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Posts
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Everything posted by Shaun brearley
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S_ it did it twice sorry
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Im having same problem can't seem to copy from youtube to post on here
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Help Needed! O2 Prescription in Toronto, Canada
Shaun brearley replied to kmel2's topic in General Board
How many have they given you , As CHF has said you could really do with the larger M or H tanks as the E tanks only last for 20mins i get an hout out of my H tanks . Ive managered to get my oxygen nurse to prescribe me 5 H tanks and 5 E tanks so im not on the o2 supplier all the time . Make life a litte easier -
Masters of the universe such a good tune !!!! . My missus has just come up with Blockbuster from the sweet . Lol she did say sorry after saying it . Just a play on words
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Sorry i know im a bit weird but i listen to hawkwind when im on a trip . As for getting rid of CH ????????
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Topiramate is am epileptic drug mot the best drug in the world buddy . I had a rew side effects when first taking them i bit of short term memory lose and things seemed to sliw down a bit , but after a while things got better or i just got used to it or my brain just got mashed by it dont know really , i hold down a decent job so can't be that bad
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Have you tried Topiramate as a preventative Axel , not saying its gonna work for you buddy , but ive used it for years know .im episodic and i have missed a couple of cycles ,again im not saying its down to the Topiramate but as i wasn't on any other meds i couldn't put it down to anything else , and of course my neurologist jumped at the chance to credit the Topiramate with me missing a couple of cycles
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Sorry to say but your gonna have to forget about the cost and get OXYGEN!!!!!!
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Scuba diving and cluster headaches
Shaun brearley replied to Fcharp's topic in Migraine General Board
Wow this weird i managed to obtain my PADI certifcate in Mauritius in 2017 whilst on holiday can only dive up to 30 metres at the moment , but thought that id never be sble to really stretch it any further due to CH interesting -
Had loads bosco. docs seem to think they will find something new everytime they give me 1 for some reason . Idiots really but if it makes them happy
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Mri lol i hot mixed up i was on about ct scans idiot
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You never had mri scan xboss wow . . First thing i had .ive had this for nearly 40 years now and the docs over here still insist on giving me then . I think they are still looking for a brain Ive had about 15 i think ive lost count
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Shit damage to the brain . I wont tell the missus . She already thinks im mad . That will just confirm it
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As ive said in a previous post on a different subject when im at home my attacks are regular every 3 hours but im relaxed at home . When im at work im highly stressed and that seems to keep the beast away . So I'd say that changes the times of my attacks for some reason . I have stayed awake all night to try to reduce my attacks as that when i get hit with my worst attacks but it didn't wirk for me 0135 every morning the beast would hit me with aa 3 hour kipp 10 kicking me round my bedroom . Got to the stage where I'd set my arlarm for midnight so i could go down stairs so didnt wake the rest of family up