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It's a career buster for sure. We all have similar but very different paths with this mess. My life trajectory was changed as well like most of us. I try to take it as a challenge but it can def. be a downer. Like Bosco said, that work from home bit is huge now. I try to make money from several streams and one of them is making stuff that I sell. It's been a while but I used to crank out some cool stuff and sell the heck out of it.

It's ok. I suppose I feel bad for anyone with this un-welcome resident of the brain. There are a few states that allow assisted euthanasia but I assume it's a sticky mess to have it approved and even though it has crossed my mind in moments of agony I could never do that to my husband, family and friends. As for employment with CCH that's a tough one, now days with the pandemic working from home is pretty popular and many state agencies will not be going back to the in office way of work as it is more cost effective. You sound like a very bright individual and while it may take you a bit longer to achieve your goal due to CCH you will find a niche that works for you.

This post made me a bit sad as truthfully... it's been hard to maintain a job. I'm not a sufficient point of contact but I do try and be real. I really liked your shout out to folks with kids as they are miracles. I chose at a young age not to procreate. I don't know exactly why but babes were just not for me. I chose animals and being true to them has been challenging at times. I'm just happy that I never made another me. Anyhow I'm new to cluster 3 years .. I get brakes.. you do not. So for that my heart hurts. I remember the start of this then getting diagnosed. I spoke to my husband about euthanasia as I did not feel I could be strong enough. Turns out I underestimated myself. I try to whisper that fact to myself everyday. My situation is different as we own the company in which I work. You will find even with the constant torture you are in that you are STRONG!

Just so you know in the last 12 mouths ive had 2 mouths pain free and had between 8 to 14 attacks aday most attacks during the night . Im exhausted due to no sleep. Ive had CH since i was 13 im know 52 . Wasn't diagnosed till i was in my 30s so had to cope with no med till then so yes ive suffered to buddy . Like i said only trying to help

In my 20s the day after I tripped I felt like a new man, like my brain reset. Not so much these days but I used to love it. Bigger doses but micro dosing does give you energy and ability to focus. I would try microdosing 2-3 days a week first. If I saw no change I’d switch to sub recreational doses. Micro 0.2g-0.4g. Sub Rec doses 0.5-1.5G. Full on psychanaunt dose 3.5-5G... Never tried or looked into a ketamine infusion but some pain docs say it resets your pain receptors...and could help w depression that usually accompanies FM. MM can have a great effect on mood in my experience. Ketamine oral and nasal as well. Don’t get me wrong I have plenty of bad days. But I’m convinced the only reason I’m not walking around praying to die is because of them.

Did a gram and 1/2 of B+ shroom tea yesterday morning . I have been suffering with fibro... And I cant explain it but I feel amazing tody this is the first day in many weeks /months / years that I felt this good. And have felt normal....

Im sorry your finding it so hard to work . Im a transport manager for the biggest family run coach company in UK . We operate 165 coaches all over UK and europe ive struggled during this last CH cycle had to take a bit of time off work , but my boss is really understanding so im really lucky . I can't really give any advice as ive always been employed whilst suffering with this condition even when in military for 7 years

PS my hat goes off to all you with kids/ families. I don’t know how you pull it off.