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Showing content with the highest reputation on 06/12/2020 in all areas

  1. Bust, the Energy Drinks make me sick and shaky. I keep coffee in the fridge made by the 'cold brew' method. Namely, you put grounds in the holder that goes in a jug and stick it in the fridge. In 24 hours, you have cold brewed coffee. Just convenient for me. I used to just make extra coffee and keep it cold for a hit. Caffeine alone works well for me and some others as well. If you can enjoy a cup of coffee with no issues, then I would try that. Cold is best for most CHers. Just the cold seems to help at times. Someone once said ' One for drinking and one for rubbing.' They were saying that they drink one and rub a can of whatever worked for them where it hurts.
    4 points
  2. Spiny, it is funny you say that I have done this so many times and it just clicked when you mentioned that. 5hr drinks can of soda bottle of water. I have had them all pressed against my temple and neck at one time or another.
    2 points
  3. Thank you everyone for the warm welcome and excellent information! Covid has kind of messed up the system a bit. My GP referred me to neurologist but in the meantime sent me to the ER immediately for a neuro consult there to get treatment started. They gave me Verapamil (pill) but I was back again an hour later with bad attack and they shot me up intramuscular which made a difference. After that attack I was pain-free for 14 hours, it was amazing. Enough time to fill my prescription and make sure the level stays up (240 mg/day, x3 pills @80mg each). But I haven't major attacks now for 36 hours, just maybe shadows on schedule that are a Kip 4 and much, much shorter. What a relief. I'm nervous that it won't hold but also very hopeful that I'll be responsive to the treatment. I'm looking into busting and intend to try it in the near future. I'm a research scientist and due to unusual sleep-disorders in my son and myself involving the hypothalamus/REM/Circadian rhythm I had already researched psil/MM in that capacity a few years ago so I'm firmly behind its efficacy. Thanks again everyone!
    2 points
  4. https://www.biospace.com/article/releases/phase-2-clinical-trial-of-lsd-for-and-quot-suicide-headaches-and-quot-begins-treating-patients/?fbclid=IwAR2i4zGnc86d3Hijjzi4vxCBi87AlgJvc5Naeh0wlcXhQP-bgCKFc_h5YZM Phase 2 Clinical Trial of LSD for "Suicide Headaches" Begins Treating Patients Published: Jun 08, 2020 MindMed Is Collaborating on a Phase 2 Clinical Trial of LSD For Cluster Headaches with University Hospital Basel's Liechti Lab BASEL, Switzerland, June 8, 2020 /PRNewswire/ -- Mind Medicine (MindMed) Inc. (NEO: MMED OTCQB: MMEDF), is supporting and collaborating on a Phase 2 clinical trial evaluating LSD for the treatment of cluster headaches at University Hospital Basel's Liechti Lab. The Phase 2 trial began recruiting patients in early January and has commenced treating patients with LSD. MindMed is the leading neuro-pharmaceutical company for psychedelic inspired medicines and previously formed an ongoing R&D collaboration with the University Hospital Basel's Liechti Lab, the leading global clinical research laboratory for LSD, to evaluate multiple therapeutic uses of psychedelics and next-gen psychedelic therapies. This new development is part of the collaboration and Dr Matthias Liechti is serving as principal investigator of the clinical trial. Cluster headaches, also known as "suicide headaches," due to the severity of the pain caused are often viewed as one of the most profoundly painful conditions known to mankind. The pain occurs on one side of the head or above an eye and can last for weeks or months. Studies have demonstrated increased suicidality associated with patients experiencing cluster headache attacks. Non-clinical and anecdotal evidence suggests LSD can abort attacks and decrease the frequency and intensity of the attacks. There is a need for new treatment approaches for cluster headaches as current available medications often mismanage cluster attack periods. The Phase 2 trial is investigating the effects of an oral LSD pulse regimen (3 x 100 µg LSD in three weeks) in 30 patients suffering from Cluster Headaches compared with placebo. The study is a Double-blind, randomized, placebo-controlled two-phase cross-over study design. MindMed Co-founder & Co-CEO JR Rahn said "As we continue on our mission to discover, develop and deploy psychedelic inspired medicines, we are very encouraged to bring this potential treatment for cluster headaches using LSD out of the shadows and evaluate its efficacy based on clinical research standards with the Liechti Lab." MindMed's collaboration will assess if there is clinical evidence for a future commercial drug trial through the FDA pathway at a later date. Treatments for cluster headaches may potentially qualify for an Orphan Drug Designation and be eligible for certain development incentives provided by the FDA for rare diseases. Liechti Lab and MindMed intend to learn how they can make the administration of LSD more targeted for cluster headache patients through this Phase 2 trial and future clinical trials. As part of the collaboration with UHB Liechti Lab, MindMed gains exclusive, global use to all data and IP generated in the Phase 2 trial of LSD for cluster headaches.
    1 point
  5. My kids at a very young age learned to get me bag of frozen vegetables...I hate it when they defrost in the bed!
    1 point
  6. ...or a bag o' frozen peas.............
    1 point
  7. I have added benadryl to the rest of the D3 I take and that helps me in the sprint time with underlying allergies that I do not show any symptoms of having . 3 25mg a day and then at night I will take Melatonin to help with the ones that wake you up. This could maybe help knock one or 2 more hits off your list for the day. I can not remember if you can use the 5hr drinks but I will drink one of them as well for the harder hitting clusters that wake me up, they do not keep me awake at all. Like Jon siad.. get that oxygen, if the doc will not give you the script we have the welding setup we can help you with.
    1 point
  8. Jon019 doctor tomorrow, will ask for prescrition Thank you!
    1 point
  9. 1 point
  10. @Dr. Julie, I had never heard of psilocybin being used to treat sleep disorders. Can you link to research? I had a severe sleep issue that just popped up out of nowhere in 2015. I completely lost the ability to fall asleep naturally, and was awake for several days before getting medication. I was completely dependent on sleep medication for a few years. A MRI just showed some scarring in the midbrain that may or may not have been related. I slowly recovered, but it took years. I was still struggling with sleep issues, but much better when my headache started. Now that I am busting, all those difficulties are gone. I don’t know if it is because of the way psilocybin tends to smooth out destructive/repetitive thoughts (subconscious anxiety about being able to sleep?) or if there is something else going on.
    1 point
  11. Welcome to the community Bust, sorry you had the need to join us!! Awesome first post! Dallas Denny
    1 point
  12. Your 'share' will help others. Many will read it and relate. Now that you are a member, the closed boards are available. That is where the busting info and posts will normally appear. We keep those boards for members only. When discussing busting, post that question or thread on Theory & Implementation or Share Your Busting Stories. You will get more replies there. Being closed keeps the Bots from accessing that info. The D3 Regimen has helped many either get pain free or at least it slows ramp-up time and lowers the max intensity. It really does help a lot of people and is just taking vitamins to fight inflammation. It is always worth doing! And I will say Congrats for avoiding the Trex. I am lucky in that I cannot take it, so I never had to deal with coming off of it! It can be really rough to ditch when you are now having more hits and worse hits from taking it. For some it does work very well. For others it works, but which 9 hits do you kill for the month? That is a tough question. Likely you have read a bit on the 'morphing' of CH at one time or another now. It is disconcerting and a big worry for most when it does morph and change on you. Rather like 'Wait, what?, what happened here? But it is also common. Which can suck. Welcome aboard and thanks for a great intro! Knowing your triggers is very important and gives you a bit of control. ATB!
    1 point
  13. Greetings cluster warrior . My triggers are almost exactly the same. I can say that after being chronic 7-10 daily that busting and d3 and this group literally saved my life and Gave me My life back. Welcome friend. I’m happy we all have each other.
    1 point
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