wouldn’t abort on oxygen and I just couldn’t take the 10 so I caved and used an injection. The 9-10s have me saying this isn’t fair, why me... but once I get it to break that stops until the next one. I think my lack of depression and anxiety (I do get anxious from time to time) is because I haven’t stopped dosing at least once a month. As far as non CH cervical pain goes I’ve been there too and that is wretched as well. Fortunately in 2017 I had 5 revisions on my cervical burn scars and they stopped my scars from crushing my spine. I had put it off for 10-15 years mainly bc it’s hard to find a surgeon. Just after I fixed my neck the CH started. Both at once must be tough. Anything I can do to help just ask. Almost forgot the daily max of injectable sumatriptan is 12mg you could do 4 injections of 3mg/day. Zembrace is half strength sumatriptan injections so you can take 4 a day. Most insurances that will cover it cover 16inj/4 boxes a month. Most people get 12 6mg injections per month of full strength. So you get much more to stretch out if you break it down. My new insurance only covers 50% of any of them so I’m just using what I saved and an episodic friend from here has been nice enough to share some of his. best of luck ramble over lol Brian
  25. Here is a link to what I think is one of the newer injectors. https://m.youtube.com/watch?v=0YZ4tenH-ug you have to search YouTube to find the one you have but this is the easiest way I’ve seen it done. Hope this helps brian
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