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Showing content with the highest reputation on 08/31/2023 in all areas

  1. I'd say that's either an 8lpm (not enough) or a 15lpm (a good starting point). Hopefully the mask you ordered will come quickly. Just using the hose really isn't the best way.
    2 points
  2. Edited to say that this was posted at the same time as Bosco' was posting, and I hadn't seen responses to you on other threads, such as the one from spiny that Bosco' mentions. Maybe you've heard a lot of this already. Okay . . . Gotta ask this. First, what do you mean by "micro-dose"? Enough to have any kind of "trip" effects? Do you know the weight of the dose? Did you dose during an attack, near an attack, or at a time when you were having no attack and not expecting one? Are you using the triptans? You are getting results. That is definitely what matters. You might be aborting individual attacks (it's just not clear to me). Most people here use psychedelics as a preventive -- to end their CH cycle, not to stop individual attacks. If you read the material at the "New Users -- Please Read Here First" banner at the top of the page, you'll see the method that is used by most people here and strongly recommended -- significant doses (enough for some level of "trip" if you are using psilocybin or LSD) five days apart, with no triptan usage in between. The prevailing wisdom here is that if you take doses every day you will eventually run out of effectiveness because the receptors become blocked, and that if you use triptans, they will block the effects of busting. I underlined prevailing wisdom because, while those beliefs are like "policy" here (because they have proven highly effective over the course of 15 years), there are people who are not so sure. So you can continue what you are doing because it works (unless it's the sleeping outside that works, or your cycle us winding down, or you are early enough in the daily "microdosing" that nothing is blocked), or you can try it the recommended way. In the longer run, you are almost certainly going to want to do it that way. When you get your oxygen set up it will be easier to wait the five days between. Speaking of your oxygen setup . . . You have a regulator? And what kind of oxygen supplier would send a tank with no mask (and maybe no regulator)? It's okay that you bought your mask -- it's actually cheaper in the long run than "renting" it from the O2 supplier -- but unless your doctor wrote a weird prescription, it's practically malpractice for them not to give you a mask (the standard prescription says "with NRB" (for non-rebreather)). (I will also note that in the excellent video that Bosco' linked you to, the demonstrater is using a "demand valve," which is a different thing than a non-rebreather mask. It doesn't have a reservoir bag on it that empties and refills as you breathe. So you might look at this one, where he's also using a mask that is slightly different from what yours will be, but it has a bag so you can see how that part works: https://www.youtube.com/watch?v=PtFHRIQN17s Did you get big tanks, about three feet tall or more? I would urge you to read the file I linked you in my previous post. You really want to start the vitamin D regimen. There's a link to it in that file.
    2 points
  3. I've seen your other posts on various threads and just wanted to follow-up on what @spinysaid with regard to micro dosing. First and foremost I'm so glad that you seem to be experiencing relief! That's so promising and makes me happy for you. Second I have to ask you to follow up on here as the general consensus has been that micro dosing just isn't enough. Most that have experienced success have taken 1 to 1.5 g. Per session which leads to a mild, maybe sometimes obvious trip with enhanced color and sensation maybe even visual distortions anyhoo .. I'm cheering for you!
    2 points
  4. Ms. Heather Keschinger will be presenting a Caregiver Perspective at Clusterbusters 18th Annual U.S. Patient Conference.Heather has been married to Steven for over 40 years. She is a proud mother of two sons and a grandmother of twin girls. Heather has attended 3 Headache on the Hill Events and this will be her 10th conference.She has been a supporter/advocate/caregiver to her husband Steven with Cluster Headaches for over 20 years. She says "Clusterbusters has saved both of them."Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU
    1 point
  5. Gosh darn it.. At least you caught it..
    1 point
  6. Just double checking that you meant non-rebreather..
    1 point
  7. Hi BM, That's frustrating but most likely they would not have provided you with the proper mask anyhow. You can order one on this site by going here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit or on line just make sure it's a non re-breather mask. Be careful with the triptans, they are know to extend cycles as well and cause rebound attacks. And just because it's helpful, here is a video to help you with breathing techniques.
    1 point
  8. Bump bump! Anyone! A few members have gone through serious surgerys .Sorry MIT all I can do is try and bring attention to your post.. Hang in there!
    1 point
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