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Not sure if this is important or not but figured I would speak to it. Even though my weight is in line, my body tends to not produce enough insulin. I am not diabetic or anything of that nature so it has thrown a few Dr. for a loop. I was heavy for my size at one time but am now 125. Then 180 (big for a 5 six chick) anyhow two months ago I was started on a semaglutide. My stomach rejected it pretty harshly and I started to question the script. I decided to do an experiment. One day on, and one day off. All of my days off resulted in serious shadows. This is very preliminary/conceptual and I've yet to have a definitive response to it. I'm just wondering if anyone else with CH has an issue with insulin creation (non diabetic) that is.

See told you, should have letters after her name !!!!!@BoscoPikoMD contributing to medical science again!!!!!!

No shadows on the days on? Sometimes it seems like the real use for most meds out there was discovered inadvertently when it was noted that they alleviated some unanticipated thing. Thank you for discovering that Semaglitude should be investigated for off label CH prevention, trials starting immediately . You should get credit, royalties, and they should change that ugliest of names to 'Boscofixya' or similar.

Wow thank you so much Spiny. I am grateful to you and all of the information/guidance you have shared with me. I have a terrible mask. I have a to get the non-rebreather. What is a "PRED TAPER"? is that prednisone? I wish one day I could talk to you on the phone because I understand easier verbally instead of reading text. Right now I am still in my cycle but it is far less frequent and far less severe. I've had like 3 nights straight of no attacks but then I get some "pings" of pain like an attack is coming and then I hit the oxygen and take 2 advil and I'm okay. I think the mushrooms helped me decrease the power of the cycle. I did the mushrooms about 2 and a half weeks ago. My hope is to learn more and more hope to not only manage a cycle but ultimately to prevent a cycle. If you are ever up for a phone call, just a few minutes, I'd love to talk to you since you have lots of experience. But mostly, I wanted to let you know I am praying for you, me, and all of the people who are dealing with this insidious affliction. I hope right now you are pain free and I hope and pray that you never even get a mild headache ever again in your whole life. Like gone forever and that you can be one of the lucky one that are 100% rid of any type of headache. I pray every day and I pray for you, CH Father's daughter, and all of us in this forum and around the world who battle this demon. Thank you so much for helping me fight and hopefully win against this enemy. I feel like the answer or cure is out there and it's fairly simple. I think all of us get them for different reasons and if we can just prep our systems in advance of when we know a cycle is coming, we can avoid the cycle entirely. Take good care and please tell me how you are doing. Thank you, Jimmy