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Thanks Guys!! im stocked on the injections and will have them in my chest pocket at all times! calling around on monday about o2 tanks near my stay. side note: my nightly visitor (usually 6-8pm) has not shown. not that that means anything but... last year xmas eve was the last attack of the cycle soooooo....ya know holding on to hope wherever we can find it!!! also, after reading all day on here.... not gonna wait. waited long enough. spores are ordered. Echo the Geko (R.I.P.), i will think of you fondly as I turn your aqaurium into a terrarium for what may well save me

Lol not really jon019 like I said only questioned once . Didn't have explanation ready so just came out with. I've got a brain disorder and if you don't allow me to take this medication on-board with me we could all have a major problem that we don't want at 38000 feet . They didn't ask anymore questions

....the only question i ever got was for an oxygen regulator/mask (they do look kinda strange off the tank)....they obvioulsy didn't know what it was but i also got the feeling they wanted to know if I knew. good idea to have a short, practiced blurb of CH (incredibly painful, debilitating neurological attack that may look bad but is not life threatening, yadda yadda) at the ready for this and other similar occasions. they aint gonna fully understand but it might come in handy... i bet Shaun had a good one.

Had 2 nights w no CH this week!!! Got slammed last night but I’m grateful fir the nights w no hits!!! Going to see if a few more infusions help after the new year. I’ll keep y’all posted.

Hopefully injections/needles are allowed on flights at this time? I haven't checked on that for a while, but this is where I've found the nasal spray version of the triptan to be a nice reassuring pocket pal to have on a flight (if you have any of those laying about). I've been a straight up syringe-with-q-tip-used-as-the-plunger guy for injections for awhile though, and that pretty much screams out for excusing oneself to the lavatory, whereas I could see an auto-injector being deployed more discretely whilst still strapped into seat. If needles are allowed onboard, one more thought: Have it on your person at all times, not stored in the overhead, as that ain't gonna be accessible during times like take off/landing.

I'm trying not to get all carried away, but man, with the direction things appear they could be headed in, now hoping 7 nights per week w no CH could become possible! This must be weird as hell for you to be experiencing actual sleep uninterrupted by CH on some nights. Let the weirdness reign!

Lol bej your a class act

Never had a problem taking injections on a flight just once I've had to explain when going through security about illness

....good point by Bejeeber on the nasal spray option....multiple trips here...aways with several Zomig NS on my person. TSA never even paused when looking at them, even tho they look a little like bullets.....

Hi Beersnuggles, I have a fear of flying for the same reasons as well as the altitude. I posted something out flying a while back and got some good feedback. Here were some of the suggestions: 5-hour energy shots caffeine tablets Imitrex prior to boarding Keep your injections handy arrange for 02 where your going And just as an afterthought I wonder if you could take a few boost cans on board ?

Hi beersnuggles sorry to hear about your recent CH cycle a lot of us are experiencing a rough time this year for some reason. I try not to travel whilst in cycle but I do carry samitriptan injections with me when ever I do travel . As for o2 I have 5 portable tanks I carry with me everywhere I go if travelling for a few days plus i take 1 large tank with me . If your flying you can arrange to get 02 dropped off at your destination through your 02 supplier before you travel . Hope this helps . Hope you and your family have a great Xmas and New Year

Obviously twins separated at birth. Proving the hereditary CH deal.

2 nights sleep without a hit must feel like all your Christmases and birthdays come at once buddy .So happy for ya, here's hoping the new year brings even more pain free nights for ya buddy , fingers crossed

...it IS a remarkable feeling....nothing else matches it my experience. mine was mood altering for several weeks, probably chemical but perhaps partly as reaction to simple relief from the ominous/dread during a cycle. almost wished for a cycle when i had an important writing assignment for work, as there WAS a "clarity" of thought, and a skill in writing beyond my actual ability....

....Lincare had a great travel O2 program that made O2 (delivery or self pu) available at multiple locations. never an issue and became a reliable travel anxiety relief. bet most major O2 shops have same. good idea to call ahead (public or private) wherever you are staying so a tank delivery not rejected....

Interesting. I never experienced any such pay off, but glad y'all have.