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Found 23 results

  1. I just saw a Shark Tank episode for a company called "Boost Oxygen", which sells small canisters of 95% O2 for low cost. They got into the business by selling to skiers (high altitude). Has anyone tried these for CH?
  2. Saw in the video how demand valve can help conserve Oxygen. Cant figure where to buy it in US. Cant find anything online. Anyone bought it ?
  3. Hello Soldiers, Oxygen is without a doubt number one when it comes to CH treatments. I have seen a number of posts from people newly diagnosed who have trouble getting oxygen, so i thought i might share my experience and resources. At the moment i do not have medical insurance. Im not sure...
  4. Hey everyone -- I am just getting into a bad cycle, and unfortunately, have work travel to New Orleans from this Friday to next Thursday (Aug 9 - 16). Oxygen is my lifesaver, and I'm a little panicked trying to find an oxygen supply while I'm there. I'm hoping there is someone in the New O...
  5. Hi All After a lovely 2018 remission from cluster headaches due to pregnancy, I think I’m starting a new cycle. Shortly before my pregnancy -with great difficulty-I managed to get oxygen which was sitting in my garage ready. I have about a 95% success rate with the headache either going away s...
  6. Hello everyone, I found this site a few weeks ago and have been very much appreciating all the wonderful information and advice contained within. It's also very nice to know there is a community of people that have been going through the same types of things. Much love to you all! After tw...
  7. Hi CH fam - Last week I convinced my neurologist to prescribe oxygen for me. I've never tried oxygen for my CHs before, and I'm praying that it works so that I can ease off the Relax, which I'm taking every day. My neurologist told me was going to prescribe an oxygen concentrator. I just googled thi...
  8. Hi everyone, I just found and joined the site. I will make a separate post describing my own CH experiences, but i'm on a phone and that would take too much effort for my thumbs. In the mean time, I want to ask you all if anyone has used the oxygen cans (e.g. Boost) that are marketed to hikers...
  9. Hi Everybody First, I would like to thank everybody on this site for all the information, which I have found fantastic over the last couple of weeks of devouring this site in search of some relief. I am currently in the middle of my second cycle, the first happened 6 years ago (I had thoug...
  10. Hi all, my name is Steve and I have episodic CH's for the last 7 years. I was first misdiagnosed by an ENT and then a neurologist, then properly diagnosed by the same neurologist after a follow-up visit with CT scan. Got put on a few meds that may have worked, but considering the way CH's vary from...
  11. Please help my husband has been using oxygen to abort his cluster headaches for years now. He also relies on energy drinks to do the same when oxygen isn't available but suddenly beginning yesterday rthese methods stopped working what can he do??? he has a headache right now and it's like he is bein...
  12. So my attacks occur almost exclusively during sleep and I wake up at about kip 7. Does oxygen still work as an abortive in this situation when the attack has already been ramped up this high.
  13. I am at the Comfort Inn for the Convention and the Beast decided to hit me right when I got here. No Oxygen here yet. The Beast only hung around for 90 minutes so grateful it left.
  14. I know there is oxygen available at the conference. What size tanks?
  15. I need help. Long time ch. in cycle. Suddenly cycle became much worse. Ran out of o2. Its Sunday. Supply stores are closed. Won't help me. Someone please tell me there is a way for me to obtain multiple tanks of o2 on a Sunday when everything is closed! Desperate. Kip 8-9 all night last 3...
  16. Good Evening Everyone. This is my first post here. Thanks largely to the information here I finally have oxygen therapy. It was a long road getting here and it truly amazes me how effective it is. I am now looking at upgrading to a demand valve like the Allied Healthcare Products L063. My q...
  17. Quick question: I have wondered this for awhile, and I am sure this has been covered before but at what point are you just wasting O2. I awoke this morning in a battle with a K8 and hit the O2 hard, took about 30-35 min for the pain to get manageable, then at 40 min it was down to nothing, but...
  18. Hi all, I have been a regular "spectator" on this site for some time, but just recently joined. I am 58 years old, and have been getting CH's since my early twenties. I am nearing the end of my fall cycle, but can not locate a supplier for oxygen. I live in Orlando FL. I used to get it from a sl...
  19. Hi, I'm about 2 months into a cycle. I've had these ugly head monsters for 15 years, started when I turned 30. I also have multiple sclerosis, diagnosed 4 years ago. I get cluster groups once or twice a year that last around 2 months give or take a couple of weeks. Oh, I'm also a woman. I think that...
  20. Hello to all forum members. I appreciate if someone can answer the following questions. I'm from Barcelona and I can not see my specialist neurologist in Cluster until the end of August. I can only see a neurologist Social Security, he has no idea Cluster or oxygen ... I am 36 years old, episod...
  21. Here on a Sunday I'm requesting an O2 prescription via my online "patient portal" with my GP doctor's medical group, in hopes of them seeing the request first thing Monday morning, and my being able to fill it on Monday. I had asked the doctor for a prescription weeks ago when I suspected a cycl...
  22. I just recently got my new oxygen set up. I have 2 "M" tanks (Which cost me $50 each to get), a 'Clustermask", and a high flow regulator. The entire set-up cost just under $180. I thought, not too bad. But then ... I had several cluster attacks in 1 night, using an entire M tank and part of the seco...
  23. Greetings fellow Clusterheads! First time poster, long time follower. Last night my regulator started making a dreadful, loud, creaking noise, and so I'm wondering if anybody can recommend (if there is such a thing) a medical-grade regulator that works with a welding tank. (My cu...
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