Bilal 14 Posted April 2, 2018 Share Posted April 2, 2018 I decided to create this thread specifically for new CH members who just got diagnosed and might not want to take any psychedelics for temporary relief and would instead opt for a more permanent solution. I started the D3 regimen as advised by senior members, here is a link to the regimen https://clusterbusters.org/forums/topic/1308-d3-regimen/. On my fifth day of the pills and I've been CH free. So far so good, I'll update this thread from time to time in case anyone might find this useful. Thanks to CH father, Batch and everyone else that helped me find this regimen. 2 Quote Link to post Share on other sites
xxx 342 Posted April 2, 2018 Share Posted April 2, 2018 Hey Bilal, Thanks for the feedback. It's always great to hear another CHer has responded to the anti-inflammatory regimen. Be sure to see your PCP after 30 days on this regimen to obtain lab tests of your serum 25(OH)D, calcium and PTH. As long as you are CH pain free, your serum calcium remains within its normal reference range and your PTH is in the lower third of its normal reference range, your vitamin D3 maintenance dose is good to go even if your serum 25(OH)D is over 100 ng/mL. Any time after that, if you've time, please take the online survey of CHers taking this regimen to prevent their CH. To start this survey, click on the following link: http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6 We need survey data like this to help convince neurologists and headache specialists that the anti-inflammatory regimen is a safe and effective alternative to the typical standards of care recommended medications for CH. Take care and please keep us posted. V/R, Batch Quote Link to post Share on other sites
Bilal 14 Posted April 3, 2018 Author Share Posted April 3, 2018 Hi Batch Thanks again for all the work you and others have put into this regimen, I'll definitely start the survey after a month of this regimen. Quote Link to post Share on other sites
Bilal 14 Posted April 3, 2018 Author Share Posted April 3, 2018 A week into the D3 Regimen and I woke up to a minor attack. This was the weakest Ch attack I've had. Pain was at a 5 and lasted about 10 minutes. I went back to sleep afterwards. 1 Quote Link to post Share on other sites
Bilal 14 Posted April 24, 2018 Author Share Posted April 24, 2018 It's been a month since I started the regimen and I've only had 3 very mild attacks. Shadows are gone completely and I honestly don't feel like the condition is even there anymore. 1 Quote Link to post Share on other sites
xxx 342 Posted May 3, 2018 Share Posted May 3, 2018 Hey Bilal, What was the frequency of your CH in hits/day or hits/week before starting the anti-inflammatory regimen? If you haven't already done so, please take the online survey of CHers taking this regimen so we can capture your response data. To start this survey, click on the following link:http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6 Take care and thanks again for the feedback. V/R, Batch Quote Link to post Share on other sites
Bilal 14 Posted May 5, 2018 Author Share Posted May 5, 2018 Hi Batch, I used to have 2-3 attacks per week and they lasted from around 30 minutes to 2 hours. Shadows were around 5 days a week and lasted up to 5 hours. Now I have one mild attack every two weeks and shadows are gone completely. I did miss the pills twice on two separate occasions, but it hasn't seemed to effect me in any way . I plan on completing the survey after exactly two months on the regimen, so I can provide more accurate statistics. Quote Link to post Share on other sites
xxx 342 Posted May 6, 2018 Share Posted May 6, 2018 Hey Bilal, Thanks for the update. Glad to hear you're CH pain free for the most part. Be sure to see your PCP for a lab test of your serum 25(OH)D. This is the essential lab data we need reported in the online survey that makes neurologists look at this regimen as a serious safe and effective preventative and not just a fairy tale. Take care and please keep us posted. V/R, Batch Quote Link to post Share on other sites
MoxieGirl 275 Posted May 8, 2018 Share Posted May 8, 2018 Hi guys, I just met someone today who's daughter has CH. I've sent her a bunch of stuff about the A-I Regimen, and some links to the Cluster Headache forum. It was her work email, so I didn't send her a link to this forum, or details about other remedies. But am hoping her daughter will reach out to me. MG 1 Quote Link to post Share on other sites
Bilal 14 Posted February 19, 2019 Author Share Posted February 19, 2019 It's been almost a year since I last posted. I guess it's true that you tend to take your health for granted. Fortunately, I've had the luxury to do so this year. I'm glad to report that ever since I started the D3 regimen I've been completely pain free. No more headaches, and not just CH. I don't recall having any kind of headache in almost a year. I've been thanking God and the fine people of this site that directed me to this regimen whenever I can. To those of you still undecided, please give the D3 regimen a chance and stick to the guidelines. And to the people on this forum that helped me, from the bottom of my heart, THANK YOU. 5 Quote Link to post Share on other sites
xxx 342 Posted February 19, 2019 Share Posted February 19, 2019 Hey Bilal, Thank you for the wonderful feedback on your experience with the anti-inflammatory regimen. Knowing you're CH pain free is exactly how this regimen is meant to work. Take care and thanks again. V/R, Batch 2 Quote Link to post Share on other sites
Dana129 46 Posted March 13, 2019 Share Posted March 13, 2019 Very very inspiring Bilal Quote Link to post Share on other sites
Kyle7945 0 Posted December 10, 2020 Share Posted December 10, 2020 How long does it take to start seeing results? First day? A week? Haven't seen anyone mention that. Quote Link to post Share on other sites
CHfather 1,218 Posted December 11, 2020 Share Posted December 11, 2020 Here's an unsatisfactory answer, and maybe just a temporary one until Batch or some other expert replies. It depends. Depends on what your starting D level is; depends on what level you need (since it varies); depends on whether you are "loading" with extra D3 to speed up the process; appears to even depend on what form you're taking your supplements in. Some people have reported some positive effects in just a few days (maybe not remission, but reduced severity/frequency); others haven't seen much in a couple of weeks. I'd say virtually everyone who sticks with it eventually gets substantial benefits. Batch (xx) might be able to say something more specific about this. Quote Link to post Share on other sites
xxx 342 Posted December 11, 2020 Share Posted December 11, 2020 Here are the results from the online survey I urge CHers to take 30 days after starting the anti-inflammatory regimen, with results of their 25(OH)D3 labs in hand. The following chart illustrates days to a favorable response from start of regimen. As you can see, this can happen rapidly. For the purpose of this study, I set the Favorable Response = at least a 70% reduction in CH frequency by at least 70% of the CHers starting it. I just checked the latest survey download from two days ago. After 9 years running, survey data from 340 CHers indicate 82% of CHers starting this regimen experience an 82% reduction in CH frequency in the first 30 days and 52% of CHers starting this regimen experience a lasting cessation of their CH symptoms. Another interesting tidbit. Since I began suggesting CHers switch to the Bio-Tech D3-50 50,000 IU water soluble vitamin D3 in June of 2018, the efficacy figures for 2019 and 2020 have jumped to 88.9% of CHers starting this regimen in 2019-2020 achieving a mean 80% reduction in the frequency of their CH in the first 30 days. Moreover, 66.7% of CHers starting this regimen in this same time frame report a lasting CH pain free response in the first 30 days. That's huge! Thank all of you who started this regimen then took the time to take the online survey. You've all made these results possible so this is really your study. I'll also add, the data from this study was so compelling, it resulted in the planned gold standard RCT based on this regimen developed by Dr. Mark Burish, MD, PhD, Director Will Erwin Headache Research Center, UT Houston. It's scheduled to start early next year. When it publishes with the results I expect, you'll have helped CHers all over the world. Well done! Take care, V/R. Batch 1 Quote Link to post Share on other sites
Ariellefaith87 1 Posted January 8 Share Posted January 8 what do the ECH and CCH stand for ?\ Quote Link to post Share on other sites
jon019 540 Posted January 8 Share Posted January 8 Episodic ch......Chronic ch.... Quote Link to post Share on other sites
Ouelmath 10 Posted January 13 Share Posted January 13 Hi guys, After about 5 months free, I think I can confirm that the D3 regimem really works. In the past 20 years, I tried almost every medications possible without any great success. The best scenario was about 15 attacks/month. Thanks to this site and especially to Batch for the great help. I am now completely free. From my part, the D3 regimem will reduce the frequency and severity of the attacks. Combined with Verrapamil, it completely stoped my CH. Even my doctor his amaze of how well I am. Thanks guys for your support and help for giving me my life back. 3 Quote Link to post Share on other sites
Bomachel 1 Posted January 15 Share Posted January 15 @Ouelmath how much Verapamil are you on and congrats on the PF days!! Quote Link to post Share on other sites
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