BoscoPiko

Hi Jimmy, The 240 a day is most likely to low to help much. I am on 480 and take two in the am and two in the pm but I usually have day time attacks. Many on here have mentioned that the rapid release is more effective than the extended. If you are on the ER you may want to talk to your doctor about swapping to RR as it seems like that may be more effective taken in the evening to keep the night attacks at bay.

I'll start by saying I haven't lived in any of these places except Humboldt County (grew up there) but did a quick net search for what that's worth.. Cape Hatteras, North Carolina-Up side= 83 most of the year. Down side= high hurricane risk Humboldt County, CA-Up side very little weather variation normal temp in summer 70/80, lots of outdoorsy stuff (Home to Avenue of the Giants, good fishing and hunting, on the ocean and quite beautiful. Down side-It's California (the land of regulation) Galveston, Texas-Up Side-Normal January low temperature: 49 degrees/Normal July high temperature: 89.6 degrees Kahului, Hawaii-Up side-Normal January low temperature: 63 degrees/Normal July high temperature: 87 degrees. Down Side-Super spendy (never lived but have been many times prior to CH)

Agree with @Rod H. Your words do resonate and certainly paint a picture most of us cluster heads have lived inside of. Any outlet (healthy outlet), is a welcomed distraction from our realities when in cycle. I hope this cycle passes quickly for you!

Forgot to answer the stopping verapamil question. It won't hurt to stay on it while doing the reg but if you feel the verap is not working you could slowly ween of it (maybe consult your Dr. First). I'm on 480 mg of verap and do the D3 at the same time. The D3 has by far given me more relief. GL!

Hi Shaun, When I first started the D3 regimen Batch had suggested 100,000 IU a day for 12 days and then drop back to a maintenance dose of 15,000 IU/day with the oil-based liquid soft gel vitamin D3 formulations or 100,000 IU/week with the Bio-Tech D3 50 50,000 IU water soluble vitamin D3. Additionally you will need to take all the co-factors see below. Here is a copy and paste from some of his protocol overview and the link if you want to sift through it as well: https://vitamindwiki.com/Cluster+Headaches+treated+by+high-dose+Vitamin+D%2C+etc.+(interview+and+transcript)+-+Feb+2022 Hope this helps get you started!

Nope it sure can't! We take her to 3 or 4 parks a day so she gets some out and about time even if she isn't willing to get out of the car yet. We have the back of the rover set up just for her. She is an old gal but deserves her last few years to be happy ones.

Hey @Bejeeber, She is finally out of the cast as of last week and into the boot! She is getting around on it pretty darn well. She will have to stay in the boot for at least six months but it is so much better than a cast. She now uses a ramp to get on our bed. Yes.... a REAL bed! We are big timing it now days

Hey @spiny, Yes you are correct that they cover it but only if I follow their so called protocol and try a bunch of things I'm not willing to. They told me the next thing I needed to try before it would be approved was a nerve block and I'm just not ok with that.

Not yet @Shaun brearley it takes a bit of time but I'll let you know if there is any improvement on my resting BF here in a while

Hey @spiny, yea they did tell me it would take a minimum of 10 days. Not sure how reversible my resting BF is but it was worth a shot. They used 50 units so I should have some noticeable improvement. Two birds is always great The cost is not real sustainable but I have been curious for some time so I just went for it.

Hi everyone, I wanted to take a minute and share some of my efforts to battle the bunny. I have quite a few stones that have been left un-turned but today I turned one more. My insurance is dreadful even though I have the best I can get. I have been curious about Botox for some time and decided to just pay out of pocket today (not 100% for CH mind you (middle aged chic here), but a mixture). I went in with pretty measurable shadows. The process was easy and less painful than i had anticipated. The end result that I'm sorta excited about is that my dancing eye is gone and my shadows were lessened! I couldn't tell you about how it effected my CH as I don't believe I'm in cycle, but the minor pluses count in my book! I don't think it will help with a cycle to be 100% honest but it has helped me to stop winking at every passer by. Not much but something!

Well I did a search for CB tee shirts and initially a few images of actual folks wearing the seemingly real CB shirts popped up, then I clicked the shop button and this is literally what came up.... LOL Sorry but I guess we have to go to get an actual shirt... IDK something tells me you wont be sporting this on your next fishing trip @Rod H

I think you look great @Racer1_NC but I find this meme relevant to my life... 

Well my guesses were a bit more exciting LOL... This pick had me thinking they were mind boggling questions

Now I'm un- healthily curious about what was being asked on those cards...

So jealous of you rt now!

I'm doing pretty good since incorporating food first. Still on a bit of a higher dose of D but have started to decrease that as well. I did another dose of RC the other day and seem to be responding well. Each day that I ate first the shadow lessened up so I really do think that the food was a major part in getting back to normal (if anyone believes I can be normal lol)..

Hey JPD, Wish I had an educated answer for you but I don't however, I've never read anything about a cholesterol lowering medication rousing the cluster bunny. A 3 and 1/2 year absence is a good stretch! Anything special you could share about what you were or were not doing during that time to keep it at bay? I hope your cycle is short!

It's better. I was just aiming, never pulled the trigger

Love avocados! Nice suggestion jeeb. Here's to prayin that A hole hops along!

Well I suppose that I can somewhat confirm that I was indeed aiming a sawed off shot gun at my foot by not eating with the am supplement intake. For the past three days after my post, I started to reluctantly get something down in the morning prior to taking my supplements and the shadows have lessened each day. They are not gone but more bearable. I've had to stay on an upped dose of D3 for now but that's not so unheard of with regard to encroaching cycle time. I have a few days left before I can do another RC dose but I will as soon as I can because I feel like I am definitely playing defense. Anyhow I hope everyone is staying in the clear!

Well @Bejeeber.. I was sorta thinking of doing duck lips and kissing every mirror in my wake. Good old poop stamp never fails the shock factor now does it

Lol I never even thought about the density and the fact that I would only have to get a little down to coat my stomach and supply the fat content for proper digestive processing of supplements...Brilliant idea.

Actually that's a great idea! Thanks @Rod H