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johnny
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What's Wrong With Me? - Music & Lyrics by Fred Sheftell, MD

http://tinyurl.com/decxk3 (youtube)

A song about cluster headache, its characteristics, devastating pain, and misdiagnosis. The title reflects the fact that tragically the average time to diagnose is five years! Dr. Sheftell chose a rock and roll 50's format for the song to reflect the frenetic pace of cluster attacks.

Triptan du Jour - Music & Lyrics by Fred Sheftell, MD

http://tinyurl.com/dyjpy3 (youtube)

This song reviews the hisorical development of the triptans, all seven of the triptans by generic name and pokes a little fun at Dr. Sheftell's colleagues throughout the world who have devoted their careers to headache and have contributed so much to our knowledge base

Migraine Blues - Music & Lyrics by Fred Sheftell, MD

http://tinyurl.com/c8zrvu (youtube)

Dr. Sheftell chose a blues format because for obvious reasons when it comes to migraine. The song reviews the characteristics of the attack, the associated disability and the search for relief.

Life is for Living - Music & Lyrics by Fred Sheftell, MD

http://tinyurl.com/dx5usz

This song is an attempt to capture the importance of non-pharmacologic, behavioral approaches, and attitude. Dr. Sheftell always said...

"I don't treat headaches. I treat people with headaches!"

shocked

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Hey Johnny,

Free concert on July 3rd in Sioux City, Iowa. Carlos Santana will be stopping in and will play at dark. Beings he will play after the sun goes down, I'm going to attempt to be there.

This is an annual event in SC---"Day in the Park."

The last time I tried it was 100 degrees and you know the rest the story. I ended up at the emergency station with a "headache". They told me to drink some water and go sit under a tree.

I'm thinking a maintenance dose and no sun, I can do this.

Santana's guitar from the band-shell, rolling over the hills is magic.                Leslie

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Carlos Santana music is really beautiful indeed, nice for chilling out :)

Well apart him I can post few songs I have been listening to recently:

- Johnny's Cash Highwayman :) Very old school and awesome.

- Nice oriental tune that you can listen to. Title is Rin - Genji

- Funky version of classic music

- I sometimes like to listen to the non-commercial youtube singers, maybe someone likes these too :)

http://www.youtube.com/watch?v=TLgkc1361Vw - I just love to listen to soundtrack from Gone in 60 seconds movie.

http://www.youtube.com/watch?v=L_XFMCgeI7c - another awesome song!

http://www.youtube.com/watch?v=ZVuWhHtQGHc, http://www.youtube.com/watch?v=UmOeISUYXuI, http://www.youtube.com/watch?v=g7P4cqzPZN8 -

I always end up watching Eurovision contest every year, sometimes there are nice worth listening tunes.

Also got some tunes I like to sometimes listen to when busting:

http://www.youtube.com/watch?v=Dt9OtGxEvDA

http://www.youtube.com/watch?v=kG3un0g4Fuk

And for the end some awesome video I found

- LOL, amazing guy!!!

Wow I think I put too many songs being in some kind of music trance while typing this post, sorry and hope you enjoy  :D

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There is very little that I remember from the late 60's, early 70s -- but music is the one thing that is still fresh in my memory.  I was blessed to be able to see many artists live, including Jimi Hendrix and Janis Joplin.  But I think the best concert I ever attended was Carlos Santana. It don't get much better than that!  Enjoy Leslie!!

I enjoy all kinds of music, from country to classic.  I will be checking out the links that you posted Matty - Thanks.

bobb

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I think Beethoven symph NO. 9 is the sound of my life, living with the beast. As we battle, but in the end wins a certain amount of control over our lives back, by doing the "opposite."

And that this maybe be a genetic old hunter instinct, giving us a genetic failure in evolution, as it is with schizophrenia. :o LOL

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  • 2 weeks later...

Great thread!

Music is one of the things that allowed me to hang on during dark moments.

For me it seems that some hits are triggered when I get too excited and other hits are triggered when I get too relaxed.

The trick is to reverse the ongoing effect. Trying to relax when you're too excited and trying to increase your energy when you're too relaxed.

Music can help with this. Uptempo or downtempo accroding to the situation

Here are two of my favorite gems that work great durring a hit:

Downtempo: Flow by Dimension 5

http://www.youtube.com/watch?v=1WmC3RQ6raI

Uptempo: Lunar Civilization by Crop Circles

http://www.youtube.com/watch?v=T_XZ62k616M&feature=related

Try to find a decent quality version and listen to them with headphones.

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Happy 4th everyone,

Well, I made it to the Santana concert. It was a hot, humid day and I was worried about the cluster curse.

As Carlos came on stage and the sun was down, a big black cloud came rolling in with a cool wind. And Carlos said, "this is perfect."

He played for almost 2 hours. It was wonderful.

The crowd estimated 30,000, in a fairly small space. I found a tree to lean against, and got lost with the music.

I really wanted to make that trip, but didn't think I could handle it. I dosed 5 days ahead of time, knowing that heat, pollen and people are my triggers. That is my last outdoor concert. But I did it with a little help from my friends. ;)

                                                Leslie

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MattyAA,

I did finally get around to listen to the music you posted. I really enjoy stumbling onto something new, or at least new to me.

Last night I spent sometime trying to post a few that I like but ran into a brick wall when It came to sending the links. I really did like Kid CuDi Alive and also Nick Kamarera & Deepside. They reminded me a tiny bit of Mind Bomb from a few years back---similar but not the same.

And we both seem to be into REM, especially "Losing My Religion."

Strange we are so far apart in geography and age, but both choose that song.

I had picked out, Talking Heads, "Totally Nude" for DD and Ron. I think David Bryne (spelling) is a genius.

Take care and try some stuff ;)      Leslie

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  • 3 weeks later...
Hey Johnny,

Free concert on July 3rd in Sioux City, Iowa. Carlos Santana will be stopping in and will play at dark. Beings he will play after the sun goes down, I'm going to attempt to be there.

This is an annual event in SC---"Day in the Park."

The last time I tried it was 100 degrees and you know the rest the story. I ended up at the emergency station with a "headache". They told me to drink some water and go sit under a tree.

I'm thinking a maintenance dose and no sun, I can do this.

Santana's guitar from the band-shell, rolling over the hills is magic.                Leslie

sorry i could make it leslie. that would have been cool. a ch in 100 degree blazing hot sun really sucks too

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