Douglas Ward Posted February 19 Author Share Posted February 19 Please let me say that my purpose here is to try and give some hope to some people without hope. I lived for four years without any hope the only thing that worked for me was going to Dr. Shevel and getting his treatments. That’s my reality I am also looking to recruit neurologists that are interested in his technique. He is happy to share it with anyone that will listen, I am happy to share my experience with with anyone that will listen. I’m not here to confront or be confrontational in anyway, I am here to help. If anyone knows any neurologist that are interested in this, please contact me I will get them in touch with Dr. Shevel . I am going back in a month or so to get a tuneup on my left side. I still have a couple of spots are still causing me problems. I would happily document that trip or show anything about it that would help anyone again if anyone knows a neurologist that is interested, please have them contact me. I apologize if any of this upsets anybody but I’m just trying to help. Quote Link to comment Share on other sites More sharing options...
spiny Posted February 19 Share Posted February 19 I am, by nature, a very 'supportive' individual. In this instance, I support someone that I have known for over 10 years, lives in S.A., and went to this man for treatment. She could not use her lower jaw for about 6 months after and ate everything through a straw. So, that is not a good promotion for his work or work ethics. With her experience added to yours we have a success rate of 50%. In addition, you still get them on one side, just not both. With that rate of success, I would not let anyone near me apply his method to my head! On 2/15/2024 at 10:57 AM, Douglas Ward said: Cluster headaches are caused by nerves growing in tendons where the muscles attach to the back of the skull. He zaps the tendons and kills the nerve that has grown into the tendon Please point me to the proper source for the statement above. I had no idea the 'cause' had been found! 3 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted February 19 Share Posted February 19 1 hour ago, Douglas Ward said: If anyone knows any neurologist that are interested in this, please contact me I will get them in touch with Dr. Shevel . I am going back in a month or so to get a tuneup on my left side. I still have a couple of spots are still causing me problems. I would happily document that trip or show anything about it that would help anyone again if anyone knows a neurologist that is interested, please have them contact me. I apologize if any of this upsets anybody but I’m just trying to help. I will put my list together, you will just have to wait a bit, it's long!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 19 Author Share Posted February 19 2 hours ago, spiny said: I am, by nature, a very 'supportive' individual. In this instance, I support someone that I have known for over 10 years, lives in S.A., and went to this man for treatment. She could not use her lower jaw for about 6 months after and ate everything through a straw. So, that is not a good promotion for his work or work ethics. With her experience added to yours we have a success rate of 50%. In addition, you still get them on one side, just not both. With that rate of success, I would not let anyone near me apply his method to my head! Please point me to the proper source for the statement above. I had no idea the 'cause' had been found! Actually, it’s me and Deborah Zale so far I know of a woman from Australia that has had great success and hundreds of other people from Dr. Shevel that I’ve had success with his techniques. I’m sorry about your friend. I have not heard anybody that I met in my travels that had a negative experience. I’m sure they exist, I am trying to recruit neurologists in particular to explore this. It has worked for me and hundreds of other people if anyone knows neurologist that are interested, I am happy to talk to them. Please let me know thank you. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 19 Author Share Posted February 19 1 hour ago, Shaun brearley said: I will put my list together, you will just have to wait a bit, it's long!!!!!!!! Please do! I am trying to recruit neurologist that are interested in his techniques. He will happily show them for free. I will guide them down there if needed. I am going in about a month to get a tuneup. I will happily document my experience or whatever is needed to generate some interest in this, so we can have multiple forms of treatments for this condition, please let me know. Thank you. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 21 Author Share Posted February 21 Hi! If anyone knows of a neurologist that is interested in Dr. Shevels technique I am happy to connect them to Dr. Shevel, or share my experience with them so they can investigate for themselves. Dr. Shevel is happy to share his knowledge with anyone who will listen. Please let me know, Thanks! Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted February 21 Share Posted February 21 3 hours ago, Douglas Ward said: Hi! If anyone knows of a neurologist that is interested in Dr. Shevels technique I am happy to connect them to Dr. Shevel, or share my experience with them so they can investigate for themselves. Dr. Shevel is happy to share his knowledge with anyone who will listen. Please let me know, Thanks! @Douglas Ward Yes, we all get that you're promoting Dr Shevel and interested in recruiting neurologists to learn his procedures. First, I know of no one in the online clusterhead communities who would ever reccomend him or his procedures as an option to another clusterhead. Second, same thing goes for reccomending to a neurologist that they should seek out his knowledge and/or experience. And lastly, advertising, marketing, and promotion is prohibited in this forum and any future attempts by you to do so will result in an immediate ban. Dallas Denny Quote Link to comment Share on other sites More sharing options...
devonrex Posted February 22 Share Posted February 22 (edited) Ok, zapping and killing nerves, is this not just a gamma knife with a different name or nerve transection with a different name? both of which have shown to help in the short term but remissions are high. Which both also have a pretty high likelihood of facial paralysis (permanent) with extreme facial droop among other side effect possible. Also, the three branches of the trigeminal nerve, two are sensory only so have no interaction with tendons or musculature, providing sensory response to the orbital of the eye and above and mid cheek/face. only the mandibular has any motor function and that is to the jaw, one of the places that gets hit less than those two above. So growing into a tendon seems a bit out there as a diagnosis as well. Edited February 22 by devonrex Quote Link to comment Share on other sites More sharing options...
Amd542 Posted February 24 Share Posted February 24 @Douglas Ward i want to post something from Dr Shevels post a few years ago , seems he changed his theory of what causes clusters The medical rationale for my treatment of cluster headache is as follows: Primary headaches, including cluster headache, are exceedingly complex conditions and difficult to treat due to the great number of anatomical structures in the head and neck, which are all interlinked in some way. These structures include the brain and nervous system, arteries, muscles, tendons, sinuses, joints, and teeth. Many of these structures are innervated by the trigeminal nerve, which is widely accepted as the main conduit for primary headache pain, including cluster. There is widespread agreement among headache specialists that many cluster symptoms occur due to the involvement of what is called the sphenopalatine ganglion (also known as the pterygopalatine Ganglion). One of the therapies being used at present to minimize the severity of cluster is sphenopalatine ganglion stimulation (Lainez, MA et al.Sphenopalatine ganglion stimulation for the treatment of cluster headache. Ther Adv Neurol Disord. 2014 May; 7(3): 162-168). The sphenopalatine ganglion is situated behind the upper jaw under the eye, and the maxillary artery is very close to it. When the maxillary artery dilates, it gives off pain producing neuropeptides – in patients where the dilated maxillary artery is very close to the sphenopalatine ganglion, the ganglion is without doubt affected. Migraine can in no way be compared with cluster – but there is one vitally important similarity, and that is that they both respond to sumatriptan. Sumatriptan was developed as a vasoconstrictor to treat migraine, but as it transpired, it is far more efficacious in the treatment of cluster than it is in the treatment of migraine. As the members of Clusterbusters are very aware, Imitrex (Imigran in some countries) injections are the most reliable and effective way of aborting cluster attacks for most cluster sufferers. Remember, the only action of Imitrex is to constrict the painfully dilated extracranial terminal branches of the external carotid artery. It has no other action. This leads to the logic that if Imitrex works in cluster, then in cluster the painfully dilated EXTRACRANIAL TERMINAL BRANCHES OF THE EXTERNAL CAROTID ARTERY are INVOLVED IN THE PAIN. The rationale and aim of my surgery is to achieve a permanent Imitrex effect. When the maxillary artery is permanently closed surgically, it no longer gives off pain-producing neuropeptides or impacts the collection of nerves of the sphenopalatine ganglion which generate the intense pain. An illustration appeared on the cover of Cephalalgia in 2012, entitled “Location of maximum pain intensity in 209 patients with chronic and episodic cluster headache”. It is no coincidence that the precise area depicted is supplied by the maxillary artery. I am unable to post images here, but these can be referenced at http://www.theheadacheclinic.net/cluster-headache-treatment/ In my treatment of cluster, the most important element is permanent closure of the maxillary artery on the affected side. The major difference between the symptoms of cluster and migraine is because in cluster, not only are the scalp arteries involved, but the maxillary artery is also involved. All the arteries that I close, including the maxillary, are done through small superficial incisions. These procedures are done in a day care facility and patients are discharged the same day. It is important to note that these same arteries are closed by Neurosurgeons, Maxillo-Facial Surgeons, Plastic surgeons and ENT surgeons every day for a variety of other reasons. In spite of this there has never been a report of the blood supply being compromised as a result. A small number of patients have had temporary numbness of the skin or the cheek lining, most of whom recovered within a month or two. In the few cases where the numb patch persists, it is a relatively small price to pay for being pain free. If it was only the maxillary artery that was responsible for cluster, the procedure would be done in a day and the patient would be able to fly home a few of days later. Frequently however, other anatomical structures are also involved in generating the pain. The most common are other terminal branches of the external carotid artery in the scalp, but the jaw and neck muscles and the three branches of the trigeminal nerve may also become painful. Quote Link to comment Share on other sites More sharing options...
devonrex Posted February 24 Share Posted February 24 (edited) What I find odd, is many of the things we get relief from (Caffeine, hot showers, Verapamil) are all vasodilators...not constrictors. So, if this is caused by dilation of the maxillary artery it seems odd, that more dilation would help? I mean the single best abortive many have found, oxygen, is also a vasodilator., Edited February 24 by devonrex Quote Link to comment Share on other sites More sharing options...
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