kat_92 Posted March 13, 2023 Posted March 13, 2023 Hey everyone. I posted earlier but I don’t think it went through. So I have been posting for years in this chat now about my fear of flying (in our out of cluster season). And I finally flew. It was a short flight, so I cannot comment further on length affecting a cluster. My flight there I had zero shadows or headaches during ascent or descent. I had almost a gallon of water leading up to the flight (the day before and that morning). I upped my verapamil dose by 80 mg and I loaded on the d3 regimen a week prior. I had a Red Bull at the ready, just in case. Also 2 500 mg Tylenol before take off and landing, and a ginger capsule. coming home: I went on no sleep the night before because my flight was at 5 am. This was dumb but I didn’t really have a choice. I was SURE this would trigger me, also it was daylight savings time. I drank about the same amount of water the day before and leading up to the flight. I bought a Red Bull, and I also prepped by taking 2 500 mg Tylenol. During ascent I started to feel tight pressure on my cluster side, no pain, just pressure. I chugged my Red Bull, and it went away instantly. I stayed hydrated the rest of the flight, and felt no further pressure during descent. I did not need to use any suma injection or steroid taper. I am not currently IN cycle, but I find with my clusters If I hit one of my triggers I will get an attack regardless. I am very VERY excited over this. My fear of travel has been depressing for the last few years. I hope this info helps everyone 8 Quote
CHfather Posted March 13, 2023 Posted March 13, 2023 (edited) "Liking" this post is inadequate. Great, great news. You should be very proud of yourself! Did you have a good time? Edited March 13, 2023 by CHfather 2 Quote
kat_92 Posted March 13, 2023 Author Posted March 13, 2023 @CHfather thank you to your continued support to myself and the community. It was an amazing time!! 2 Quote
spiny Posted March 13, 2023 Posted March 13, 2023 This is a delightful read for a Monday morning kat!! I am so thrilled for you. Enjoy your new found freedom!!! You have definitely earned it 3 Quote
Bejeeber Posted March 13, 2023 Posted March 13, 2023 Well this put a big, genuine smile on the big, genuine face this morning! 3 Quote
Dallas Denny Posted March 13, 2023 Posted March 13, 2023 @kat_92 you win the " best post on the internet" award for the day! DD 4 Quote
kat_92 Posted March 13, 2023 Author Posted March 13, 2023 Really feeling the love here guys! Thanks all again for the suggestions. Now I’ve been shopping for cute luggage online because I want to TRAVEL!! 4 Quote
Shaun brearley Posted March 14, 2023 Posted March 14, 2023 See @kat_92we can lead a normal life !!!!! No need to be scared of flying anymore you did it 3 1 Quote
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