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Everything posted by Freud

  1. Start Here https://clusterbusters.org/forums/topic/5874-alternative-grow-methods-for-mm/?tab=comments#comment-58716 this is only one method. Others here use the PF tek. You can search here for that with the let’s grow mushrooms videos
  2. Hey 357, your best bet is to make a new post in the theory or my story section about your new HA (headache) symptoms and see what kind of response you get. There are many here including myself that get both CH and migraines. I don’t get migraines too often but it’s not fun. My clusters used to scare away the migraines but lately I get them both at the same time. I am chronic CH and get may be 1-2 migraines a quarter. My imatrex injections sometimes help. But I use them very sparingly. @MoxieGirl gets quite a few migraines and has some interesting treatments ie. Vodka. Lol. Not an option for a lot of us but she swears by it for herself. Hope you get relief soon B
  3. My doctor wrote it for me last appointment as well, Lilly will cover $4900 the first year. Total cost of the drug the way my doc wrote it is $7,800+. I’m not sure why after the first dose you took more than one injection per month. The literature supports a double dose the first dose then one does every month there after. Any idea why your doc did 3 injections the third and forth months? what kind of results did you get? (Edit: after rereading your post, if I’m understanding correctly your CH did not get better but you got a few good nights of sleep? )Are you in remission or did you just get the 50% reduction in CH as most of the ECH patients did? edit: I decided to wait on the trial until I’m detoxed in February and I can tell if the psychedelics will work or not. I figure if it’s the only real option I have left than I’m going to only try it if mm/lsd... doesn’t work.
  4. I suggest you talk with your headache dr who writes for the lithium and ask them to ween you off of it. This site has some interesting info: https://mentalhealthdaily.com/2014/04/24/lithium-withdrawal-symptoms-list-of-possibilities/
  5. Woah!!! You’re putting the cart before the horse if you’re on lithium and you’re close to busting. YOU CANNOT BUST WHILE ON LITHIUM!!! Lithium can potentiate the effects of all psychedelics and can lead to an extremely dangerous cascade of events. Are you on it for CH? The med I was referring to was not for treating CH it is for bipolar disorder primary feature mania. It’s called invega trinza. It take 16.5 months to be eliminated from my system. Not all meds that don’t play well with mm are blockers case in point lithium. As far as the mm go those are dry weights used here on this site. Dry wt is aprix one tenth that of wet. So if you have 100g wet you will get 10g dry from it. So if you wanted to use wet/fresh mm to bust with you would use 10-15g wet. You can make tea with wet mm just the same way as you do with dry mm. You just need to cut up the mm finely with a knife. I find eating them wet to taste foul. Dry I can munch the shit out of them I just prefer the tea bc it hits you in 10-15 min rather than 30-45min if you eat them. I discuss the use of psychedelics with all my docs, they are all supportive. My headache doc was offering me the Yale study but I told him my mm were almost ready during my first appointment with him. Almost forgot all of the strains you have should have similar psilocybin levels. Penis envy, albino penis envy, KSSS (a Thai strain), and non cubensas psilocybin contains mm are stronger than your average cube As as far as your questions about relief everyone gets different results, there are averages and extremes. On the extremes you get those that get a few days to a week pain free (PF) from a bust, then there are those that get 6-12 months PF up to years is the longest I’ve heard. There is no doubt they work and in my opinion have the best success rate next to the Vitamin D regimen.
  6. @FunTimes hit it on the head the extreme reduction in stress is a huge trigger I have seen come up on the boards a lot. Prednisone comes with its own set of risks. It doesn’t do anything for me plus I’m chronic (can’t keeo taking it) so I’m not sure if I’d take it if it worked and I was episodic. Funtimes probably got his avascular necrosis of his hip requiring hip surgery from taking steroids and he said he’s only taken them 2 times in the last 6 years I think. It’s one of the more rare adverse effects but it does happen. The link often gets missed because it can take months to over a year for the dying bone to cause pain and require surgery. Vitamin D and oxygen plus busting are the perfect trifecta for most of us. Clusters are always changing, no two people are the same, and you don’t always respond the same to a previous treatment. Good luck and pain free wishes to you!
  7. Unfortunately AVN of the hip can happen after just one isolated use of steroids. It’s rare as shit but check out this case report. Guy is 42... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4837136/ This article is 3 pts I think with migraine and AVN of the hip and corticosteroid use https://www.researchgate.net/publication/6383888_Steroids_and_Aseptic_Osteonecrosis_AON_in_Migraine_Patients All I can say is fuck man we keep winning the lottery on these conditions. Not that they compare in the slightest but since I know you take verapamil as well I’ll share my recent AE (adverse effect). As we’ve discussed i was on 800mg divided into 5 doses so I don’t get blurry vision (I would have been on more but I get blurry vision over 800mg). Besides the blurry vision I never noticed another AE. I’ve been slowly gaining weight despite not changing my habits. Couldn’t figure it out. I had a little stomach but nothing more than a 5 or so pounds over wt. But my belly has gotten huge for me in the past few months. So last Saturday I noticed I started getting edema in my lower extremities, Sunday legs were huge. I realized my abdomen was full of fluid as well and that what all the extra wt was from. I’m 99.9% sure I got CCB (calcium channel blocker) related peripheral edema. I say 98% b/c I have not got labs or seen my cardio. I talked with him on the phone and he agrees with my diagnosis but I couldn’t get in to see him until next week (I found dad half dead in bed with respiratory distress last Thursday and that has consumed me, he is ok now...) The fluid on the abdomen (ascities) is not well documented. However my cardiologist said on such an overdose of verapamil it doesn’t surprise him. Max cardiology dose of verapamil is 320mg. So we are all truly over dosing on it to get results. I never looked at it that way. Long story short I don’t have heart failure, renal disease or liver failure so it’s the CCB. I’ve got like 20lb of fluid on me!!! I halved the verapamil with no consequence and am going to rapidly titrate it off from here. Cardio said 80mg a week from here, but I’m getting a BP cuff to ensure I don’t get rebound hypertension and am weening it down every 3 days to off. I now have a new appreciation for my heart failure patients with all their edema. Sorry if I hijacked your thread, but I figured a significant AE that could apply to you one day may be worth sharing you can get CCB related edema on lower standard doses as well... sorry for the ramble I’m only getting 2 hrs of sleep a night if I’m lucky, and that leads to wordy posts off topic lol Best of wishes for your surgery and a speedy recovery! sincerely, Brian
  8. Hey FT, I was thinking the same thing you’re awefully young for a hip. Have they told you you got avascular necrosis of the hip?
  9. Hey, Mr is my father. Nice to see you’re having success. You want to harvest just before the veil breaks or just after for max potency and make sure they don’t drop spores and over grow. They will just look unappealing but work fine if they go to long. At any rate your question: For most people a standard chronic abortive bust goes as follows 1 make sure you’re not on anything that can block the mm from working ? Do you take any “triptans” ie. Sumatriptan/ Imatrex? Any psych meds either for on label or off label use? Topamax, lithium, just to name a few 2. You’re going to need to obstain from the drugs in 1 until you’re detoxed (5.5 half lives, google half life of your drug and multiply by 5.5 to get elimination time then divide by 24 to get number of days. ). Except for triptans/ imatrex, you need 5 day detox. The bust: as a rule of thumb most people require what we call a threshold dose of mm. One where you feel the effects (body high, all smiles, buzz going on, vivid colors, shimmering shadows) but not a dose so strong that you’re actually tripping. This can usually be achieved by taking 1.0-1.5g of mm. You should take them on a fairly empty stomach, I make a tea (mm hit faster and stronger, effects may last a little shorter). This will usually result in a 3-5hr experience. To bust properly, you take a threshold dose 3 times 5 days apart. So if your first bust is Monday your second bust would be sat, and the last bust the next Thursday. Since you are chronic it can take more than 3 busts to tame the beast. Once you are able to achieve a remission your next challenge is preventively dosing so you prevent them from coming back and stay pain free the whole time. Some people wait for the CH to return but myself and others would rather dose once a month to once a week (everyone is different) to keep the CCH away. It seems rare to me but Bob and others have reported six months to a year remission from one round of busting (3 doses 5days apart). My story and lack of success has to do with a blocking med I was on but I plan on dosing once a week to once a month when I’m finally detoxed to prevent the beast. It’s easier to prevent than abort. Hope this helps ask any questions you might have.
  10. There is very little they can do to taylor the anesthesia. They use meds to raise your BP if it drifts down in response to anesthesia and I suspect these meds act like the epinephrine in the numbing agents at the dentists office and cause vasoconstriction. If they need to raise your blood pressure and they don’t want to give you fluid to raise your BP (they do both) then you need the drug. You can ask if they are going to put in a numbing agent (many do after surgery is done to decrease your narcotic needs) then ask them not to use anything with epi in it. I’ve had surgery since I’ve become CCH and I did not get hit after surgery both times. I would have no reservations about asking for injectable sumatriptan to be sent to the OR Incase you emerge with a CH. then the med should be sent up to the floor you’re going to. Some hospitals have regulators that go to 25LPM but respiratory therapy usually has to hunt them down. Err gotta run and cut this short. Will BBL if I can add more
  11. Just because it doesn’t cross the brain blood barrier doesn’t mean it can’t be effective. If it exerts its effectiveness. systemically on circulating CGRP thus lowering the total concentration in the body
  12. @Frilling emgalitiy is a preventative not an aborter for an acute attack. In the emgalitiy study they found that 70% of the users saw a 50% reduction in HA. Hope you’ll be the lucky one it completely gets rid of the CH. keep us updated.
  13. I’ve felt that way about my neck and back but your legs get knitted up? Sorry I confused this with another post I had in my mind...
  14. Ok you’re best bet is to click on the new user button at the top of the page and start there. But D3 is Batch’s vitamin regimen it works for a lot of people. Look up vitamin D3 wiki in the search field. MM is magic mushrooms any mushroom containing Psilocybin. Kip is a pain scale just for clusters. Google KIP pain scale.
  15. Many here have tried CBD with no success, what strength is one bear? It could be coincidence too. Clusters are funny like that.
  16. If there is anything I have learned about CH and people in remission and changing CH is that coincidences are common. Wether it’s a wackey “cure” someone thinks they found only to have their CH return the next year and the same thing not work at all. CH is always changing. It’s a crazy coincidence that he got one the same day. It’s stastically crazy that your wife got them and you knew some one that has them. There are only about 400k people in the US with them. I have a friend that went the welding O2 route and it just so happened the guy that owned the place has a son with CH so he could talk freely about what he was going to use it for. I mean what are the chances. I’ve won the lottery on a lot of medical problems and I thought my chances of winning the lotto are better than getting Chronic CH but here we are.... sorry your wife is suffering. Have you clicked on the blue button on the top of the page to see what this site is all about? There are other good options to get rid of the beast or prevent it in the future if you know when your cycle starts.
  17. Freud


    Like I said I get my O2 friom Apria. Would you like the number I call. I’m on the east coast but the policy should be the same!
  18. Freud


    I live in NJ and use Apria, that is definitely not their normal practice. My Dr filled out a form faxed it in and wala I got O2 no problem. The delivery guys are great. I have many tanks besides the 3 M tanks they know I have. I recommend calling Apria and get some one on the line from CS and just keep escalating up the food chain to some one that can help. Apria has been great for me.
  19. Sorry BOF didn’t see your post here on the second page. Lol
  20. I’m the same way with the O2. If my CH starts at full blown like some one turned it on with a switch then the O2 usually doesn’t work. Most of my nocturnal attacks start an hour or so after I’m asleep. They typically have a ramp up but some are faster to ramp up than others. Hence I moved an M tank upstairs right next to my bed and got a second regulator so I cut down the time to get dressed and run down to the O2 now I just sit on the edge of my bed and put the mask on. This has been a great help. As for sleeping position, I have a fellow cluster head friend I met through here who would sleep in a chair because some one told him it would help. He believed it did so he would sleep in the chair. Until I started to tell him I thought it was BS. He did a little experiment and concluded it was just the luck of the draw how many times he got hit at night. Some people swear it makes a difference. I happen to love sleep and my bed and refuse to give it up. I suffer from insomnia but lately I’ve been getting so many hits at night I’m so sleep deprived insomnia isn’t a factor, it’s the CH devil that robs me of my sleep. I dont find hot or cold compresses helpful. As well as hot or cold liquids. One of the regulars here used to drink cold liquid through a straw and direct it to the roof of his mouth to create brain freeze and he thought it helped. As far as cluster heads go we all have a few things in common but we all respond to treatments differently but you will find some people that share some of your same symptoms or aborts. Another important thing I have learned from others sharing their experiences here is that clusters change. What once worked can all of a sudden stop working, which is a scary proposition for those of us that have found relief either from pharma or alternative treatments like busting. I started a thread a couple of weeks ago which was basically to lighten up the mood here and shed some light on some of the more obscure things people have claimed cured them. I simply searched the site for “cure” and posted a link to the search results. The word cure is a bit taboo here as there is no cure for CH as of yet. So far in my opinion the only things that show great promise is Batch’s Vitamin D protocol and busting. They help a lot of people but by no means are a cure. Here is a link to the “cure” thread. As one member suggested to me it’s probably worth starting with the older posts and ending with the most recent. There are a few by Potter that are down right hysterical. Brian
  21. Your best bet is to call the Jefferson headache center in Philly. I travel up to CT to see my doc. I pay out of pocket bc I don’t have out of network benifits any more. I am going to call Jeff tomorrow and see if they take my insurance. If so I will make an appointment with ***Dr Young. Another CH friend of mine recommends him. He is the director of the program, up to date on everything, a big CH advocate, a supporter of clusterbusters and busting. So you can and should speak freely about it. Going to a headache center makes all the difference. I wasted 6 months with my local headache specialist. At Jefferson if you call and say you have cluster headaches and need to get in. I hear they find a way. That’s the same way my headache center is. They may not do it for new patients but certinately for known Pts. As for the drug testing it’s really nothing to worry about. Psychedelics are metabolized and excreted very fast. For example, psilocybin and Psilocin the two active alkaloids in mm they would test for, clear your systems in less than 30hrs and 5 hrs respectively. So unless you dosed, went to work the next day and had an incident warranting a drug test you will be fine. Even then it is a special order assay and is rarely done. If I was you I’d dose when you had at least the next day off if not two. I am a PA and when I go back to work (when I get my CH under control) I’m not sure what I’m going to say when docs or people ask me how I treat them. I may just say alternative medicine or I may just tell the truth. I know of two people on here that work for the GOV or department of corrections, people with friends that are police, judges. All their bosses they have told have been supportive and encouraged them to try what ever they had to. One of the CHers did experimental brain surgery before trying mm because he was so anti drugs and didn’t understand psychedelics. I wouldn’t tell an employer I used LSD but I’d be more inclined to talk about the mm if I was pressed about what kind of alternative medicine I used. You have to judge your bosses. Have they ever witnessed an attack. Do they know how much you suffer? When I told my parents I remembered seeing a 60 minutes piece on CH and MM some where around 2010-2015 despite being anti hallucinogens from all the misinformation out there, they said do it. What ever it takes, but they see me every day in agony. The CHers I mentioned that had the support of their bosses and friends had all witnessed bad attacks. I’m mid hit and having trouble focusing so I’ll cut it there. Food for thought... brian ***i have to verify that this is the correct dr my friend recommended. I’ll post what he tells me ASAP. I thought he said young was the director but he’s not. I think I mixed up his old doc there with the new doc he’s going to see in the future.
  22. Are you chronic or episodic? Are you taking sumatriptan pills or injection that stopped working. In general the pills are worthless and the injections or nasal spray are the best routes of administration. What dose of verapamil are you on. Quite often it requires doses in the 800-1000mg/day. You need to be followed by a cardiologist and see them after each dose increase to check your EKG and blood pressure. As for the oxygen we have found that the standard 15LPM is not enough for a lot of CH patients. A lot of us buy our own regulators that go up to at least 25LPM. I wouldn’t count the oxygen out until you read up on it here. Sometimes technique makes all the difference. Some people hyperventilate and have better success. I myself found much more relief with the 25LPM flows. If you need links to some affordable well made regulators let me know. And finally we get to alternative treatments which is what this site is all about. Click on the new users blue button at the top of the page. It will lead you to links about busting. Once you’ve read that stuff make a post in the theories and implementation section with any questions you may have. The alternative treatments are a very safe and effective way to abort a cycle or even prevent one. Brian
  23. Thanks for sharing Paul, when I watched my first couple of people getting an attack I said to my mother (I currently live with my parents) is that what I look like? I don’t look that bad. And much to my surprise she said it’s just as bad in a different kind of horrific way. She in particular worries about the pain I have to endure. It doesn’t matter how much I tell her I will never be suicidal she just worries about it. I see a psychologist on a regular basis, once a month to every week depending on how I’m feeling. Honestly since I’ve been dosing with mm (magic mushrooms) for over a year now I will only get a hint of depression here and there. I also think it helps with the hopeless feelings as I rarely get those thoughts either. Despite knowing my options for treatment are very limited. As for the emotional part I hadn’t been able to cry for over a year until a couple of weeks ago (I’m 18months since my first CH and I’m chronic). Then my mother told me about how her dentist asked how I was and she told him I was battling CCH he winced and said “he’s been through so much, I’m so sorry...” and I immediately started balling. Since then I’ve been fairly emotional at times and I try not to break down in front of my parents too much. When I look back at how much pain I’ve endured since I was 14 (I’m 40 now) it seems Unhuman. From serious third and second degree burns, bulging cervical discs, burn scars crushing my spine, the list goes on all in all 25 plus surgeries since 14y/o. But all that pain has prepared me to deal with the CCH (the worst pain of them all). Take a look at my post history to see more, I’ve rambled enough. Plus I have mad a few threads about mm cultivation with links. There are several ways to cultivate. Another option that may be better for you since your cycle has already started is to try LSA contains seeds. Click on the new members button at the top of the page there is a link to more info.
  24. @Pcaola besides being a place to learn and share about busting, this is a place to come when you feel low or desperate. This site has given me inspiration. Just knowing others have made it through decades of CH and how much psychedelics can help. Plus I have found in life there is always some one that has it worse than me and I have learned so much from them. Don’t ever apologize for venting/ sharing your story here. We have almost all been there.
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