Shaun brearley Posted October 15, 2021 Share Posted October 15, 2021 Hi every1 just a quick 1 to you lot over in US has any of you had the pleasure of this so called Gammacore , being rolled out in UK know Just wanted a bit of feedback on it if any as my nuro is taking about it. But can't get funding for it Quote Link to comment Share on other sites More sharing options...
CHfather Posted October 15, 2021 Share Posted October 15, 2021 (edited) Shaun', if you type Gamma into the search box at the top of any page, you'll see some reported results. As I recall, a couple of people reported having success with it. In the US, it is very expensive, $600 or so every month. Maybe with your NHS it's not so steep. (As I recall, it was far less effective, or plain ineffective, for people with chronic CH. I have also never understood what the appeal would be except for (1) people for whom oxygen doesn't work, since the abort time in the trials was longer than what most/many people can get with an optimized O2 system; and (2) for its portability, which is not an insignificant benefit if it works and the cost isn't prohibitive.) I guess some people have been told that regular use has preventive benefits, and not just abortive. I don't remember if we found out how that worked out. Edited October 15, 2021 by CHfather 1 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted October 16, 2021 Author Share Posted October 16, 2021 Sound thanks a lot NHS report over here has stated that it is going to give CH sufferers there lives back lol . They state that the cost is only £2700 per year . First 3 months is free to see if it work , if not you hand it back . . My neurologist tried to get me on it but local heath authority won't fund it . Makes you laugh really they fund triptan injections at £58 a shot . If i used them all the time id cost NHS thousands every year . But if your rite and results are not that good i will stay away from it . Cheers for info CHFather Quote Link to comment Share on other sites More sharing options...
xBoss Posted October 16, 2021 Share Posted October 16, 2021 Yeah, I gave up after seeing the costs and it's a complete joke that you have a device that counts how many times it works then it shuts off so you have to pay again. It's not like it wears out, they just bleed people dry... 3 Quote Link to comment Share on other sites More sharing options...
jon019 Posted October 16, 2021 Share Posted October 16, 2021 11 minutes ago, Shaun brearley said: they fund triptan injections at £58 a shot . If i used them all the time id cost NHS thousands every year ...is ever thus the ongoing frustration across multiple healthcare systems....my insurance would cover triptans at $600/script/mo, yet deny the oxygen that would have eliminated 90% of that cost...... 1 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted October 16, 2021 Author Share Posted October 16, 2021 Topic phama company buddy they run the world. Its all about money. Thats why we have no proper treatment for CH Not enough of us CH sufferers in world to buy medication of them for them to bother developing 1 for us . 1 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted October 16, 2021 Author Share Posted October 16, 2021 Just doesn't make sense jon019 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted October 16, 2021 Author Share Posted October 16, 2021 Sorry people got to try to get some sleep hoping for a pain free night after vitimin L party in friday it 0014 over here in uk im in work at 0930 Quote Link to comment Share on other sites More sharing options...
Freud Posted October 17, 2021 Share Posted October 17, 2021 I tried it, and as usual it doesn’t work for most chronics. I gave it away to some one from here who was episodic and got relief from it. I think the getting your life back is more for mm/L and Vitamin D. As they stop the attacks fir a period of time. The gamma core is just an abortive... and again like Denny said in the US it’s $600/month. 1 Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted October 17, 2021 Author Share Posted October 17, 2021 Everything is so expensive in US for you guys . I feel so sorry for you . We are lucky over here in UK even tho we do complain alot Quote Link to comment Share on other sites More sharing options...
Joyisnow77 Posted October 20, 2021 Share Posted October 20, 2021 (edited) I overheard at a conference that the inventor tried to find a use of its invention for quite a while before zooming in on CH and read that it is working on some of us but is pretty much a hit or miss. IMO there is so many things that could help the vagal nerve before trying the « zapper ». Edited October 20, 2021 by Joyisnow77 1 Quote Link to comment Share on other sites More sharing options...
Tsmith Posted April 26, 2022 Share Posted April 26, 2022 Shaun, I am about to begin a tryout with gammacore. They have a patient assistance program where you get the device for 90 days for $450 when a doctor submits the presecription - no insurance coverage. Like most people in this group, I have tried everything esle, so will give this vagus nerve stimulator an attempt and see what happens. Here is a link to a Preva study done a while back with gammacore. https://neuronewsinternational.com/randomised-data-show-gammacore-significantly-reduces-cluster-headache-attack-frequency/ Terry Quote Link to comment Share on other sites More sharing options...
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