Bilal 13 Report post Posted April 2, 2018 I decided to create this thread specifically for new CH members who just got diagnosed and might not want to take any psychedelics for temporary relief and would instead opt for a more permanent solution. I started the D3 regimen as advised by senior members, here is a link to the regimen https://clusterbusters.org/forums/topic/1308-d3-regimen/. On my fifth day of the pills and I've been CH free. So far so good, I'll update this thread from time to time in case anyone might find this useful. Thanks to CH father, Batch and everyone else that helped me find this regimen. 2 spiny and CHfather reacted to this Share this post Link to post Share on other sites
Batch 203 Report post Posted April 2, 2018 Hey Bilal, Thanks for the feedback. It's always great to hear another CHer has responded to the anti-inflammatory regimen. Be sure to see your PCP after 30 days on this regimen to obtain lab tests of your serum 25(OH)D, calcium and PTH. As long as you are CH pain free, your serum calcium remains within its normal reference range and your PTH is in the lower third of its normal reference range, your vitamin D3 maintenance dose is good to go even if your serum 25(OH)D is over 100 ng/mL. Any time after that, if you've time, please take the online survey of CHers taking this regimen to prevent their CH. To start this survey, click on the following link: http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6 We need survey data like this to help convince neurologists and headache specialists that the anti-inflammatory regimen is a safe and effective alternative to the typical standards of care recommended medications for CH. Take care and please keep us posted. V/R, Batch Share this post Link to post Share on other sites
Bilal 13 Report post Posted April 3, 2018 Hi Batch Thanks again for all the work you and others have put into this regimen, I'll definitely start the survey after a month of this regimen. Share this post Link to post Share on other sites
Bilal 13 Report post Posted April 3, 2018 A week into the D3 Regimen and I woke up to a minor attack. This was the weakest Ch attack I've had. Pain was at a 5 and lasted about 10 minutes. I went back to sleep afterwards. 1 CHfather reacted to this Share this post Link to post Share on other sites
Bilal 13 Report post Posted April 24, 2018 It's been a month since I started the regimen and I've only had 3 very mild attacks. Shadows are gone completely and I honestly don't feel like the condition is even there anymore. 1 CHfather reacted to this Share this post Link to post Share on other sites
Batch 203 Report post Posted May 3, 2018 Hey Bilal, What was the frequency of your CH in hits/day or hits/week before starting the anti-inflammatory regimen? If you haven't already done so, please take the online survey of CHers taking this regimen so we can capture your response data. To start this survey, click on the following link:http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6 Take care and thanks again for the feedback. V/R, Batch Share this post Link to post Share on other sites
Bilal 13 Report post Posted May 5, 2018 Hi Batch, I used to have 2-3 attacks per week and they lasted from around 30 minutes to 2 hours. Shadows were around 5 days a week and lasted up to 5 hours. Now I have one mild attack every two weeks and shadows are gone completely. I did miss the pills twice on two separate occasions, but it hasn't seemed to effect me in any way . I plan on completing the survey after exactly two months on the regimen, so I can provide more accurate statistics. Share this post Link to post Share on other sites
Batch 203 Report post Posted May 6, 2018 Hey Bilal, Thanks for the update. Glad to hear you're CH pain free for the most part. Be sure to see your PCP for a lab test of your serum 25(OH)D. This is the essential lab data we need reported in the online survey that makes neurologists look at this regimen as a serious safe and effective preventative and not just a fairy tale. Take care and please keep us posted. V/R, Batch Share this post Link to post Share on other sites
MoxieGirl 195 Report post Posted May 8, 2018 Hi guys, I just met someone today who's daughter has CH. I've sent her a bunch of stuff about the A-I Regimen, and some links to the Cluster Headache forum. It was her work email, so I didn't send her a link to this forum, or details about other remedies. But am hoping her daughter will reach out to me. MG Share this post Link to post Share on other sites
Bilal 13 Report post Posted February 19 It's been almost a year since I last posted. I guess it's true that you tend to take your health for granted. Fortunately, I've had the luxury to do so this year. I'm glad to report that ever since I started the D3 regimen I've been completely pain free. No more headaches, and not just CH. I don't recall having any kind of headache in almost a year. I've been thanking God and the fine people of this site that directed me to this regimen whenever I can. To those of you still undecided, please give the D3 regimen a chance and stick to the guidelines. And to the people on this forum that helped me, from the bottom of my heart, THANK YOU. 4 Annepickens, dmlonghorn, CHfather and 1 other reacted to this Share this post Link to post Share on other sites
Batch 203 Report post Posted February 19 Hey Bilal, Thank you for the wonderful feedback on your experience with the anti-inflammatory regimen. Knowing you're CH pain free is exactly how this regimen is meant to work. Take care and thanks again. V/R, Batch 2 Bilal and CHfather reacted to this Share this post Link to post Share on other sites
Dana129 15 Report post Posted March 13 Very very inspiring Bilal Share this post Link to post Share on other sites
