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Showing content with the highest reputation on 06/28/2018 in all areas

  1. As far as breaking a cycle I can not help you with that but what I have done in the last year or so is start the D3 regimen and obtained oxygen to about clusters instead of taking any other meds. The D3 helped bring the clusters down in length and pain level. The oxygen aborts them with no side effects. you can find much more information on both by using the search function.
    2 points
  2. Hell has officially froze over and the pigs are a flyin or I have died and gone to heaven!! Medical Marijuana is now legal in Okieland!! As a Medicare recipient my license fee is $20 for 2 years to have 6 adult plants and 6 seedlings, 3 oz in my possession out n about, 8 oz possession at home, 1 oz of concentrates in your possession, and 72 oz's of edibles!! Yee Fecking Haw!!!! Dallas Denny
    1 point
  3. Clomephine Citrate has some nasty side effects. One of the most effective and safest methods of preventing CH involves taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3 and the vitamin D3 cofactors. You can download a copy of this regimen and treatment protocol from the following VitaminDWiki link http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep us posted. V/R, Batch
    1 point
  4. With over 22 years of personal experience with CH and nearly 8 years working with the anti-inflammatory regimen and over 800 CHers taking it, I'm of the opinion that cluster headache is enabled by a vitamin D3 deficiency and that taking at least 10,000 IU/day vitamin D3 plus the cofactors is a very effective CH preventative. 80% of CHers who start the anti-inflammatory regimen experience >75% reduction in CH frequency in the first 30 days, some as soon as 12 hours. 50% of the CHers who start this regimen experience a complete cessation of CH symptoms in the first 30 days. The 20% who don't respond initially usually have another condition that prevents this regimen from working effectively. An allergy if the single largest culprit in this case. That takes a first-generation antihistamine like Benadryl (Diphenhydramine HCL) at 25 mg every four hours and again at bed time to work effectively. One of the best methods of oxygen therapy as a CH abortive involves hyperventilating with room air at forced vital capacity tidal volumes for 30 seconds followed by inhaling a lungful of oxygen and holding it for 30 seconds then repeat the entire sequence until the CH pain is completely gone. The average is 7 complete cycles but it can go as high as 12 to 15 cycles at higher pain levels. As a lungful of oxygen averages 3 to 4 liters, the average CH abort with this method of oxygen therapy consumes 21 to 28 liters of oxygen. If you used a conventional oxygen regulator set at 15 liters/minute you'd consume roughly 250 to 300 liters of oxygen per CH abort. The breathing technique for this method of oxygen therapy involves standing with jaw dropped like saying the word "Haw." This gives the diaphragm full range of motion and free flow of air through the mouth and that enables better lung ventilation. Exhale rapidly until it feels like there's no breath left to exhale then do an abdominal crunch like doing situps and hold the crunch until the exhaled breath makes a wheezing sound for a second then inhale rapidly and repeat 10 times (roughly 30 seconds). On the 10th exhalation, hold the squeeze and abdominal crunch for 2 to 3 seconds. This will squeeze out an additional half to full liter of breath then inhale the oxygen fully. What this does is pump CO2 from your system faster than it's generated through normal metabolism. This elevates arterial pH and making it more alkaline as pushes your system into respiratory alkalosis. Remember the movie The Andromeda Strain? Increasing arterial pH also enables blood hemoglobin to attract and hold more oxygen molecules. The combination of elevated arterial pH, lower CO2 and hyperoxia helps abort the average cluster headache effectively and rapidly. Do you have a copy of the anti-inflammatory regimen CH preventative treatment protocol? If not, CHFather should be able to point out a copy here at Clusterbusters. You can also download a copy at VitaminDWiki at the following link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep us posted. V/R, Batch
    1 point
  5. ++ to what Fun' says, particularly, in the short run, about the value of O2, and in the long run, about D3. Based on the study results, I'd definitely give Aimovig a shot. I had understood that it's pretty expensive. I'd say there are real concerns about the other things -- not that they might not help you, but that they have substantial side effects, including rebounds. Here's some info about ergotamine: https://www.webmd.com/drugs/2/drug-6780/ergotamine-tartrate-sublingual/details If you take the verap, you might have to get up to pretty high doses, as much as 960mg/day, before it really helps. Here's a useful reference about meds: https://clusterbusters.org/wp-content/uploads/2014/03/GoadsbyClusterTreatment.pdf
    1 point
  6. My neurologist had pointed this out to me. He was attending the AHS conference this week and there was supposed to be a presentation on it. I am waiting to hear more from him.
    1 point
  7. Friends, Wed 27 June the message board will be down for a few hours during the day for software upgrades. We'll get it back up as soon as possible after the update and testing. Hopefully this will resolve the signup issues some have experienced. Cheers, J
    1 point
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