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Everything posted by Freud

  1. What’s beer? Lol haven’t had a sip in 2 years. Man I used to live a good high alcohol content craft beer.
  2. Freud

    Newb here

    @jost it sounds like you’re using imitrex pills. In general 95-99% of us don’t get any kind of relief from oral sumatriptan. The injections are %1000 times better. Most insurances will cover 12 injections a month if they cover injectables. You ask your Dr to write for the 6mg auto injections and search you tube for splitting injections. You can get 2-3 doses out of each one. So you could get 24-36 doses per month. Most importantly oxygen is the number one abortive in my book. Frequent Imatrex use is reported to increase severity and amount of attacks. I save my injections for important days like family events or for the kip 10s (search the web for kip pain scale) that won’t break with the oxygen. You need high flow 100% oxygen at a min of 15-25LPM. So you go through it pretty fast depending on how many times a day you get hit and how long it takes for the oxygen to work. My CCH (chronic CLuster headaches) used to abort after 2-3 min of oxygen and I stay in for 10min total. To avoid a partial abort. These days for the kip 8-10s it can take 10-30min for them to break, but that’s still probably faster than the oral Imatrex. Btw the injections work in 5-10min. Look around, the search bar is your friend. If you want to know more about busting and have read the new user stuff make a post in the theory and implementation section. Or any where except the general/ public board i wish you luck, we’re here to help brian
  3. Freud

    half time

    I experience this too, totally sucks. I’ll go on O2 during a kip9-10 and then it subsided after 20-30min of O2 (I’m running through a M tank a day right now). Just when I think it’s broke I sit in O2 5-10min more and it’s gone. Then all of a sudden wham... for my kip7s and 8s that usually doesn’t happen.
  4. What part of the country are you in?
  5. I’ve been told that the vials are no longer available. Here in the NE the distributors don’t have it. I tried several pharmacies from the big ones to Mom and pop
  6. That’s what we’re here for buddy! I’m going on 18months into this wonderful CCH shite. Although my pain and CCH are far worse now than they have ever been some how most of the time it’s easier to deal with and accept. May be because I’m waiting to be detoxed in feb so every day is one day closer to these psychedelics working. I have my moments don’t get me wrong. Like last night, my 3rd attack from 11p-3am wouldn’t abort on oxygen and I just couldn’t take the 10 so I caved and used an injection. The 9-10s have me saying this isn’t fair, why me... but once I get it to break that stops until the next one. I think my lack of depression and anxiety (I do get anxious from time to time) is because I haven’t stopped dosing at least once a month. As far as non CH cervical pain goes I’ve been there too and that is wretched as well. Fortunately in 2017 I had 5 revisions on my cervical burn scars and they stopped my scars from crushing my spine. I had put it off for 10-15 years mainly bc it’s hard to find a surgeon. Just after I fixed my neck the CH started. Both at once must be tough. Anything I can do to help just ask. Almost forgot the daily max of injectable sumatriptan is 12mg you could do 4 injections of 3mg/day. Zembrace is half strength sumatriptan injections so you can take 4 a day. Most insurances that will cover it cover 16inj/4 boxes a month. Most people get 12 6mg injections per month of full strength. So you get much more to stretch out if you break it down. My new insurance only covers 50% of any of them so I’m just using what I saved and an episodic friend from here has been nice enough to share some of his. best of luck ramble over lol Brian
  7. Here is a link to what I think is one of the newer injectors. https://m.youtube.com/watch?v=0YZ4tenH-ug you have to search YouTube to find the one you have but this is the easiest way I’ve seen it done. Hope this helps brian
  8. Start Here https://clusterbusters.org/forums/topic/5874-alternative-grow-methods-for-mm/?tab=comments#comment-58716 this is only one method. Others here use the PF tek. You can search here for that with the let’s grow mushrooms videos
  9. Hey 357, your best bet is to make a new post in the theory or my story section about your new HA (headache) symptoms and see what kind of response you get. There are many here including myself that get both CH and migraines. I don’t get migraines too often but it’s not fun. My clusters used to scare away the migraines but lately I get them both at the same time. I am chronic CH and get may be 1-2 migraines a quarter. My imatrex injections sometimes help. But I use them very sparingly. @MoxieGirl gets quite a few migraines and has some interesting treatments ie. Vodka. Lol. Not an option for a lot of us but she swears by it for herself. Hope you get relief soon B
  10. My doctor wrote it for me last appointment as well, Lilly will cover $4900 the first year. Total cost of the drug the way my doc wrote it is $7,800+. I’m not sure why after the first dose you took more than one injection per month. The literature supports a double dose the first dose then one does every month there after. Any idea why your doc did 3 injections the third and forth months? what kind of results did you get? (Edit: after rereading your post, if I’m understanding correctly your CH did not get better but you got a few good nights of sleep? )Are you in remission or did you just get the 50% reduction in CH as most of the ECH patients did? edit: I decided to wait on the trial until I’m detoxed in February and I can tell if the psychedelics will work or not. I figure if it’s the only real option I have left than I’m going to only try it if mm/lsd... doesn’t work.
  11. I suggest you talk with your headache dr who writes for the lithium and ask them to ween you off of it. This site has some interesting info: https://mentalhealthdaily.com/2014/04/24/lithium-withdrawal-symptoms-list-of-possibilities/
  12. Woah!!! You’re putting the cart before the horse if you’re on lithium and you’re close to busting. YOU CANNOT BUST WHILE ON LITHIUM!!! Lithium can potentiate the effects of all psychedelics and can lead to an extremely dangerous cascade of events. Are you on it for CH? The med I was referring to was not for treating CH it is for bipolar disorder primary feature mania. It’s called invega trinza. It take 16.5 months to be eliminated from my system. Not all meds that don’t play well with mm are blockers case in point lithium. As far as the mm go those are dry weights used here on this site. Dry wt is aprix one tenth that of wet. So if you have 100g wet you will get 10g dry from it. So if you wanted to use wet/fresh mm to bust with you would use 10-15g wet. You can make tea with wet mm just the same way as you do with dry mm. You just need to cut up the mm finely with a knife. I find eating them wet to taste foul. Dry I can munch the shit out of them I just prefer the tea bc it hits you in 10-15 min rather than 30-45min if you eat them. I discuss the use of psychedelics with all my docs, they are all supportive. My headache doc was offering me the Yale study but I told him my mm were almost ready during my first appointment with him. Almost forgot all of the strains you have should have similar psilocybin levels. Penis envy, albino penis envy, KSSS (a Thai strain), and non cubensas psilocybin contains mm are stronger than your average cube As as far as your questions about relief everyone gets different results, there are averages and extremes. On the extremes you get those that get a few days to a week pain free (PF) from a bust, then there are those that get 6-12 months PF up to years is the longest I’ve heard. There is no doubt they work and in my opinion have the best success rate next to the Vitamin D regimen.
  13. @FunTimes hit it on the head the extreme reduction in stress is a huge trigger I have seen come up on the boards a lot. Prednisone comes with its own set of risks. It doesn’t do anything for me plus I’m chronic (can’t keeo taking it) so I’m not sure if I’d take it if it worked and I was episodic. Funtimes probably got his avascular necrosis of his hip requiring hip surgery from taking steroids and he said he’s only taken them 2 times in the last 6 years I think. It’s one of the more rare adverse effects but it does happen. The link often gets missed because it can take months to over a year for the dying bone to cause pain and require surgery. Vitamin D and oxygen plus busting are the perfect trifecta for most of us. Clusters are always changing, no two people are the same, and you don’t always respond the same to a previous treatment. Good luck and pain free wishes to you!
  14. Unfortunately AVN of the hip can happen after just one isolated use of steroids. It’s rare as shit but check out this case report. Guy is 42... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4837136/ This article is 3 pts I think with migraine and AVN of the hip and corticosteroid use https://www.researchgate.net/publication/6383888_Steroids_and_Aseptic_Osteonecrosis_AON_in_Migraine_Patients All I can say is fuck man we keep winning the lottery on these conditions. Not that they compare in the slightest but since I know you take verapamil as well I’ll share my recent AE (adverse effect). As we’ve discussed i was on 800mg divided into 5 doses so I don’t get blurry vision (I would have been on more but I get blurry vision over 800mg). Besides the blurry vision I never noticed another AE. I’ve been slowly gaining weight despite not changing my habits. Couldn’t figure it out. I had a little stomach but nothing more than a 5 or so pounds over wt. But my belly has gotten huge for me in the past few months. So last Saturday I noticed I started getting edema in my lower extremities, Sunday legs were huge. I realized my abdomen was full of fluid as well and that what all the extra wt was from. I’m 99.9% sure I got CCB (calcium channel blocker) related peripheral edema. I say 98% b/c I have not got labs or seen my cardio. I talked with him on the phone and he agrees with my diagnosis but I couldn’t get in to see him until next week (I found dad half dead in bed with respiratory distress last Thursday and that has consumed me, he is ok now...) The fluid on the abdomen (ascities) is not well documented. However my cardiologist said on such an overdose of verapamil it doesn’t surprise him. Max cardiology dose of verapamil is 320mg. So we are all truly over dosing on it to get results. I never looked at it that way. Long story short I don’t have heart failure, renal disease or liver failure so it’s the CCB. I’ve got like 20lb of fluid on me!!! I halved the verapamil with no consequence and am going to rapidly titrate it off from here. Cardio said 80mg a week from here, but I’m getting a BP cuff to ensure I don’t get rebound hypertension and am weening it down every 3 days to off. I now have a new appreciation for my heart failure patients with all their edema. Sorry if I hijacked your thread, but I figured a significant AE that could apply to you one day may be worth sharing you can get CCB related edema on lower standard doses as well... sorry for the ramble I’m only getting 2 hrs of sleep a night if I’m lucky, and that leads to wordy posts off topic lol Best of wishes for your surgery and a speedy recovery! sincerely, Brian
  15. Hey FT, I was thinking the same thing you’re awefully young for a hip. Have they told you you got avascular necrosis of the hip?
  16. Hey, Mr is my father. Nice to see you’re having success. You want to harvest just before the veil breaks or just after for max potency and make sure they don’t drop spores and over grow. They will just look unappealing but work fine if they go to long. At any rate your question: For most people a standard chronic abortive bust goes as follows 1 make sure you’re not on anything that can block the mm from working ? Do you take any “triptans” ie. Sumatriptan/ Imatrex? Any psych meds either for on label or off label use? Topamax, lithium, just to name a few 2. You’re going to need to obstain from the drugs in 1 until you’re detoxed (5.5 half lives, google half life of your drug and multiply by 5.5 to get elimination time then divide by 24 to get number of days. ). Except for triptans/ imatrex, you need 5 day detox. The bust: as a rule of thumb most people require what we call a threshold dose of mm. One where you feel the effects (body high, all smiles, buzz going on, vivid colors, shimmering shadows) but not a dose so strong that you’re actually tripping. This can usually be achieved by taking 1.0-1.5g of mm. You should take them on a fairly empty stomach, I make a tea (mm hit faster and stronger, effects may last a little shorter). This will usually result in a 3-5hr experience. To bust properly, you take a threshold dose 3 times 5 days apart. So if your first bust is Monday your second bust would be sat, and the last bust the next Thursday. Since you are chronic it can take more than 3 busts to tame the beast. Once you are able to achieve a remission your next challenge is preventively dosing so you prevent them from coming back and stay pain free the whole time. Some people wait for the CH to return but myself and others would rather dose once a month to once a week (everyone is different) to keep the CCH away. It seems rare to me but Bob and others have reported six months to a year remission from one round of busting (3 doses 5days apart). My story and lack of success has to do with a blocking med I was on but I plan on dosing once a week to once a month when I’m finally detoxed to prevent the beast. It’s easier to prevent than abort. Hope this helps ask any questions you might have.
  17. There is very little they can do to taylor the anesthesia. They use meds to raise your BP if it drifts down in response to anesthesia and I suspect these meds act like the epinephrine in the numbing agents at the dentists office and cause vasoconstriction. If they need to raise your blood pressure and they don’t want to give you fluid to raise your BP (they do both) then you need the drug. You can ask if they are going to put in a numbing agent (many do after surgery is done to decrease your narcotic needs) then ask them not to use anything with epi in it. I’ve had surgery since I’ve become CCH and I did not get hit after surgery both times. I would have no reservations about asking for injectable sumatriptan to be sent to the OR Incase you emerge with a CH. then the med should be sent up to the floor you’re going to. Some hospitals have regulators that go to 25LPM but respiratory therapy usually has to hunt them down. Err gotta run and cut this short. Will BBL if I can add more
  18. Just because it doesn’t cross the brain blood barrier doesn’t mean it can’t be effective. If it exerts its effectiveness. systemically on circulating CGRP thus lowering the total concentration in the body
  19. @Frilling emgalitiy is a preventative not an aborter for an acute attack. In the emgalitiy study they found that 70% of the users saw a 50% reduction in HA. Hope you’ll be the lucky one it completely gets rid of the CH. keep us updated.
  20. I’ve felt that way about my neck and back but your legs get knitted up? Sorry I confused this with another post I had in my mind...
  21. Ok you’re best bet is to click on the new user button at the top of the page and start there. But D3 is Batch’s vitamin regimen it works for a lot of people. Look up vitamin D3 wiki in the search field. MM is magic mushrooms any mushroom containing Psilocybin. Kip is a pain scale just for clusters. Google KIP pain scale.
  22. Many here have tried CBD with no success, what strength is one bear? It could be coincidence too. Clusters are funny like that.
  23. If there is anything I have learned about CH and people in remission and changing CH is that coincidences are common. Wether it’s a wackey “cure” someone thinks they found only to have their CH return the next year and the same thing not work at all. CH is always changing. It’s a crazy coincidence that he got one the same day. It’s stastically crazy that your wife got them and you knew some one that has them. There are only about 400k people in the US with them. I have a friend that went the welding O2 route and it just so happened the guy that owned the place has a son with CH so he could talk freely about what he was going to use it for. I mean what are the chances. I’ve won the lottery on a lot of medical problems and I thought my chances of winning the lotto are better than getting Chronic CH but here we are.... sorry your wife is suffering. Have you clicked on the blue button on the top of the page to see what this site is all about? There are other good options to get rid of the beast or prevent it in the future if you know when your cycle starts.
  24. Freud


    Like I said I get my O2 friom Apria. Would you like the number I call. I’m on the east coast but the policy should be the same!
  25. Freud


    I live in NJ and use Apria, that is definitely not their normal practice. My Dr filled out a form faxed it in and wala I got O2 no problem. The delivery guys are great. I have many tanks besides the 3 M tanks they know I have. I recommend calling Apria and get some one on the line from CS and just keep escalating up the food chain to some one that can help. Apria has been great for me.
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