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TOMORROW! Founder and Executive Director Bob Wold returns to Clubhouse.com along with Board Member and President Eileen Brewer. Join them to discuss using psychedelics to treat cluster headache and other headache diseases with The Flourish Academy on August 24 at 12pm ET. You must have the free Clubhouse app to join.Join The Flourish Academy Psychedelics Club and the conversation here: https://conta.cc/3OXcNmv

Mr. Bill Mingus is a long time veteran of cluster headaches. He has been active in the online community and was a member of OUCH USA for many years. Considered by many as an expert on the use of oxygen in the management of cluster headache, Bill will share his knowledge during our pre-conference and lunch sessions: “Oxygen - Making It Work For You. A Hands On Demonstration and Discussion.” This will be an opportunity to learn more about oxygen use including tips and tricks to optimize its effectiveness.Join Bill at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU

@paul B, One of our Clusterbusters Board Members Joe McKay was a 9-11 NYC Firefighter and he is actively engaged in the burn pit issue. You can find him at joem@clusterbusters.org or here is his Facebook page. https://www.facebook.com/joseph.mckay.182

Dr. Melissa Rayhill will be presenting "Co-Occurring Headache Diseases/Misdiagnoses" with Clusterbusters Board Member and Patient Advocate Ms. Anna Williams. Join them at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUDr. Melissa Rayhill graduated cum laude from the University at Buffalo School of Medicine (SUNY) where she was inducted into the Alpha Omega Alpha honor society and Gold Humanism Honor Society. She completed her Internship and Residency at Boston University Medical Center in Boston, Massachusetts where she served as Chief Resident. She completed a Fellowship in Headache Medicine at the Brigham and Women’s Hospital/Harvard Medical School Program at the John R. Graham Headache Center.After her training, she joined the Department of Neurology at the University at Buffalo Jacobs School of Medicine. Dr. Rayhill was named a Fellow of the American Headache Society and a Fellow of the American Academy of Neurology. She served as an Associate Editor for the journal Headache, and serves on the editorial board for Pain Medicine. Dr. Rayhill is the Program Director for the Adult Neurology Residency Training Program at the University at Buffalo (SUNY). She founded the Women in Neurology section of the New York State Neurological Society, and currently serves as the society’s Treasurer.

Sometimes prednisone dosage is related to weight. The actual CH recommendation is 1 mg per 1 kg of body weight, to a maximum of 60mg. 60 kg = about 135 pounds, so you'd be fairly light not to get the full 60mg. One more quick "dosage" thing. If the Red Bull works, that's good. I note that many small energy shots, such as 5-Hour Energy, have a lot more caffeine in them than an 8-ounce Red Bull (roughly twice as much), and can be drunk down more quickly. On the other side of this "dosage" issue, some people get good results from a strong cup of cold coffee along with a taurine pill, and some people prefer energy drinks that are probably healthier than Red Bull or 5-Hour, such as V-8 energy drinks. Wishing you the best that this surgery turns out well!!!

Ms. Kim Dudley Farley will be presenting her Patient Perspective at the Clusterbusters 18th Annual U.S. Patient Conference.Kim lives in the heart of the Shenandoah Valley. She has been married to one of her best friends, Stacy, for 21 years. They have two beautiful children together. Kim started her journey with migraines at the age of 9 and after a horse injury to the head at 25 she was diagnosed with cluster headaches in 2003.Kim’s professional life spans from a Real Estate Agent, Kickboxing Coach, Manager and Coach of a local Orangetherory franchise and most recently the Education and Fitness Manager of a holistic wellness retreat resort. Outside of work she loves to travel to new areas, and try new adventures. Depending on the season, you can catch her on a baseball field cheering on favorite baseball player, Dominick, or spending time in nature on a hike with Karis.She believes caring for your body both physically and mentally are the keys to optimal health. She takes a holistic approach to wellness and healing of the body and spends much of her free time researching nutrition and alternative medicine.Kim is a relationship based individual, who thrives on connection with others. She attended her first Clusterbusters conference in Austin in 2016 and the connections she made have been immeasurable. The CB community has been an integral piece of her healing and she will be forever grateful she found this family.She is incredibly humbled to be asked to speak at this year's conference and share her journey with you.Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU

Dr. Emmanuelle Schindler will be presenting "Research: What's Next?" as well "Busting Basics" with members of the Clusterbusters Board and Bob Wold, our Founder and Executive Director. Join them at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/ Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUDr. Schindler is Medical Director of the Headache Center of Excellence at Veterans Affairs (VA) Connecticut Healthcare System and Assistant Professor of Neurology at Yale School of Medicine.Among her efforts to optimize the management of headache disorders, she has developed and executed the first controlled trials investigating the effects and mechanisms of action of psilocybin in cluster, migraine, and post-traumatic headache.Previously, Dr. Schindler studied the neuropharmacology of psychedelics and other serotonergic compounds in the context of receptor binding and intracellular signaling.

Thank you for your service @fattestfoot . I would advise you and @CursedEyeball to consider registering with the World Trade Center Health Program if you had exposure to the disaster area in downtown NYC between 9/11/01 and 05/02. I know too many people who have suffered from all types of illnesses related to their exposure to the dust cloud and burn pits. @CursedEyeball described the acrid air that blanketed that area for 9 months post-9/11 so well. It's still unclear to me why Cluster Headaches have not yet been added to the Zadroga 9/11 Health Act so that people can get the help that they need. I'll continue to research and post here if I make any headway.

Clusterbusters 18th Annual U.S. Patient Conference is less than a month away. Join us Sept 7-10 for a long weekend of cluster community, support and education! For more information and to register: https://386964908.planningpod.com/ Secure your room at the conference hotel through August 16, 2023, to receive a special discounted group rate. Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU