Bejeeber Posted February 16 Share Posted February 16 Here's an especially pertinent quote from Bob Wold on the the topic: " We have had the medical records of a couple actual patients that went through this treatment, with the permission of the patients, reviewed by one of the top headache specialists in the USA. He reported that the procedures used are unnecessary, ineffective and dangerous. This includes both the surgeries often involved (numerous) and the types of medications often used in large doses." "There are many people that report either a trigger to start a cluster cycle or an unexpected end of a cycle following all sorts of surgeries. From giving birth to minor surgeries to major surgery. No one knows why surgery can have this effect but in my experience it appears to probably be related to the different types of anesthesia used. Local or general. This could be a connection to why some people get relief with Ketamine. I would never recommend someone in cycle to schedule open heart surgery as a treatment for cluster headaches, even though you might wake up from surgery out of cycle." To be clear, the treatments offered at this SA clinic do not include open heart surgery, but the number of stitches I've seen on patients is probably close to the same number." "This is just one theory of why some people may report even temporary relief from these treatments but most experts that have looked at these treatments deem them as dangerous." Bob Wold 4 Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 17 Author Share Posted February 17 I am only telling you my personal experience. Like I explained, he zaps the nerves with a technique he is recently developed. He used to do a little micro surgeries in the same way now he just zaps them. It’s very non-invasive. It is literally the only thing that made any difference whatsoever, I don’t know who you’re quoting on this all I’m saying is it worked for me if you want to know more you can call me and ask me. I will explain it. I tried to share the video of all the letters on his wall thanking him there are literally hundreds of them. Everyone I met in the waiting room the three months I was there raved and raved about the effectiveness. I met a guy from Australia who owns all the Subway restaurants there and his wife suffers from them, she has to come in for a tuneup every couple years because the nerves grow back , she gets her tuneup and goes home and is pain-free. It is changed her life like it did mine. I have my life back it’s the only thing that made any difference that is just my personal experience. If you don’t wanna believe me that’s fine if you don’t have personal experience with it, or have some ancient story to try and shoot it down, that’s your decision I’m telling you my very recent and very effective experience with this , that is all 1 Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 17 Author Share Posted February 17 Another story I heard staying at the garden Place hotel in Johannesburg the hotel I recommend who I am still very good friends with the General Manager and his wife was a lady came from England with terrible terrible headaches in a wheelchair. She was a famous artist I can get her name, in fact, I will tomorrow. She came in a wheelchair after about two months. She got out of the wheelchair after four months she went home. It changed her life completely. I will ask for her name and try and share her story as well. I have hundreds of them. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 17 Author Share Posted February 17 6 hours ago, Bejeeber said: Here's an especially pertinent quote from Bob Wld on the the topic: " We have had the medical records of a couple actual patients that went through this treatment, with the permission of the patients, reviewed by one of the top headache specialists in the USA. He reported that the procedures used are unnecessary, ineffective and dangerous. This includes both the surgeries often involved (numerous) and the types of medications often used in large doses." I am currently a patient of Dr Mark Burish. I live in Houston one of the best medical towns you can live in in the states he is one of the best Headache specialist and a member of this forum. I told him about this when I found it as he had treated me for a year we had been through five different medication‘s steroids all the treatments described on this website, we tried them all, none of it helped in anyway it was awful. It was like being a lab rat when I found this procedure with the video that I shared in the beginning I told him all about it. I told him my progress as I went through it I talked to him at length when I came back, he was in no way interested in any of this , not even a little bit. If it’s not drugs, he can prescribe he was not interested. I think he’s personally scared to go outside anything that would affect his medical license, which I understand. He just seem to have no personal compassion beyond what he offer professionally, which is I guess most doctors these days. This is in no way Dr. shovel. He is one of the most compassionate personally involved people I have ever met and apparently the medical environment in South Africa allows him to do this , I would challenge anyone including my current doctor Dr Mark Burish to talk to me personally, and I would happily show them 100 other people like me that have been buying large or at least in a very very substantial way benefited from this without drugs The procedure is not a surgery. He injects saline solution into the tendon and zaps it with a small, cauterizing needle. He uses a local anesthetic. The procedure is completely pain-free. He never prescribed me any drugs in relation to this procedure. There are no drugs involved in the procedure whatsoever except for the local anesthetic, which is the same stuff they use for dentistry. "There are many people that report either a trigger to start a cluster cycle or an unexpected end of a cycle following all sorts of surgeries. From giving birth to minor surgeries to major surgery. No one knows why surgery can have this effect but in my experience it appears to probably be related to the different types of anesthesia used. Local or general. This could be a connection to why some people get relief with Ketamine. I would never recommend someone in cycle to schedule open heart surgery as a treatment for cluster headaches, even though you might wake up from surgery out of cycle." To be clear, the treatments offered at this SA clinic do not include open heart surgery, but the number of stitches I've seen on patients is probably close to the same number." "This is just one theory of why some people may report even temporary relief from these treatments but most experts that have looked at these treatments deem them as dangerous." I would love to know who these “experts” are. I am currently seeing one of the experts we can all agree on, and he is not interested, not because of its effectiveness, because I literally told him it worked. When I spoke to him, I told him it worked so good I could cancel my oxygen prescription. I have not required it since then, I don’t take all the drugs that I used to take to try and battle all these headaches. I have my life back. If you have specific instances, I would love to hear about them, but I literally have 100 or more stories of actual people that were benefited greatly by this, including myself Doug Ward Bob Wold Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 17 Author Share Posted February 17 Please see my responses above to this reply. Thank you. Quote Link to comment Share on other sites More sharing options...
jon019 Posted February 17 Share Posted February 17 ....enough....please... 4 Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 17 Author Share Posted February 17 The first video I posted is a lady named Deborah Zale. Someone asked if her treatments still worked. I said I would check with her as I am in contact with her and here is her reply that I got this morning. WOW! That’s awesome! I’m so happy for you! And YES! I am still cluster attack free! May this year will be 10 years of pain free life Dr. Shevel gave me! I do get very minor -what I call “shadows” when I get a tight feeling in the Trigeminal nerve area on RARE occasions (2-3 times a year) but NEVER escalates to pain and goes away in a few minutes. I was very connected to Cluster Buster Group BEFORE I found & went to Dr. Shevel. I even had a direct relationship/ communication with founder Bob Wold. I terminated my connection with that group. I shared my experience & gave extensive details on the successful treatment I received from Dr. Shevel. Immediately I was attacked RELENTLESSLY by many members of that group including Bob Wold. I was called a “troll”, “fraud”, and accused of “working for & promoting a quack”. The group harassed me for years calling me a “stupid fool” if I really did go to South Africa for help. THAT IS NOT A “support group” as they claim. I have NO RESPECT for that group. ALL Cluster Busters is interested in is funding for & promotion of psilocybin “magic mushrooms” as a treatment which is all the group advocates for as the only hope to help us cluster sufferers. Do share with the group that I AM DOING GREAT! I’d love to slap all of them in the face with the fact I’m cluster free for the relentless harassment & degrading attacks on my character. I also tried psilocybin for a year & it did NOTHING to help me. I found that group to be very sad & disturbing. It is not interested in the successful treatment some people have found. It never gave me any “support” as it claims to be a “sufferer support group”. I am so happy for you! I know the AWESOME feeling of not having life controlled by that excruciating pain. Im dancing & jumping for joy for you! How long has it been since your treatment by Dr. Shevel? Thank you for sharing & I’m so happy my video & sharing my experience helped you!!! Wishing you all the best! this is literally the reply. She texted me this morning. 1 Quote Link to comment Share on other sites More sharing options...
jojo2 Posted February 17 Share Posted February 17 3 hours ago, Douglas Ward said: The first video I posted is a lady named Deborah Zale. Someone asked if her treatments still worked. I said I would check with her as I am in contact with her and here is her reply that I got this morning. WOW! That’s awesome! I’m so happy for you! And YES! I am still cluster attack free! May this year will be 10 years of pain free life Dr. Shevel gave me! I do get very minor -what I call “shadows” when I get a tight feeling in the Trigeminal nerve area on RARE occasions (2-3 times a year) but NEVER escalates to pain and goes away in a few minutes. I was very connected to Cluster Buster Group BEFORE I found & went to Dr. Shevel. I even had a direct relationship/ communication with founder Bob Wold. I terminated my connection with that group. I shared my experience & gave extensive details on the successful treatment I received from Dr. Shevel. Immediately I was attacked RELENTLESSLY by many members of that group including Bob Wold. I was called a “troll”, “fraud”, and accused of “working for & promoting a quack”. The group harassed me for years calling me a “stupid fool” if I really did go to South Africa for help. THAT IS NOT A “support group” as they claim. I have NO RESPECT for that group. ALL Cluster Busters is interested in is funding for & promotion of psilocybin “magic mushrooms” as a treatment which is all the group advocates for as the only hope to help us cluster sufferers. Do share with the group that I AM DOING GREAT! I’d love to slap all of them in the face with the fact I’m cluster free for the relentless harassment & degrading attacks on my character. I also tried psilocybin for a year & it did NOTHING to help me. I found that group to be very sad & disturbing. It is not interested in the successful treatment some people have found. It never gave me any “support” as it claims to be a “sufferer support group”. I am so happy for you! I know the AWESOME feeling of not having life controlled by that excruciating pain. Im dancing & jumping for joy for you! How long has it been since your treatment by Dr. Shevel? Thank you for sharing & I’m so happy my video & sharing my experience helped you!!! Wishing you all the best! this is literally the reply. She texted me this morning. Now, this begs an interesting question about this group. We need and can do better. I for one have made an annalysis that no single treatment is going to work for every one suffering from this headache because it manifests in many ways. I have switched doctors and nuerologists and even drugs but never have I ever called them quacks for failing. It simply meant that that solution is not for me. As I mentioned before, My uncle has been cluster headache free for 15 years now and we all don't know what happened with him. I think we should not throw people away when they suggest things that worked for them and we don't have an explanation for them. All the drugs we currently have like verapamil, no one even knows why they work but since they provide relief then we accept them and just use them for the time being. The reason I think Dr Shevel's methods may have some credibility is because when you say he zaps the nerves, that is actually similar to Occipital blocks except for him he zaps them while occipital blocks just block them. One time I went to the ER and found a doctor who also suffers from cluster headaches, and she told me every time when the season comes, she just sees a neurologist who does occipital blocks, and she is fine for that season. Again, she told me it may not work for every one but it works for her. If I were just to dismiss her, I would have missed out on the temporary relief I got from the same when I asked my neurologist. I think we need a section on remissions where we follow up on people with remissions and what they did. Busting won't work for every one, Oxygen wont work for every one, Verapamill wont work for every one, vitamin D3 and anti histamine regimen won't work for every one. One things as a cluster headache sufferer you come to realise that even what worked before for you refused to work later on. This is due to the fact that we are dealing with a changing body in changing environments. The more tools, methods and techniques we have at our disposal the better. Our hope in psilocybin should not lead us to close out other stories of success elsewhere. That is not science! In science you let the methods fight and the one with maximum benefits and less risk is the one which should take the day. Please apologize to that lady on our behalf and tell her we want her back. We need a section on people in Remissions and what they are doing or we shall forever be a group of crying people. We need positive stories on here and positive busting stories and remission stories that don't have an explanation. Oh and the neurologists who dismiss Dr shevel are the same ones we struggle to convince to give us oxygen! From what I gather he is just doing some version of occipital block. I will go to South Africa on my next vaccation . I may not necessarily have the procedure but I would like to document remission stories even those without an explanation. When Malaria was getting resistant to all the drugs on the market, every one was dismissive of chinese herb people used to treat Malaria, even the experts!..But many years later and we have Artemisinin as part of many anti Malaria Drugs. This disease is so statistically insignificant that we shouldn't expect sceintists to focus on us since there is barely any money to be made. We only have ourselves for help and we don't need to have any one, especially some one with a successful story feel like they don't belong here. 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jojo2 Posted February 17 Share Posted February 17 3 hours ago, Douglas Ward said: The first video I posted is a lady named Deborah Zale. Someone asked if her treatments still worked. I said I would check with her as I am in contact with her and here is her reply that I got this morning. WOW! That’s awesome! I’m so happy for you! And YES! I am still cluster attack free! May this year will be 10 years of pain free life Dr. Shevel gave me! I do get very minor -what I call “shadows” when I get a tight feeling in the Trigeminal nerve area on RARE occasions (2-3 times a year) but NEVER escalates to pain and goes away in a few minutes. I was very connected to Cluster Buster Group BEFORE I found & went to Dr. Shevel. I even had a direct relationship/ communication with founder Bob Wold. I terminated my connection with that group. I shared my experience & gave extensive details on the successful treatment I received from Dr. Shevel. Immediately I was attacked RELENTLESSLY by many members of that group including Bob Wold. I was called a “troll”, “fraud”, and accused of “working for & promoting a quack”. The group harassed me for years calling me a “stupid fool” if I really did go to South Africa for help. THAT IS NOT A “support group” as they claim. I have NO RESPECT for that group. ALL Cluster Busters is interested in is funding for & promotion of psilocybin “magic mushrooms” as a treatment which is all the group advocates for as the only hope to help us cluster sufferers. Do share with the group that I AM DOING GREAT! I’d love to slap all of them in the face with the fact I’m cluster free for the relentless harassment & degrading attacks on my character. I also tried psilocybin for a year & it did NOTHING to help me. I found that group to be very sad & disturbing. It is not interested in the successful treatment some people have found. It never gave me any “support” as it claims to be a “sufferer support group”. I am so happy for you! I know the AWESOME feeling of not having life controlled by that excruciating pain. Im dancing & jumping for joy for you! How long has it been since your treatment by Dr. Shevel? Thank you for sharing & I’m so happy my video & sharing my experience helped you!!! Wishing you all the best! this is literally the reply. She texted me this morning. Also, one other thing I have found in my 24-year battle with cluster headaches is that no procedure or drug has worked for everyone. So, dismissing one procedure or drug for not working on certain people is laughable. The more available solutions, the better; that way, most sufferers will be covered by at least one solution or a combination of solutions. I pray and hope that my sentiment is similar to every one's. I am a skeptic and I want the more realistic solutions to prevail and that starts by listening to every one. I won't talk for every one here but am willing to listen so any one out there with a remission story please come and share it even if you dont know what it is that changed in your life. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 17 Author Share Posted February 17 Thank you very much for your thoughtful reply. I would ask everyone to be open-minded again I’m not trying to sell anyone anything I’m just trying to share my personal experience and the experiences of other people I have personally met. I am going to South Africa within the next few weeks hopefully I am happy to document my journey take videos or share whatever I have to share to help someone whatever that is, I’m happy to talk on the phone or do whatever I can to help reduce anyone suffering. That is my only goal. Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted February 18 Share Posted February 18 @Douglas Ward So now you think it's cool to post something from someone dissing our founder and all of us who have been here day in and day out for the last 15 years answering questions and supporting other clusterheads? Just shaking my fucking head at the audacity of some folks.....the rest of you can put up with this bullshit if you want but I'm out... 3 Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted February 18 Share Posted February 18 I don't feel that Dallas Denny's frustration is misplaced. 11 hours ago, Douglas Ward said: ALL Cluster Busters is interested in is funding for & promotion of psilocybin “magic mushrooms” as a treatment which is all the group advocates for as the only hope to help us cluster sufferers. The claim in the above quote from Deborah Zale can immediately be identified as entirely false, but @Douglas Ward I don't think you'd necessarily realize that at this point in your membership here, since you appear to have jumped in with immediate single minded intent to spread your message. Seriously consider scaling back your frequency of posts (you've hit the ground running here with a lot of posts right off the bat), and be aware that posting of false claims including the one from Deborah "would love to slap all of us in the face" Zale that Bob Wold relentlessly attacked her (??!!) is offensive. 3 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted February 18 Share Posted February 18 @Douglas Wardwhat gets me with your posts , is you jump in with i have the cure , then you say you still get attacks, so when people question you , you say its just my experience, so it's NOT a cure!!!!!! It's just your experience!!!!!!!!!. Then you attack the group , if you are cured from CH buddy I would just leave this group , NO need for you to be here , 2 Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 18 Author Share Posted February 18 13 hours ago, Dallas Denny said: @Douglas Ward So now you think it's cool to post something from someone dissing our founder and all of us who have been here day in and day out for the last 15 years answering questions and supporting other clusterheads? Just shaking my fucking head at the audacity of some folks.....the rest of you can put up with this bullshit if you want but I'm out... I’m just telling the truth whatever that is, I’ve had success with this and so has she so I have several other people I’m telling you what the founder did to her in her own words. If you can’t handle the truth, then you should probably think about that I live in the truth, whatever that is, the truth is Dr. Shevel is helping people he helped me he helped her and several other people hundreds of them. You guys completely discount him without even asking any questions. as soon as she was cured the founder turned on her why is that not bullshit? Why are you mad at me for Telling that truth? Are you happy in your lie? I don’t understand. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 18 Author Share Posted February 18 11 hours ago, Bejeeber said: I don't feel that Dallas Denny's frustration is misplaced. The claim in the above quote from Deborah Zale can immediately be identified as entirely false, but @Douglas Ward I don't think you'd necessarily realize that at this point in your membership here, since you appear to have jumped in with immediate single minded intent to spread your message. Seriously consider scaling back your frequency of posts (you've hit the ground running here with a lot of posts right off the bat), and be aware that posting of false claims including the one from Deborah "would love to slap all of us in the face" Zale that Bob Wold relentlessly attacked her (??!!) is offensive. She’s telling the truth why does the truth offend you? That makes no sense. Do you want help with this or not? I have personally had great success with this. She has personally had great success with this. I’m sorry it goes against your narrative, but that’s the truth, maybe you should ask about it more or inquire more before you immediately discount it are you suffering? I’m trying to help that is it Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 18 Author Share Posted February 18 3 hours ago, Shaun brearley said: @Douglas Wardwhat gets me with your posts , is you jump in with i have the cure , then you say you still get attacks, so when people question you , you say its just my experience, so it's NOT a cure!!!!!! It's just your experience!!!!!!!!!. Then you attack the group , if you are cured from CH buddy I would just leave this group , NO need for you to be here , Why is a 95% improvement in my situation such a bad thing? Have you experienced a 95% improvement in your situation at any time during this? Deborah Zale has been pain-free for 10 years. Why is that a problem? That’s the truth again I don’t understand why the actual truth is so offensive we’re telling you our experiences if you don’t like it, that’s OK but we’re not lying, I’m going to go back in a month or so and get my left side touched up as it didn’t hurt when I was there. I had headaches on my right side for years no headaches on my right side since the treatments again I’m trying to help you find some relief for this. I’m sharing my and other personal experience with a particular doctor, who in my experience has figured this out at least he has some hope no drugs, actual hope again I don’t see the problem with that. Please explain how the truth is offensive to you. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 18 Author Share Posted February 18 11 hours ago, Bejeeber said: I don't feel that Dallas Denny's frustration is misplaced. The claim in the above quote from Deborah Zale can immediately be identified as entirely false, but @Douglas Ward I don't think you'd necessarily realize that at this point in your membership here, since you appear to have jumped in with immediate single minded intent to spread your message. Seriously consider scaling back your frequency of posts (you've hit the ground running here with a lot of posts right off the bat), and be aware that posting of false claims including the one from Deborah "would love to slap all of us in the face" Zale that Bob Wold relentlessly attacked her (??!!) is offensive. How is her claim entirely false? Did you talk to her? Are you just making that up? What she said is true she’s been pain-free for 10 years. I personally talk to her if you really think it’s false offer me some kind of proof rather than just some shit you made up? I’m offering proof of what I’m saying to be true if you don’t like it that’s fine but it’s still the truth Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted February 18 Share Posted February 18 I haven't got a problem with your experiences at all , but your post states CURE !!!!!!! , your not cured simple as that !!!!!, and yes I'm know in my 27th month pain free , Have you ever thought that your CH has just switched sides 1 Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 18 Author Share Posted February 18 4 minutes ago, Shaun brearley said: I haven't got a problem with your experiences at all , but your post states CURE !!!!!!! , your not cured simple as that !!!!!, and yes I'm know in my 27th month pain free , Have you ever thought that your CH has just switched sides You must not have chronic cluster headaches, like I do mine never go away I don’t have periods of remission. The only relief I have got so far is with Dr. Shevel‘s help. I’m not a beginner with this I have battled this for years every day I am only trying to share my experiences and the experiences of others in order to help people find some relief. I don’t get all the pushback. Here’s a guy literally with experience and multiple other experiences That point towards an actual cure and all you guys can do is bash him because it doesn’t follow your narrative. Sounds like a cult not people that want to get better. If you want to get better ask me how I will share all my experience with you if it helps you great if it doesn’t that’s fine too , I’m just here to help people Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted February 18 Share Posted February 18 1 hour ago, Douglas Ward said: How is her claim entirely false? Oh I had specifically quoted this claim of hers as being entirely false: "ALL Cluster Busters is interested in is funding for & promotion of psilocybin “magic mushrooms” as a treatment which is all the group advocates for as the only hope to help us cluster sufferers." 2 hours ago, Douglas Ward said: just some shit you made up? Not taking the bait. I suspect others could also be tiring of the feeding of the troll exercise this appears to have become. Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 18 Author Share Posted February 18 That is just her opinion based on her experience, I’m not trying to troll anybody I’m trying to share the experiences of people that have gained some benefit from this. I was specifically asked if the lady in the video Deborah Zale was still doing good. That is an old video and that is a very fair question, the answer is yes from specifically what Dr. Shevel did when she experienced that cure she was then attacked as she stated in her reply her impression was as follows that it seems like this organization is only dedicated to selling magic mushrooms and focusing on that, and anything outside, that narrative will be attacked as it is being now Instead of being at least explored or questions asked without being immediately dismissed immediately dismissed with great prejudice. It makes no sense it’s not a troll effort. It’s an effort to get the truth out there to help people with this as I have been helped and she has been helped. That is it Quote Link to comment Share on other sites More sharing options...
jon019 Posted February 18 Share Posted February 18 2 Quote Link to comment Share on other sites More sharing options...
spiny Posted February 18 Share Posted February 18 Can you get her user name? I think that 'most' things that help should be applied here perhaps. I had a mysterious 10 year full remission two decades ago too, but those suckers happen on their own from what I can gather. I was chronic and they just stopped one night. But, I was not cured and when they returned they were all nocturnal and that was a first. So, yes, remission is possible, but don't count on a cure. You and Dr. Shevel have the same hairline, jawline and smile! Remarkable....... I am delighted for you being pain free currently! Enjoy it and may you never experience another cluster! And I definitely share your delight with your results. The word 'cure' is hard to swallow here and for good reason. ATB 2 Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted February 19 Share Posted February 19 Hi @Douglas Ward, So happy you are experiencing reprieve from these awful attacks! Please keep in mind that this site has rules with regard to posting content as "fact" without any peer reviewed studies so please be mindfull going forward. I hope you continue to experience pain free days and look forward to any reputable studies you may have to share. Take care! 2 Quote Link to comment Share on other sites More sharing options...
Douglas Ward Posted February 19 Author Share Posted February 19 Hi, thanks for the thoughtful response. I don’t know what you mean by we have the same hairline and jawline? I assure you we are not related. I am not posting a “fact“ I am talking about my a personal experience in the personal experience of other people. If you don’t believe me that’s fine I’m not selling anything I’m just telling you an experience that I had that helped me dramatically also other people and their personal experiences, no more no less. If anyone wants to know more or knows, a doctor that is interested in Dr. Shevel’s techniques please let me know. I am happy to talk about it or share what He does Quote Link to comment Share on other sites More sharing options...
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