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Hi fellow cluster heads, i recieved a free gammacore through a free trial program my MD is in. The study’s show it doesn’t work that well for CCH and I would like to give it away. If some one out there gets good results but can’t afford one let me know. The divice has not been activated yet and is good for one month once it’s activated. I’ve been getting txt messages from them about programs they have now for people who’s insurance won’t cover it or you can’t afford it. You may want to look into it again if in the past that was a barrier to use. If no one with experience with them is interested I will open it up to anyone that wants to try one. It’s the newer second generation one. Not the original bulky one. It comes in original box with directions. It also works for migraines as well. So if I open it up to everyone all will be considered and I’ll have to figure out a raffle or essay thingy. Looking forward to hearing from y’all! Brian

Yes. Mine started out mild too. In 1972. They lasted 20 minutes and were not agony. Pain? Yes. Agony? Nope. Well, fast forward and they morphed. Ch is really good at that. I was days and went nocturnal. I was CCH and went to ECH. And into hell. I had a very nice break for 10 years. And was shocked when they returned in a different fashion. So, my advice is to see a Neuro. and get a relationship going. You will benefit if he/she is worth their salt. Anyone keeping you on Pred for extended periods is not paying attention. Sorry. I love Pred too!!!! I save my Dose Packs for special situations - travel, etc. That way I have a plan for emergencies and no side affects. And I stick to 4 a year. Some people get the pain mainly in the eye, others get the hot poker thru the temple. Not out of the ordinary. Don't let the dentist pull your teeth! The nerve to your entire face on that side covers a whole 1/4 of your head. So, that means your teeth and sinuses are afflicted with pain. But you don't need surgery. Many of us have had it to no avail. Many have lost teeth with no reduction in pain. Your lower level of symptoms and pain is not an indication it is not CH. Just that it is new CH I suppose you could call it. Some get slammed hard from the first and others take a different route. Who knows why. ATB