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Showing content with the highest reputation on 12/11/2018 in all areas

  1. I think that you have already done the most appropriate thing - find a new Neuro! I just read the Mayo Clinics' definition of Occipital Neuralgia. I don't think that your symptoms are a match for the diagnosis you received. Some Neuro's know too little about headaches. That is why they have headache specialists in Neurology. Harder to find, but much more informed. When I first began my adventure with CH, my hits lasted 20 minutes. Over time they increased intensity and duration and today last 2.25 hours. I am ECH. My cycles are pretty regular. They begin with one hit per night and ramp up to 4/night. So, with one hit at night for a couple of days, I pretty much know that I am going into cycle. Or if i drink a beer an get a hit, I most certainly am back in cycle.
    1 point
  2. Planes and altitude near an equinox is the worst place to hold this conference. That time of year is one different barometric change after another also. Could be cold. They should always be held on a charter cruise to near the equator. No laws out there and can cure people instead of talk. The Cure Cruise. More fun too!
    1 point
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