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Showing content with the highest reputation on 09/03/2022 in all areas

  1. EDIT TO ADD,.....SEE ABOVE, posted at same time....CHfather is, as usual, so far ahead of me i don't even see his dust... ...nice suggestion.....believe only for drug info tho. before the internet i used to ask med school libraries or my docs office for last years copy. over 20 scripts used in my CH career....it helped to know more than what was on the script bottle. now patient insert sheets cover way more than most folks will ever need.... .....believe what i was referring to is this (never seen myself): UpToDate: Industry-leading clinical decision support When you care for patients, the stakes are high and every decision counts. You need the best evidence and clinical guidance at your fingertips to answer even the most complex questions with confidence. ....subscription service for medical professionals.....this physician should have access either personally or through his practice network. website fwiw: Evidence-Based Clinical Decision Support System| UpToDate | Wolters Kluwer
    3 points
  2. [Edit: I see that jon has just posted this same info about UpToDate .. .. ..] am not recalling the name of standard reference that physicians use...hoping another clusterhead will come along and provide. Physician's Desk Reference (PDF) perhaps? This, as all have said, is one crazy doctor. PDR, as suggested by Jeebs, might have the info that jon' mentioned (and as jon' said, any sane site will list triptans and oxygen). The most commonly used online reference/app by doctors is called UpToDate. Says here (https://nhcps.com/top-12-online-resources-for-medical-professionals/): "UpToDate is considered the go-to source for about 90% of US-based medical centers. A 118-facility study published on PubMed.gov found that most doctors and residents turned to UpToDate before any other resource."
    3 points
  3. I would be interested to know what this PCP believes is effective for CH????
    3 points
  4. That would at least make some sense! Good observation @CHfather
    2 points
  5. It occurs to me, FWIW, that your doctor might have CH confused with the hemicranias (continua, paroxysmal), which have symptoms like CH and, indeed, most of the time do not respond to triptans.
    2 points
  6. Wow, that is one terrifically misinformed PCP - what a nightmare.
    2 points
  7. 23 years later and I am still self diagnosed. These jokers have no way to tell except to listen to the patients words.
    2 points
  8. what the hell....that's the first time i hear such nonsense. either you take it upon you to educate him, jon019 provided links, or you get yourself a more knowledgeable and up to speed doc. take care!
    2 points
  9. ....are you female...some behind the times pcp's don't think women get CH...they are frightfully and obviously wrong. ...what's your diagnosis? triptans were developed for migraine (but work for CH too)...is this his hang up? ...i am not recalling the name of standard reference that physicians use...hoping another clusterhead will come along and provide. it says the same as the below .orgs and .gov (not the frequently derided .coms)....i could have filled a page easily. EVERY ONE of them states the standard acute care for CH abort is OXYGEN and TRIPTANS (Imitrex)... ....if there is a way to present this info to your pcp...mail or email or mychart or advocate w/o being present to witness the embarrassment (and therefore reluctance to believe) i would try that. if you have an honest relationship where you can sit and talk openly face to face and present references...go for that (i'm suspecting no...but that's an assumption).... ....i saved this comment til last but i was SHOUTING it upon first reading your post..."get thee a new doc"....sheesh, this is a bizarre thing for him to say. preferably a headache specialist (or at least a pcp willing to listen, learn and provide)....and not just any neuro (who frequently know jack spit about CH).... Pharmacotherapy for Cluster Headache - PMC (nih.gov) Cluster Headache Treatment Options | AMF (americanmigrainefoundation.org) Cluster headache - Diagnosis and treatment - Mayo Clinic Management of Cluster Hns use, hieadache (aafp.org) Cluster Headaches: Symptoms, Causes, Treatments (clevelandclinic.org)
    2 points
  10. Ah ha! This sounds to me like one highly plausible theory from our light years ahead CHfather. Like your doc could have gotten his CH and his HC transposed.
    1 point
  11. You're looking in the wrong direction.
    1 point
  12. Physician's Desk Reference (PDF) perhaps? [Edit: PDR, doh]
    1 point
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