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Showing content with the highest reputation on 10/18/2022 in all areas

  1. ...yeah...THIS! ...for reasons other than CH i've had multiple scans of various kinds.....nearly every one shows "something" that draws comments re potential causes. it's radiologist CYA and always scared the spit out of me until i came across a urologist who bemoaned that....and another physician who said "we ALL have "anomalies" ...you are more likely to die with than from....a scan in and of itself is rarely determinative of anything". ...do your research, i did, but use it to ask questions rather than come to scary conclusions... ...fwiw...and this is a personal observation based on years of being in the clusterhead community. there are conditions that mimic CH symptoms...and which makes a diagnostic scan worthwhile, but, i've never seen any lit that describes CH being a causative factor in scan anomalies...
    2 points
  2. It would be foolish for me to say it's nothing to worry about, but . . . "White matter lesions are among the most common incidental findings—which means the lesions have no clinical significance—on brain scans of people of any age." https://www.brainandlife.org/articles/what-are-white-matter-lesions-are-they-a-problem My daughter's first MRI for CH, more than ten years ago, showed some WMLs. Nothing bad has happened to her in that regard. People with migraine have white-matter lesions more often than other people. Imma guess that's probably true for people with CH, too.
    2 points
  3. Hi HCF, I had something similar with my last MRI.. exact wording was (Overall unremarkable MRI of the brain. Tiny foci of T2/FLAIR signal abnormality within the RT external capsule is likely of little clinical significance.) When I spoke to my neuro he explained it to be "white matter" most likely some scaring/scar tissue. I certainly can believe that these bangers have caused some scaring... He also mentioned that it can be somewhat common in people with migraine or CH. I did the same research thing that you are doing and only scared myself worse than I needed to. Talk to your neuro about it and you will most likely feel much more at ease. It's really easy to research yourself into a fright.
    1 point
  4. Boco Piko, CBWN (Cluster Bunny's Worst Nightmare)
    1 point
  5. That just made me laugh out loud.. We work with Architects, Engineers etc.. and I am constantly trying to figure out the letters after the name. (LEED AP, BD+ C, CDT..) Then you opened with Bloodyhell and I swear I read the comment in Ron's voice from Harry Potter
    1 point
  6. I've encountered several vendors that will sell a demand valve without a script. The BPR is much like the one I have, but one like this will work just as well. I think if you are not so set on a specific brand you can find a vendor willing to sell to you.
    1 point
  7. Hi. While not that particular model, I got my demand valve from Divers Alert Network (DAN.org). Divers use them for emergencies. I am in the USA and no questions asked. Hope that helps and good luck.
    1 point
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