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Showing content with the highest reputation on 09/15/2021 in all areas

  1. Last night again--- pain free! I think (hope) I am done for a couple years. I consider myself incredibly lucky in a lot of ways. One is knowing/hoping my shadows will be gone for a couple years. If I disappear for a couple years, just know you all have helped a ton, even just by knowing there are people that understand this thing, and there are people helping people and doing incredible thngs making traction toward a brighter future. And isn't Batch an incredible man! Holy! It's like he was put on this earth to help all of us. Just incredible. Wishing all of you peace and serenity and all the joy and happiness possible. Goodness knows you've all earned it!
    5 points
  2. To quote myself, cuz i'm tired and it's easier than rewriting: "My greatest fear over 23 yrs of episodic was that it would become chronic. I was obsessed with the thought. Used to dismiss comments that chronics preferred it to episodic.... thought they were nuts. Then it happened.... and the reality was FAR less than the fear of the unknown had led me to believe. Hits were generally lighter, aborts worked better, triggers were reduced or went away, depression lessened. It still aint no damn fun...but if ya got the right attitude, a plan and the right tools..... it's manageable." now....re meds: ...this is an alternative medicine site, so i always think long and hard before sharing my experiences with western pharma....but it's what i know...and frankly, i'm an opinionated sumburger.... ...no personal experience with the alternative methods and substances discussed here...only that i whole heartedly endorse, follow with passion and glee the success stories, applaud the ongoing research, and am delighted by the increasing societal acceptance. were i just starting out on this journey today, i would bag all the 20+ meds tried (except for OXYGEN!!!) .... avoid all the woeful lack of western medical knowledge re headache ...and CH especially... and go the Clusterbusters route! it's too late for me, but i would encourage you to explore.... ...interesting...one of the most frequently reported and distressing side effects of verapamil in males is impotence. same area of "action" ...so consider yourself fortunate....
    3 points
  3. Ok... I feel like I'm on the shrooms after this LOL. Guess I suppose I'm the simpleton in the room here "Hi" I never ever want to go chronic I have never read anything about being chronic being easier to manage or the hits hurting less? However I am a new hell dweller. I suppose in telling you that I have also never heard of tapering off of the verapamil will show as much or I could blame that on my Neuro for never filling me in on that part as well as telling me every time I have an appointment "sorry these things are still bothering you" (as if they are going to magically go away) I also liked his statement that they are sometimes lunar? Funny that the verap is making your member stand at attention as I have to monitor my heart rate because it dips mighty low sometimes who knew.. Maybe I'll plug my husbands nose tonight and see what happens..JK... (Not shrooming just an odd sense of humor).. You did mention a beautiful wife!! Go get her buddy!!! Wishing you no pain!!!!!
    1 point
  4. I'm really glad you have found some relief! I can't recall if you had said that you were taking D3? If not I think you should give it a try it can't hurt? I recently started it and it hasn't eliminated my bangers but it has cut down the intensity and that's something..
    1 point
  5. If anything has been missed in all the great responses you have received from these members of the starting lineup of the CB all-star team, it might be covered in here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
    1 point
  6. Count me as someone who also finds @jon019's detailed response above to be an epic masterpiece of helpfulness. Now on the subject of episodic turning to chronic, dude don't worry about it! Easy for me to say as someone who couldn't bear such a going chronic thought during episodic bouts, and considered it to be the ultimate nightmare of nightmares concept, but has now made it through 40 (!) years of remaining episodic, with some seriously long remissions. When I've asked chronics how they could possibly think even for a second that it was preferable to when they were episodic, one of the reasons I've heard is the hits haven't been as strong while they're chronic. No guarantee that'd be the case for everyone of course, but it was something. Thing is, you appear to be on the verge of taming this MF with the various ultra effective non-pharma approaches that have been mentioned, so I think you should now be leaning much more towards a solid vision of life restored than horror unleashed!
    1 point
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