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Everything posted by Freud

  1. The moral of the story is never leave your house with more than 20g to be in the safe side including the bag... in NJ it’s up to 5years jail. Freaking crazy.
  2. So I just watched most of this video and I’m about to finish it. I know there are several people from Australia that I’ve seen here. I don’t know what my local laws are in mm but this guy almost got 25 yrs for possession. It’s sad that it’s our medicine and some of us require higher doses thus higher amount of stockpiled mm if you have to dose weekly like some of us. Hopefully CA, AZ, and Vermont pave the way for legalization in 2020. Click here to watch the YouTube video
  3. This one is for the smaller E tanks, I suggest asking for a few of these so you can travel with them. I keep one or two in the car E tank 25 LPM regulator the large M tanks is what I use at home this is the regulator for the M tanks https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator-CGA-540 when buying them make sure you pick the 1-25LPM regulator. This company may be more expensive than some you can find on amazon. But I have found the cheaper ones made in China say “brass where critical” and the Farley regs are made with all brass.
  4. Hi Mrskgood, welcome, sorry you have to be here but this is probably the best CH resource out there. As CHF states the blue button is a great place to start. Many of us “bust” but not all of us for different reasons. You can find info on non busting remedies like Batch’s vitamin D protocol and the gamma core device. It sounds like your doc has you started on the most appropriate first line treatments. Your verapamil may need to be turreted up to a high dose as high as 1000mg for some of us. You need serial ekg’s and is best to be followed by a cardiologist while titrating. Your dose can be increased every 10 days or so. Oxygen will be your best friend and most of us require flows at 25LPM (requiring you to buy your own regulator online I buy from wtfarley I can help you narrow down which one if we know what size tanks you have). The other thing some of us use is imitrex injections. Pills are usually useless for CH but they should be used sparingly for higher KIP level CHs. Search for KIP pain scale which was created for CHs. You can get rebound headaches from overuse. It is also accepted here that too much imitrex increases frequency and level of pain. Edit: if you are getting sumatriptan injections I suggest asking for zembrace. It’s sumatriptan but it’s only 3 mg per injection so you could use 4 a day if you get a particularly bad day. Most insurance companies will only pay for 4 boxes (16 injections) a month.
  5. Sounds good FT, I’ve had a lot of prep to deal with this CCH. 25-30 surgeries since 14 (I’m 40now). It has truly made me the man I am. And a great physician assistant. I could do without the adult onset Bipolar and the ptsd that came from the few years I was manic and in denial making horrible decisions as well as the CCH the last 18 months. But I’m glad I got it and not my sister or parents. They for sure couldn’t handle it. You are an inspiration to me, I’m still hopeful I’ll get it under control with psychedelics in 8 months when I’m finally detoxed but if I can’t were in this together either way! For 15 years I did pediatric and adult heart surgery, I thought I’d finish my career doing that, it defined me to the core but now I’d be more than happy doing a mindles speciality like dermatology. Great pay no call no more 60-80hr weeks sleeping in the hospital killing my neck and back doing 8-15hr surgeries. I’m ready for what they call a OMGWTFBBQ job. Copy that into google. Lol. Looking forward to it FT. The market I was talking about is the reading terminal market...
  6. So I’ve broken both heads off of my radius and ulna, had an s fracture with displacement very close to a compound fracture. I drive home from the skate park woke up my parents and said “I think it’s broken.” My father was like “are you an idiot, it’s broken”. In my late 20s I broke a bone in my wrist and dislocated my elbow (that hurt, especially when I put it back in place but still not as bad as a kip 2-3). The only pain that I have experienced that registered any where close to a kip 7-10 was when I was burned (22% face, neck, chest, and shoulders). I spent 2-3months in the Burn ICU where daily they take your bandages off in a special room and peal/pick at the dead tissue until they get to the healthy stuff. They load you up with IV morphine and valume, which does nothing as soon as they start to take off the bandages. You hear people screaming bloody murder all morning long as each pt in the unit gets their turn. I would pray for god to take me in my sleep. Never happened... The funny thing is my CHs are more painful and I have never prayed/wished to die like that. I’ve thought if my POS shit car falls apart while I’m doing 90to get home to my oxygen if I don’t have a tank with me it would be a blessing. But that’s as close as I’ve gotten in my negative thoughts. I’ve told that to my psych and he says that’s perfectly normal. I’ve also had a thoracotomy (incision between the ribs for lung surgery) which is supposed to be the most painful incision in surgery and although it hurt real bad it’s nothing compared to CH. All in all I’ve had a lot of “painful shit” and nothing compares to a kip7-10. We truly won the lottery with this crap.
  7. Thanks again as always CHF. I wish it would come up in a search for just cluster headaches. If you don’t know about “busting” and alternative options and specifically search for mushrooms and CH it can be hard to find. That’s what I meant...
  8. Just checked amazon and the 540 regulator doesn’t come up. Sorry
  9. Sorry I didn’t see this thread it may be a little late but amazon has returns if you like this option better. I have recently bought two regulators from this CO WTFarley one 540 25lpm and a regulator for Etanks that goes to 25LPM. The first I bought direct. The second one I searched the product code in prime and it came up. Price was a dollar different but I had amazon points to use so all I payed for was shipping. I went with this company bc if the quality of their products. I could have bought a 25$ Etank regulator but even the product description sounded cheaply made. I haven’t included the amazon links but I think you got that covered it’s late and I’m mid hit. A lot of my posts are mid hit and I try to chime in here when I’m down for the count so to speak. Given that 9-18hr of my day are during a hit. The rest of the time I try to sleep and do something that make me feel good or study. Hope this helps. Brian if you can’t find them using product codes from the Farley site on amazon let me know. I didn’t search the 540 reg there but I’m assuming it’s available. The E tank one was.
  10. I agree with the original poster to some degree about using the general board and the unspoken rule of not talking about busting, mm or any of the other methods there. After all the site is called clusterbusters. I have made numerous posts with lengthy explanations on how tos with out getting into details and I still spoon feed those that come and refuse to use the search feature when I tell them exactly what to search for. To do as the original poster suggests in every post is a little much. The regulars do a lot of hand holding and repetitive posts for newcomers. It takes a lot of time as is for some of us so a little direction and encouragement on what to search for and to make a new post in the appropriate section with questions seems more than reasonable. I think a lot of people that find this site come from seeing bobs videos on YouTube. That’s how I found it. I have yet to see clusterbusters come up in a web search for CH on any search I’ve done.
  11. I’m with you on that one, broken bones don’t even compare. This ch shit is downright wicked.
  12. You couldn’t be further from the truth. I’ve suffered many medical problems. From having 22% of my body badly burned spending 6 months in the hospital having your skin and flesh peeled off every day down to bloody healthy tissue ( and I begged god to take me in my sleep every night) to having my hand and arm mauled by a dog and getting infected requiring multiple surgeries. All in all I’ve had over 25 surgeries from the age of 14-40 and the last 2 years with chronic CH doesn’t even compare. I’d rather have my skin and flesh picked off for hours a day then suffer with the 4-8 attacks I’m currently getting. But I agree with others here no one can compare their pain to yours and visa versa. It is well established that CH is the worst pain in medicine. May be you’re lucky and the CH you may or may not have ( its unclear to me from the sum total of your two user names and comments that you have the same thing as many of us). But I don’t judge, you shouldn’t either.
  13. It is GHB aka the date rape drug... my dr mentioned it as an option at my apt yesterday. Not really an option for me.
  14. I’m guessing they are DHE infusions. I have no experience with them. Perhaps some one can chime in.
  15. Thanks buddy. I’ll check it out and let you all know what my CH doc has to tell me about it when I see him Thursday...
  16. Will do buddy. I’m going to stay off the trex tonight and bust any ways tomorrow. I can afford to waste the mm. I need to get back on my bipolar med. I can do another detox if needed.
  17. For now I’m ok on the shots. A buddy is filling his while he gets his 2-3 yr break. It’s only these new crazy ones (they are all crazy but you get it) I use them for. Before this I was able to go a long time without. I’m an idiot though. It just dawned on me I have been detoxing from my bipolar med to bust but I used shots 3 times in the last 2 days. Friggin amature move but in the heat of the moment I wasn’t thinking straight. Shoot I crawled to the draw I keep them in if that’s an indication of my state. Sorry just dawned on me. At any rate. I’d love to find out how to get quality frankincense. Thanks in advance FT!
  18. Freud


    I have thoroughly enjoyed the convo this started...
  19. Freud


    It’s real interesting what comes up if you search “cure” Click here 26 pages! I only got through the first few but it’s real interesting.
  20. Thanks CHF you’re a freaking wealth of knowledge. My parents are super supportive in every sense of the word but other than a simple web search one day reading and then explaining the nick name at dinner. They just rely on me to do all the research. Probably bc I have a medical degree... I am so grateful for them but you are a saint! Edit:For the community as well! You are such an asset for those that come here. For some one without CH your dedication is admirable!
  21. I like these myself don’t know if they have a medicinal value but for a treat this type is nice. I have never had this one but it’s unsulfered. Amazon link crystallized ginger chews any thoughts?
  22. I would insist it, especially since you’ve talked about third line agents. That’s crazy! I would go armed with a copy of the study that proves it works and bring literature that shows it is the number one abortive TX. Some one here can help with links I’m sure. I don’t have or know where to find them. I’ve seen them posted. If I wasn’t immediately post hit I’d search... sorry
  23. I delayed for ten months and it was a mistake. I could have stockpiled more injections. I like you thought it was going to be a fight. And I’m sure it would have been the way the first moron neuro ( called himself a headache doc) doc I saw wrote the script. No Diagnostic codes scribbled on a regular script actually wrote for a rebreather mask! When I finally got into my new world class doc I travel 3.5hrs to see he just grabbed an Apria healthcare form and filled it all out, wrote the codes and wala 5 days later it was here. So you may be surprised. See if Apria is in your area and try and get the new pt form to help facilitate it. I know they cover the whole east coast may be west coast too. It’s so worth it. You can get M tanks for home and E tanks for traveling. So far it hasn’t costed me a dime they do same day and next day delivery. I have called for a refil when less than a week has past and expected to hear my insurance rejected it but so far nothing! I do recommend getting the 25lpm regulators I bought mine from https://www.wtfarley.com they sell on amazon as well if you have points to use it’s nice. Just put in the part number on amazon and it will come up.
  24. I found this site earlier, going through it now https://smarter-reviews.com/lp/sr-boswellia?tr=A3GPo&gclid=Cj0KCQjwkoDmBRCcARIsAG3xzl8RBH7bnjXCjpmi1tODzfqd_zx0qEChp03vQqvWiS_DPi89cX33lr8aAmc1EALw_wcB
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